ANA Discussion Forum

Watch and Wait => For those in the 'watch and wait' status => Topic started by: G_Man on May 24, 2013, 05:00:16 pm

Title: Another year and another diagnosis of Watch and Wait.
Post by: G_Man on May 24, 2013, 05:00:16 pm

Hello fellow ANers.  I just wanted to post about my test results from my MRI on April 29th.  My tumor still remains the same size.  I have experienced more motion issues (slightly) and some bouts of tinnitus that weren't fun.  When I asked my doctor, "Will the motion issues every stop?"  His response was, "There are only two ways the balance issues will stop.  1. if the tumor grows and crushes the nerve or 2 if the nerve just dies."  He pointed out that most likely it would be the first one so being dizzy for the rest of my life is actually a GOOD THING.  My hearing test showed a little more loss in the lower end of the hearing spectrum.  Since my loss is already 55db and it's been that way for years I have concluded that surgery isn’t going to save my hearing so I watch and I wait and I hope to die at 99 with this little dark passenger in my brain.
G_Man

Title: Re: Another year and another diagnosis of Watch and Wait.
Post by: Sheryl on May 24, 2013, 06:30:45 pm

Sounds like good news!!  Hope you can continue W&W - I'm on year #11-1/2 - November will be 12 years. 
Sheryl

Title: Re: Another year and another diagnosis of Watch and Wait.
Post by: G_Man on May 24, 2013, 06:51:18 pm

Thanks - I hope to be one of those long timers like you.  I'm only 50 so there's lots of time for growth if I live long enough.  Thanks for the positive thoughts.
G_Man

Title: Re: Another year and another diagnosis of Watch and Wait.
Post by: Jim Scott on May 25, 2013, 01:26:12 pm

Glen ~

Congratulations on your latest MRI results.

Observation ('watch-and-wait') can be a bit stressful but I'm pleased to learn that your AN remains 'stable' (aka not growing)  Sure, it might grow some day but I'd worry about it if and when that happens, not before.  Although, having a good idea (as you do) of how you'd proceed if it starts growing is prudent.  Let's hope your AN decides to remain dormant for the next, say, 50 years or so.  :)

Jim

Title: Re: Another year and another diagnosis of Watch and Wait.
Post by: G_Man on May 25, 2013, 07:38:53 pm

Thanks Jim for your kind words.
I have complete confidence in my surgeon who is probably one of the best on earth.  I think a lot of making the decision is understanding that there is really no good decision {meaning: you aren't going to walk away from an Acoustic Neuroma diagnosis clean}.  You have to accept your situation, choose your caregivers wisely, have faith and be prepared for the outcome.  I hope I never get to that point.
I'm also lucky enough to be part of a great local support group.
Anyone reading this who doesn't participate in a support group is missing out on a great resource.
G_Man

Title: Re: Another year and another diagnosis of Watch and Wait.
Post by: Mickey on May 25, 2013, 08:32:09 pm

Hi G Man! I`m hoping to make the next NYC meeting and see you there. Glad to here you last MRI came back stable. W+W can have its stresses but while where W+W we got to be pro active in our efforts to keep it in check. (W+W Brigade). So far so good for me 6 years now, MRI coming soon. Best wishes, Mickey

Title: Re: Another year and another diagnosis of Watch and Wait.
Post by: G_Man on May 25, 2013, 08:46:02 pm

Mickey - I look forward to seeing you.  Your my inspiration man.  I'm bringin' cupcakes so you better be there.   I missed the last one, forst time 4 that.
G_Man

Title: Re: Another year and another diagnosis of Watch and Wait.
Post by: Mickey on May 27, 2013, 07:55:16 pm

See ya there G Man! Mickey