ANA Discussion Forum

General Category => AN Issues => Topic started by: jh6 on April 28, 2013, 06:37:04 pm

Title: Clinical Trials
Post by: jh6 on April 28, 2013, 06:37:04 pm

I have been exploring clinical trials involving the injection of cancer drugs into the tumor.  Has anyone had experience with this?  Also, one hospital replied to my email and told me I'd need to pay $500 just to apply.  Is this normal?

Title: Re: Clinical Trials
Post by: Kathleen_Mc on April 30, 2013, 03:10:03 am

But Acoustic Neuroma's aren't cancer so why go through the side effects of such drugs? One wonders, would you really consider doing this?
Kathleen

Title: Re: Clinical Trials
Post by: nftwoed on April 30, 2013, 07:59:19 am

Hello;
   I've never heard of this for those with a single AN.  Those with NF-2 have been tried on oral doses of anti-cancer meds; E.G. 'Avastin'.  It was found to shrink ANs and improve hearing in many but is expensive, has side effects in some, and one would need to stay on the med indefinitely.
   Researchers are gaining! I really look forward to prevention more excitedly than Tx.