ANA Discussion Forum
General Category => Inquiries => Topic started by: Nuttyneddy on February 03, 2014, 10:54:44 am
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Having finally given in to the nagging of my husband to stop stressing about when my MRI might be scheduled, I rang the hospital X-ray department today (on the advice of my doctor) and discovered that the waiting list is currently 17 weeks :o That will be almost seven months from when I first visited the doctor about my symptoms.
Does anybody know the rough cost of a private MRI? And how I would go about getting one? I do not have BUPA or anything.
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I'm in Canada (Ontario) where our Provincial Health Plan covers the cost of MRI's and our wait times can range from (in my experience) 4 - 8 weeks. I found by calling the MRI Dept. at the Hospital and telling them I was willing to come in at any time, I could frequently get my MRI sooner. They would call and move me up when they had cancellations or if you are able to take an appointment after 11 p.m and before 7 a.m., that would speed things up as well. Not sure if that's an option for you, but it worked for me.
Cathie.
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Thanks Cathie :)
I think we are expected to take an appointment at whatever time they make one for us here! Of course, the upside is that we don't have to pay for it (apart from through our taxes).
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Nuttyneddy ~
Here is a link that may be helpful to you. http://www.canmagnetic.com/scans-rates/ (http://www.canmagnetic.com/scans-rates/)
It appears as if the cost for an MRI scan of the brain - with contrast - is about $1,200. (Canadian).
Jim
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Ouch! I hope it's cheaper than that in the UK :'(
Is it even worth paying for a private scan? Or am I better off just learning to put up with things and wait? Whatever the result we would not be able to afford private treatment.
My husband is under the impression that if that's what it is you just go into hospital for them to remove it and then you are back to normal. He thinks I should have the private scan (tired of me keeping him awake when I can't sleep because of the relentless racket in my head!). He has got used to repeating everything though, and is very patient with that :)
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Hi nuttyneddy,
I replied to you and glasgow guy in his thread, but I'm in the UK and am well versed in the experience of trying to get a diagnosis here. The docs don't expect it to be an AN as they are so rare, so you have to be persistent to get seen quickly. There are 2 ways of doing this. Either pester your GP as the symptoms and uncertainty are making you ill or go private. You do not need a GP referral to go private although if your GP can give one it may be helpful. You need to ask for an MRI of the IAM (thats the area of the brain they look at for ANs which includes the IAC and CPA). I didn't have contrast in my MRI that picked up the AN. They are only usually missed if they are small or the radiologist wasn't knowing what he should be looking for, but he will if its a suspected AN.
Ring your nearest local private hospital and they will give you a quote. Whereabouts are you? They range between around 300 to 500 pounds.
Hope that helps.
Alison
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Thanks for the reply Alison :)
My doctor is actually being very helpful - he saw me as an emergency at the start of November when I had a very bad attack of vertigo (my first inkling that something was wrong) and he is of the opinion that my problems are something to do with the acoustic nerve although at the time I last saw him I had not heard of AN so I didn't ask him if that's what he suspected. He did a hearing test with a tuning fork, and tested my eye reflexes with his finger then promptly ordered an MRI which I had not expected, so I came home and looked on the internet (fatal mistake ::) ) to see why he might have done that, and that's why I'm here. I should just be grateful that I am on the waiting list I guess!
I am intending to make a (private) diary of my symptoms in case it is useful down the line. The only person who knows is my husband, and I don't like complaining to him every time a new or worse problem rears its head. My family know about the vertigo, but they think that's all over now. I rarely see them in person, so it's easy to hide on the telephone - I just use my good ear.
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Oops, I forgot to say - I am in Wales, near to Aberystwyth. We have an MRI scanner in Bronglais hospital, but I also found this place http://www.cobalthealth.co.uk/diagnostic-scans/patient-info/mri/south-wales-mri.aspx (http://www.cobalthealth.co.uk/diagnostic-scans/patient-info/mri/south-wales-mri.aspx) which does them for £228. It says the Welsh ones are done at a chiropractic centre though, would they be able to do heads do you think?
I know, I should be asking them ::) Somehow it's a bit less scary to be anonymous on the internet though...
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Hi again nn,
just saw your reply in glasgows thread, sorry I missed it! See you are in Wales. I'm in the south west . The MRI result will not be given to you on the day. It will go to a radiologist for a report which can take two weeks. But it will be on the system straight away for your GP to access or if you go private it will be quick and given to you.
Just seen the latest post pop up.
Ring them to see if they will report on Brains, you may need a hospital with a radiologist in residence to read the MRI.
Alison
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I have sent them an email :) Just writing that last post made me realise I was being a wuss ::)
I am currently sitting in the library where it's quiet (at least outside of my head), so not able to phone just now.
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Hi again nn,
if it is 228 and they do heads go for it. Island girl and I had long convoluted waits for diagnosis and treatment and now for follow up!
If it isn't an AN you can relax and explore other causes less worrying.
If it is an AN your GP can refer you to a neurosurgeon to discuss treatment and skip the ENT route. There are options of w and w, radiosurgery before you have to worry about surgery. But if it's labyrinthtitis you can go to ENT. But you'll need to educate your husband if its an AN! The cotton wool head is one of my constant symptoms as well as inbalance and tinnitus. It was vertigo that lead to my diagnosis but it can be other things not nec a AN so don't panic!
The not knowing is difficult. Let us know what the email says from the clinic.
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Had an answer already! Although they didn't actually answer my question about having it done in Pontypridd ::)
Still, they said:
We are able to offer MRI scans to anybody referred to us by a GP, Consultant, or other medical practitioner.
Your doctor can refer you by using our online Referral Portal https://secure.lohost.com/mriservice/mri_portal.php
or post to Cheltenham Imaging Centre, Linton House Clinic, Thirlestaine Road, Cheltenham, Gloucestershire, GL53 7AS
or fax (01242 535919).
We operate state-of-the-art MRI scanners from here at Cheltenham, including UK's first High Field Open MRI, World's First 3T MT Mobile MRI, and Europe’s First Mobile 1.5 MRI Provider. A one-part scan costs £228.00 and a two-part scan costs £384.00, including the Consultant Radiologists report.
We do not have a waiting list therefore we are usually able to offer patients an appointment within a few days of receiving a referral.
I believe they are partly funded by charity, which is why they are quite cheap. Waiting time sounds excellent though!
One question, I don't know what they mean by a one part or two part scan, do they mean two parts of your body? Or is two parts one without and one with contrast?
Cheltenham is about three hours away so not too bad (and coincidentally where I was born), I think I might have to raid the piggy bank and go for it.
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Hi nn,
they sound brilliant. All the latest machines too. And cheap!
I'd ask them, but I think one part is one body area so head should be one? Also the rad report included, great. I'd ring and book if i were you.
And great to know they are in Cheltenham, too as not too far from me either if I had to resort to private for monitoring mine post radiotherapy.
Are you gong to go for it?
Alison
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Yes, I am :) I'll ring my doctors when I get home this afternoon and sort out getting a referral (it has to come from your GP).
Hubby is keen for me to have this rather than him spending the money on a new chainsaw - true love if ever I saw it ;D
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Hi again,
great news, better to have a happy wife than a chain saw!
Let us know how you get on. Good luck!
Alison x
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Hope I can help. I had a private MRI (N. Ireland). It cost £400 (private insurance). I think the 2 bits might refer to 1. IAC and 2. Whole brain. That's what I had. My GP referred me to an ENT, who then ordered the MRI. I had a 4 week wait for results, partly due to scheduling problems & I was seeing the ENT privately! Not fun. Also, I didn't know this, but being private doesn't put you any more in charge, you're still doing things their way. You just get seen earlier, probably in nicer surroundings. I didn't have contrast, because that's just not the way they seem to do things here. Contrast only if they see a need for it at the time of the scan. That may not always be the case though! My scan was clear, fingers crossed for you.
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They said that they thought it would be a two part test, but that they'd only know for sure once they had the referral from my doctor. So I'm prepared for the worst - if it's only the one part I need then hubby can have his chainsaw too ;D
I've contacted the doctor and given him the details, so fingers crossed. He seems very on the ball, it was he who rescued me from the vertigo (with prochlorperazine) so he's seen me at my worst and at least knows I'm not making a fuss about nothing. Just have to determine exactly what it is that I'm making a fuss about!
Do you have any idea yet what your problem might be if it's not an AN?
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Just been called tinnitus. I have unilateral tinnitus & hearing loss. No more investigations at this time. I've been referred to a hearing therapist on Nhs. No sign of an appt though. I saw from another post of yours that we're the same age. Surely too young for hearing loss! I didn't follow your youtube hearing loss link, but not sure you should put too much weight on it. You've probably got enough stress right now, try not to do too much advance worrying.
Karenk
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I hope they get to the bottom of it for you and can offer some relief. Glad it's not an AN though :)
Don't worry, I don't set much store by the do-it-yourself hearing test ;) I know my hearing is poor in my right ear (I discovered that quite early on because that used to be the ear I used for the telephone). I just thought it was peculiar that I was listening with my right ear and heard the sound in my left! Probably just imagining it 8)
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Just a quick update. I did contact my doctor's surgery and ask for a private referral, but they called me back the next day to say that they'd contacted the hospital and expedited my MRI and that I should hear something in the next week :) It will still be four or five weeks, but anything's better than 17!
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Hi nn,
great news that your doc has speeded up the MRI and that the chain saw budget will remain intact, ha ha. Hope you get a good result.
Alison x
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Wow, it's amazing what suggesting a private referral will do! I have my NHS appointment through for 24th February, thank goodness - I will report back. Please keep your fingers crossed for me xx