ANA Discussion Forum
Treatment Options => Radiation / Radiosurgery => Topic started by: novagirl on May 06, 2013, 08:03:34 pm
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Hello my fellow ANers!
Just as a reminder I had CK at Stanford in October 2012. Had my follow up MRI and audio gram in April. The results: perfect hearing and a necrotic center noted by the doctors. No real issues, other than the usual occasional ringing, facial tingling or dizziness (the last one is extremely rare). Dr Chang is very happy with the results, as am I. So glad I made this choice. My advice to all considering their options: Follow your gut feeling. I quickly knew that CK felt right for me even though I did spend three years in W&W. You will know what is right for you also.
Blessings to all.
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Great news. I hope my results are noted that quickly down the road....
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Novagirl ~
Your CK results are outstanding and will serve as an encouragement to those considering this treatment. Congratulations!
Jim
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Novagirl, thanks for sharing your update.
I'm working my way toward having CK, hopefully soon, and I'm hoping for the best of all possible outcomes.
Glad to hear you're doing well. :)
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It is encouraging to see someone 6 mo. out with positive things to say. I am less than a month out and miserable.
I had my CK treatment in three sessions, last one was April 22.
I was given Decadron 4 pill per day. on the first day of the treatments.....did a pretty fast taper (on 1/4 pill per day now, almost done with taper), because I experienced major muscle loss, a sugar spike, confusion and psychosis while on it, so we (Dr's, at my insistence as well) have decided I have to get off this drug to try to preserve my muscles in my knees/legs and also some sanity.
I am now beginning to have headache, tenseness in temples, ringing, teeth kind of feeling weird....head feels like heavy. Smiling feels weird.
I am afraid of the fact that going off the steroids will make all of these new symptoms my new problems. Feeling like I have to choose between muscle wasting and insanity and insomnia OR facial twitching, teeth pain, headache, and who knows what else. Feels really early to have all of these complications. I see a lot of posts about surgery and facial issues and pain, but not much for CK.....so do I need to back on Decadron and be crazy and not use my legs?? I am just scared of these two options. Any help? Hope?