ANA Discussion Forum

General Category => AN Issues => Topic started by: Notanotherthing on March 02, 2016, 05:32:22 pm

Title: Did the Newsletter come out yet?
Post by: Notanotherthing on March 02, 2016, 05:32:22 pm

 Am I missing the March newsletter somewhere? I was eager to read an article about some research being done showing that these tumors release toxins. Thanks for directing me if I missed it!

Title: Re: Did the Newsletter come out yet?
Post by: CHD63 on March 03, 2016, 06:08:39 am

Hi there .....

It is not available yet online in the members section on anausa.org.  I have asked our executive director to reply to this as to when to expect it.

Thanks for your interest in this topic.

Clarice

Title: Re: Did the Newsletter come out yet?
Post by: Director on March 03, 2016, 08:40:07 am

Hi Notanotherthing- As our wonderful volunteer, Clarice, said, the newsletter is not yet up on our site, but will be later today!
  Feel free to contact me directly any time at director@anausa.org or 770-205-8211!
Allison

Title: Re: Did the Newsletter come out yet?
Post by: Notanotherthing on March 03, 2016, 09:48:00 pm

Thank you so, so much. I am so eager to read this & share with my doctors.

I have a small VS & tinnitus... but sway & stumble balance problems are what brought me to my neurologist. I was told a small VS would not cause this ... but I'm convinced it does. I'm getting vestibular therapy to help with this balance issue. My vestibulo-ocular reflex is abnormal. This came on 6-7 months ago & the tumor was discovered.  I feel this must be due to the small VS causing irritation regardless of it's size. So very interested in what this says.

Thank you so much again.

Title: Re: Did the Newsletter come out yet?
Post by: Director on March 07, 2016, 03:25:27 pm

Yes, balance issues, other than vertigo, are a common symptom of acoustic neuroma. Take a look at our 2014 Patient Survey report- on the home page of our website: www.anausa.org. This would be helpful for your physician as well.
Allison