ANA Discussion Forum

Post-Treatment => Post-Treatment => Topic started by: sunny on February 04, 2016, 05:03:57 pm

Title: Six Month "Post-Cyber Knife" MRI Results
Post by: sunny on February 04, 2016, 05:03:57 pm

Hi All,

If anyone is looking for CK encouragement, I just wanted to post that my six month post-CK MRI went well, and the tumor was deemed "the same size," hooray! That sounds a little anti-climactic, doesn't it? :-)
I had been feeling well, but how nice to have that result (no swelling, no growth) officially confirmed. I will go back to Stanford for my next MRI in June, fingers crossed.

Of course my partial hearing loss is still present (but not worse, according to the audiogram) and my tinnitus is still present (but not worse, by my own assessment), but those both seem to be things I can learn to deal with. There are some days that I'm more easily fatigued by physical exercise, and I catch myself off balance more often than before, but it's hard to know what to chalk up to "aging" and what to blame on the tumor.

I also have had an interesting experience with TMJ, but I will write that up in its own post.

Wishing the best to all of you, with whatever path you choose.

sunny

Title: Re: Six Month "Post-Cyber Knife" MRI Results
Post by: GaryWNT on February 05, 2016, 03:37:52 am

Thanks for the update, Sunny! I'm three months post-Cyber and have had no change in symptoms. Some hearing loss and tinnitus . . . same as pre-Cyber from what I can tell. I hope you continue to do well and that I can match your 6-month check up!
Gary

Title: Re: Six Month "Post-Cyber Knife" MRI Results
Post by: Patti on February 05, 2016, 07:40:23 am

So happy for the good news!  Gives me hope!  Saturday will be three months post SRS for me.  I'm a bit obsessed.  I analyze every little head pain I get. I'm going to stop that as of today!

Title: Re: Six Month "Post-Cyber Knife" MRI Results
Post by: sunny on February 06, 2016, 01:15:52 pm

GaryWNT, good for you! I wish you continued good health!
Sounds like you are off to a great start with your recovery.
Always take care of yourself  :-)


Patti, I hope you can relax during your recovery.
Take it easy on yourself and go at your own pace, for sure.
Congratulations on your first three months! :-)


sunny

Title: Re: Six Month "Post-Cyber Knife" MRI Results
Post by: Patti on February 06, 2016, 04:41:48 pm

Thanks Sunny! I got out of my duldums yesterday and have been doing well! Worrying changes NOTHING!  That's what I have to keep reminding myself!

Title: Re: Six Month "Post-Cyber Knife" MRI Results
Post by: SP on February 15, 2016, 03:06:53 pm

Awesome news Sunny! It great to hear that you are doing so well.

here's to continued good health  ;D.

SP

Title: Re: Six Month "Post-Cyber Knife" MRI Results
Post by: sunny on February 15, 2016, 06:25:11 pm

Hi and thank you SP,
How are you doing? How is your recovery?
I hope all is well for you.
Summertime for you now, right?  :D

Take care,

sunny

Title: Re: Six Month "Post-Cyber Knife" MRI Results
Post by: SP on February 20, 2016, 04:10:25 pm

All going well here - yep it's Summertime for a couple more weeks!
I have been feeling mostly well  ;D-- leading into my 6 month scan next week -- fingers crossed  :)

Title: Re: Six Month "Post-Cyber Knife" MRI Results
Post by: tdlight on February 22, 2016, 07:05:38 pm

Congrats, Sunny.  Good to hear as I am in the process of scheduling CK with Dr. Chang right now; looking at about 4 weeks from now.

BTW - I had bilateral TMJ surgery 3 or 4 years ago; let me know if I can offer anything there.

- Terry

Title: Re: Six Month "Post-Cyber Knife" MRI Results
Post by: CattAN on March 16, 2016, 08:17:59 pm

Just a quick update on my six months MRI post CK.  The tumor size increased from 12x11 mm to 15x13 mm.  I assume the 2.2 cm part remains the same?  There is necrosis as evident from the image (Yay!).  This is really good news, and explains the facial spasms I started to have right around the six months mark, along with loud tinnitus, and fatigue. I am hopeful that my symptoms will improve with time, or I get used to this "new normal".

Title: Re: Six Month "Post-Cyber Knife" MRI Results
Post by: Patti on March 17, 2016, 07:08:53 am

My 3 month MRI showed no growth and no swelling, too. Yeah! It has relieved a lot of pressure for me and my husband.  We imagined worse things!  It did clarify that next to the bigger one (2.6 cm X 6 cm) is a nodular,  second acoustic neuroma, 5 mm round. I know NF-2 is on both sides, but can it be on the same side? and at the age of 53?