ANA Discussion Forum

Post-Treatment => Post-Treatment => Topic started by: MMusella on January 22, 2015, 07:00:27 pm

Title: acoustic nueroma
Post by: MMusella on January 22, 2015, 07:00:27 pm
1week & 2 days and going strong..my vestibular rehabilitation I see 3xs a week says laughter and family and friends are the best remedy...the tumor (which was the size of bigger than a golf ball).. is gone and mom of 4 &career women is newly to emerge..anyone willing to tell their story please do..all positive feedback welcomed..
Michelle
Title: Re: acoustic nueroma
Post by: Susang8 on January 23, 2015, 05:42:04 pm
Hi Michelle...glad to hear you are doing well 1 week post-op!! Here is my story.

I am 58 years old and am 12 weeks post-op after Translab surgery to remove a 2.8cm left AN that was pressing on my brain stem and cerebellum.  The size and location made surgery asap my only option. My surgery was done at Toronto Western Hospital by Dr John Rutka (Otolaryngologist) and Dr Michael Tymianski (Neurosurgeon). 

My surgery was 9 hours long, they were able to remove the entire tumour, and aside from some nausea and vomiting when I first woke up after surgery, I have had absolutely no issues.  No dizziness, no balance problems, no pain, no headaches, no facial paralysis, no eye issues.  I was driving again a week after surgery, and back at the gym doing my full workout at 3 weeks post-op.  I am now SDD on my left side, but I had lost virtually all of my hearing before the surgery and I had already adjusted to being deaf on that side so now being SDD has not required any additional adjustments.

I did need extra sleep for the first 2-3 weeks, and my left ear still feels "full", but other than that, my recovery has been uneventful.  I had a post-op MRI with contrast yesterday to establish a baseline for comparison for my yearly MRIs which I will have to monitor any re growth.   

So I am back to 100%, and that thing is out of my head so life is very good!

I sincerely hope that your recovery continues to progress as well as mine did! 

Susan

Title: Re: acoustic nueroma
Post by: ANGuy on January 23, 2015, 06:17:29 pm
It's posts like these that make me second guess my WW status.  You two folks didn't have the option of WW, so you just did what you had to do and it worked out great.  Mine is 1cm so I am sitting it out for now, just getting MRI's until I have to make a move.  Experiences like yours make it hard to know if I am doing the right thing.  I figure at some point I'll have to make a move, when it is established that mine has grown.

I am so glad to you have had such a great outcome.  I am happy for you, and it is encouraging to me that recovery from surgery can be so "not bad".  I'm sure it wasn't a complete walk in the park, so you two must have a bit of a "stiff upper lip".  That fortitude is probably a large contributing factor to your strong recoveries.  Thanks for passing this along to us.

Well done!
Title: Re: acoustic nueroma
Post by: Mimispree on January 24, 2015, 12:30:28 pm
Wow Susan & Michelle I'm so happy you had such a great outcome.  I can say that I wish I could say the same, but we all have different outcomes.  But you both are an inspiration to me so please keep on posting.  I'm going to catch-up to you!!!

Best wishes.
Michelle (Mimispree)