ANA Discussion Forum
Archive => Archives => Topic started by: suelay on September 12, 2006, 11:12:33 pm
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I have tried to do what I'm supposed to do. I have had wonderful and well-intentioned doctors tell me to watch it, to Gamma Knife it and to do surgery. I have also had doctors say do gamma or surgery, but don't watch it as even minimal growth will affect what can be done and likely success. I can handle my tumor (some hearing left, some dizziness), but can't handle these conflicting opinions. Sorry just venting. I'm taking a benadryl and going to sleep. Maybe tomorrow will be a better day....
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suelay: I think in the end (if you're in a position to make choices) you can only do what feels right to you. Just think about what you want to do or not do. I myself didn't have choices the first time around and had surgery and always said if I got another tumor I wouldn't go through it again and would go to the US for gammaknife (if it were an option) and in the end I ended up having surgery to remove my regrowth even though gamma in now in Toronto and was an option for me.....when it came right down to it I wanted to stick to "what I know".
Kathleen
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Yes- I agree, how a number of AN surgeons/radio types have not been
murdered in their own surgeries is beyond my comprehension
I think we have to understand they tend to stick to what they
know - specialists in one field
(I met one half-wit who was offering advice - I was her first NF2
patient....the consultation lasted about 90 secs)
While actual "knife" surgery and radio surgery are quite different disciplines
with different training paths - there is some rivalry here.
Even resentment ? unreal...
Its often worth finding someone who does both - tends to give a more
ballanced view.
Finally its worth noting that no-one really knows the future
- they can give a probable outcome - an average of past
experiances in similar situations
I understand some people need/want certanty
but its not always that clear
and yes - take a week off from it all
you will feel better
Best regards
Tony