ANA Discussion Forum

Post-Treatment => Post-Treatment => Topic started by: Cynaburst on March 09, 2016, 08:55:31 pm

Title: How many of you who are more than 10 years out from surgery still get scans?
Post by: Cynaburst on March 09, 2016, 08:55:31 pm

I am just wondering what different people do.  I know that there is a lot of variation in follow up protocols following surgery.  If you do still get periodic scans and you are ten or more years out, how often do you get scans?

I know that regrowth is not likely, but is not impossible either...


Thanks for your input.

Title: Re: How many of you who are more than 10 years out from surgery still get scans?
Post by: Patti on March 10, 2016, 07:12:19 am

I was going every 5 years.  But this summer (intuition or God or fate or whatever), after only four years since my last scan, i went to a neurologist and she sent me for a scan.  After 15 years of no growth there was regrowth (see signature).  What a shock! I thought I was done.  Anyway, I'm ok now. I get headaches, but at least I have to have frequent scans now so I'll always catch it before it gets too big.  But I do think this was rare, in fact, everything about my situation has not been the norm.  So don't compare yourself to the rare ones!   

Title: Re: How many of you who are more than 10 years out from surgery still get scans?
Post by: MLB57 on May 14, 2016, 10:37:16 am

Hi Cynaburst,

If you read my signature that will tell my AN journey regarding treatment. As for the MRIs.. my last one was last year--next one needed in 2018... I'm wondering at  what point Dr Loeffler will say it's a done deal.. That my AN will not grow anymore.. . but my ins is paying so I will keep having them until he feels it truly is a done deal.

Regards, Mary/AKA Grammy

Title: Re: How many of you who are more than 10 years out from surgery still get scans?
Post by: arizonajack on May 15, 2016, 10:39:51 am

I think MRIs are a lifetime commitment for us. My next one will be in September, about 18 months from my last one. The results will dictate when the next one after that will be.

Title: Re: How many of you who are more than 10 years out from surgery still get scans?
Post by: jaylogs on May 15, 2016, 10:07:27 pm

I had one about a year after my surgery and that was it. No more! It's been over 6 years since surgery now...

Title: Re: How many of you who are more than 10 years out from surgery still get scans?
Post by: tweety on May 17, 2016, 09:06:29 pm

I had one 6 month past my surgery and just had one this March 6 years since my surgery and Dr. Chen (Pittsburgh Pa) said I needed no more.  I have had no regrowth and I feel very fortunate.  My ANA journey was about 6 month after Jaylogs and I used this site a lot.  I still get on it time to time to read updates etc.  I am glad to say besides being deaf on my right side, I have done well with no other issues. Tweety