ANA Discussion Forum
Archive => Archives => Topic started by: antoinette on August 31, 2006, 06:31:05 am
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My 15 years plus tinnitus has faded to nothing a few times. It is the strangest feeling to suddenly taste silence. Oddly it felt like I was missing something but not the tinnitus. It almost gave me some anguish, then I turn on the tube for company and the sound was clearer. This is when I noticed the absence of tinnitus. So, it had already lasted a few minutes. I listened to everything, I went outside and listened. And it started to ooze back in, progressively. It took about 6 minutes to be back to a normal volume the silence lasted also 6 to 8 minutes.
This has happened now four times. Once, it vanished for so long, I believe I was rid of it. Twice it came back so weakened that it was like no tinnitus for most of the day. Once it was while driving on a highway. I had to stop the car, it was so weird. When the tinnitus is back, it has some variance, and after a while a deep, warm sound like a boat call in the fog with a far away echo, but this last only for a few seconds.
I tried to understand what did bring this. Like anyone here, I would love to “miss� my tinnitus for good. The only thing I am sure affect it positively is supplements, especially vitamins B. But glucosamine could be helping too. The fact that I always take one of these with calcium at bed time to help sleep make the tinnitus a lot softer in the morning. Coffee brings it right back with a vengeance.
I am inviting you to pay some attention to the effect supplements have on your tinnitus. And please, could you add your observations to mine?
Thanks,
antoinette
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coffee does the same thing to me, it increases my tinnitus to crazy loud, no more caffeine for me.
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I was told by my ent to avoid all caffiene.
I don't take any supplements but after hearing your story I think I might try some to see what happens! Even a few minutes relief sounds like a blessing!
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My ENT actually yelled at me when I told her I averaged 10 cups of coffee a day ! ;D
I dont really notice a difference in my "T" when I stop the coffee .. so I continue to be a heavy coffee drinker and my "T" just roars on, I've had it for years, so I kinda used to it .. If I could stop it, I would LOVE to hear silence again.. I even visit a tinnitus forum once in a blue moon .. and they don't have any "real" help .. just a lot of complaining about it...
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my T did quite down a little in the few days after surgery ;D ... I assume because of the morphine! .. and stayed low until I returned to work (even with coffee!)... and immediately jumped back up to where it was before surgery >:( .. I assume because of a blood pressure jump up also ... I take a multi vitamin .. nothing fancy .. anyway, I think it the BP more than anything, not the caffeine itself .. but anything the raises the Blood Pressure
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Aaah, the tinnitus - was there really ever a time when i didn't hear it. Oh how loud it gets when I get tired or walk into a noisy room. It's so overpowering, it's unbelievable. Are we any closer to understanding it or improving it? Anyone??
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The first thing the Headache Wizard told me to do for myself was to rid myself of all caffeine, esp when he noticed the "head noise" on my list of grievances (symptoms) That includes soft drinks and now I just have diet root beer, (which has no phosphoric acid either) I also take a multi-vit, glucosamine/condroitin, calcium, a liver de-toxer (for the dreaded Neurontin) and Sam-e, which I don't know too much about, cept it supposedly improves mood. I had to quit with the happy pills cuz of the reaction with Imitrex, which I shoot up 2-3-4 times a week for cluster headaches (thanks AN). I haven't paid too much attention to my T lately as I generally drown the treefrogs out with music, TV or a fan, which Dr. Love wanted me to clean to make it "quieter"--NO I said--I like it noisy. I'll pay more attention and get back to ya! Nice to hear from you Antoinette--I remember you from the old listserve when I was diagnosed!
Capt Deb 8)
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ACT IV
[ The Lair of Crazycat]
Enter Crazycat.
Gawd.....
Life without coffee!? I cannot conceive of such a thing. Gadzooks!!!!!
Incidentally, I have read several times that the mineral / supplement "Manganese" is supposed to help in the allaying of tinnitus. I bought a bottle of the stuff six years ago but never opened it because I hate taking pills of any kind. "Double, bubble, toil and trouble;
Fire burn and caldron bubble"."Fair is foul and foul is fair. Hover through the fog and filthy air".
Research it on Google to be sure.
To Captn' Deb: I'll send you a more detailed message regarding our Florida trip soon. "By the pricking of my thumbs, Something wicked
this way comes". (Had to put those in there......I love "Shapesphear") ;D .....Paul
Exeunt
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Wow...time with no tinnitus??? What would that be like? I was almost envious until I thought that actually might send me straight to the duldrums if I knew what it was like to have silence. I don't know....or are you excited because this may be a sign it might go away? I have not done much experimenting on lessening it, but am interested in comments....It's always there, but I almost never notice it unless it gets mentioned.
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Which Viatamin B did you use?
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Hi again, I take 3 tablets with breakfast. One B-50 which is B-complex, one One-a-day Centrum and one glucosamine 900 with chondroitine "extra-strength", because if I miss that glucosamine, I can't walk the next day.
Not having pain in the hip has relieved the pain from the adrenal tumor, right kidney, and it does a lot of good to my neck too.
I often have another weaker glucosamine at night with a calcium pill. But I found the calcium liquid from Costco works much better. my nails tell me right away. Right now my nail can bend and are very short from breaking lately. With the liquid calcium, my nail become like permanent features, able to stab, cut and peel even potatoes. Down side, I can't clean my nose with my fingers then. Now, it's OK
It is 4 time the price though. I'llmcheck where they make it
antoinette :-)
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Thanks. Got a B-50 tablets today at Trader Joes. I am anxious to see if this will really help me. If it does, I may have to kiss ya on the lips!! :-* ;D ;D ;D
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Sorry, my week for girl was last week.
But I eat sensibly too. Veggies, very little protein, and, frankly, everything is alright in moderation, and mix a lot of small different things at each meals. I am careful with vino, half a beer makes me feel like a teddy bear, exceptionally rarely, anything goes. I even had a full large onion saute in a frying pan the other day, which is something I had not touch for years. It passed fine and tasted great. But it was a very good sweet one, not cheap. they know what they are selling, they price it accordingly.
antoinette
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Sounds like the Road Trip is going ta have ta change his way of eating...I don't drink coffee, but I don't think I can live without a McDonald's Diet Coke (I think they put some addictive element like REAL COKE! in them). B-50 vitamins sounds interesting...my DW (Dear Wife) Carol has started me using Glyco-nutrients. I don't know much about them, like any good husband I just do as I told, (as I get more information I'll pass it along), but she thinks it may make me feel better (I don't know what she wants? If I felt any better than I do now, I'd be rich and sailing the Carib' with Capt'n Deb as Skipper and Jimmy Buffet as first mate).
Seriously, I'd try about anything to achieve true silence...thanks for the info.
RTD
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I'm a diabetic, so I have to eat sensibly. I try to have a variety of foods...I love veggies and fruit and we eat little beef, but I do need the protein from fish or chicken. I've gotten Buffalo (Bison) and that makes great chili or hamburgers. Much lower in fat and higher in protein than beef. Just got a great, big, heavy cookbook from Costco. "Eating Light" with about 500 recipes that are fairly healthy as far as the main dishes go. It's beautiful!! And it has the added benefit of strengthening my arms as I lift the darn thing. I took the Vit B and I'm going "no caffeine" today to see if I notice a difference in my tinnitus. Thanks again for the tip.
Ok, I'll just give you a hug, okay?? ;)
Sue
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Hi
I feel very lucky to have very little tinnitus!!! However, I believe it is the Niacin, which is a B vitamin that helps with tinnitus. I believe House Ear has a Niacin protocol for tinnitus? I read something about it while sitting in the treatment room one day????
Hope this helps someone.
Take care
Cheryl
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Day 2 of B vitamins for me. If I am going to notice a difference in the volume of my constant companion, what is anyones guess for seeing improvement? A week, month? Kathy
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I have slight tinnitus in my right ear - the side that the tumor is on. Ironically it is NOT an acoustic neuroma (8th cranial nerve) as mine is on the 9th cranial nerve and should affect my swallowing (my weight can attest to no problem with that), gag reflex, and hoarseness. The tinnitus is liveable but my husband has it in both ears and it is extreme. He has tried everything and, in fact, is on large quantities of Niacin for cholesterol. The only thing that helped was when he was fitted for hearing aids last April. They were the type that had to be molded and then fit completely in the canal. He said it was remarkable. Unfortunately he had many other problems that that type of aid and has since been switched to a different type that does not mask his tinnitus as well.
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Thank you Sheryl.
I do not have much time to search the Net and rarely can get to a computer, even my own.
I suppose it may mention the benefits of B-complex, but usually it is to sell their own assortment of pills. And I do not trust Net vending for some reasons. if you think we are not being cheated, let me know.
antoinette
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Hi kathy,
Hi, I can't tell how long it took as i am not consistent in my supplement taking, even my only beta blocker is hard to remember each day and I don't think it has ever been taken at the same time of each day as recommended.
I started to take a bit of B-50 last year in the summer after a bout of depression. Anti-depressants make me sick, spaced-out and dizzier than I can cope with.
An old health food store manager told me about the B-complex and B-50. It worked very fast on the depression, In about 5 days I was back to normal. So I stopped the B-50.
I took some each times i felt down or tired, it may be good for it but it is only this summer that I decided to put myself back in shape and i bought the one-a-day and the glucosamine is truly a miracle for me. Without IT I can't walk, move, sit and get-up. I might just as well stop living. I hope i will avoid the dreadful hip surgery. Most people are happy with it, but a few are not and when this happened it is "Good-bye, joy of living".
Count on 2 or 3 months at the most, although I hear the difference in a couple of days, when i stop, and when I resume taking the tablets.
antoinette
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Antoinette:
Thanks for the info on the vit. B -
What is wrong with your hips if I might ask? I had both of mine replaced Aug. and Oct. of '04 - I feel like 20 again and I am 52.
Kathy
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Hi Sue,
I wanted to experiment completely. my Tinnitus was already high 3 days ago after stoping all the goodies. I meant to take them at night to test if it makes a difference.
instead, I deprived myself a few days longer. Could you hear my tinnitus from where you are? Where are you anyway?
So today I took the vitamins and glucosamine but changed the calcium for something much stronger. I always needed calcium, all my life and neglected it! This time I may go overboard, But.. surprise the tinnitus has gone a tiny bit down. i didn't sleep more than 2 hours last night it was so loud. And I had cramps in my legs, I felt cold. Lets see what happen to night and tomorrow.
The calcium I take comes from Costco too, as "caramel candies". Really loaded!
It was a gorgeous day to day again and i did a bit of yard cleaning. I will force myself to do more to morrow. I will miss it soon.
Thanks for the hug, and a big one from me too.
antoinette
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I am on my 3rd day of no caffeine. I am doing this for other health issues, but if it lessens the intense noise in my head, all the better.
I am a huge diet coke, tea and chocolate addict. I can't believe the withdrawls I am going through, I am having horrible headaches, my energy level is at zero and my muscles ache. Amazing how caffeine affects the body.
I will take your advice and add B vitamins, let's hope the bell ringers in my head quiet down.
Thanks Antoinette!!
cheryl
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Cheryl,
Keep us posted on how you feel. How long it takes you to detox off caffine. I tried to about a month ago, after the 4the day, I had to have my excederine (has caffine) and some coffee. I have it down to one large cup a day instead of 3 and I don't do cokes , tea, and chocolae only occassionally. I do feel I need to get off the caffine to see if it helps the tinnitus and headaches so I will be anxious to hear how it goes for you. The caffine does not seem to increase the intensity of the tinnitus though.
Good Luck
Patti UT
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Hi
Taking the Vitamin B50 but haven't noticed any difference in the noise level. Actually thought it was louder yesterday and this morning. But, I will continue with the B anyway, because it's supposed to be good for nerves, so maybe it'll help with something besides the noise level. I keep anticipating my symptoms to get worse since my AN might get bigger from the GK before it gets smaller again. So, it's kind of like I'm waiting for the other shoe to fall. And maybe it won't ever do that. Who knows. This is a strange thing, I tell ya...strange indeed.
:P
Sue in Vancouver
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You're taking the wrong stuff. "Manganese" is the supplement you should try. It supposedly reduces tinnitus. Look it up on the net.
Paul