ANA Discussion Forum

AN Community => AN Community => Topic started by: msuscottie on August 25, 2006, 09:32:53 am

Title: Please Help ...
Post by: msuscottie on August 25, 2006, 09:32:53 am
Hi All,

When I was diagnosed with my AN I found this forum and all of the great people here and it really helped me through my ordeal. I know I'm not the only one that depended on this forum through surgery and now through recovery. I have some friends that are facing other medical issues and there is no such forum for them out there. They are really in the dark and feel alone. Anyway, a few months back I started thinking about ways that I could help others the way you've all helped me. I want to start something that really counts and matters and helps those who need the help.

So .. over the last few months I have been working on a new web site that will give patients an opportunity to connect with one and other the way we've all connected here. We're lucky to have this forum, but not everyone does. I've set up a page that is similar to My Space or Frappr where you can keep track of your friends, update your condition, add photos, blogs, share your story or just lend support to others. I've worked really hard on this and put some money into it so I really hope people use it. I'll probably never recoup the costs, but if people use it, it will be well worth it.

Anyway, You are the first people I'm telling about this site and I'd really appreciate it if, at the very least, you could go in and set up a profile. It won't take more than a few minutes and I think this could turn out to be a really great thing. Please check it out and pass the word on if you like what you see. The website is: www.patient-network.com (http://www.patient-network.com).

Thanks so much everyone, I really appreciate your support.
Title: Re: Help an AN brother Out?
Post by: Battyp on August 25, 2006, 09:41:44 am
Scottie I will do this under one condition!  You keep posting baby pictures of addison!  :o)

I'd be happy to help you out. ;D

Title: Re: Help an AN brother Out?
Post by: msuscottie on August 25, 2006, 09:45:42 am
Thanks so much Batty ...

and for you Aunt Batty ...

http://msuscottie.com/images/June%202006%20019.jpg
Title: Re: Help an AN brother Out?
Post by: Battyp on August 25, 2006, 09:49:26 am
awww..how precious! 
Awesome website...I couldn't decide if I was a smurfette or a pimp  LOL 
Title: Re: Help an AN brother Out?
Post by: msuscottie on August 25, 2006, 09:50:54 am
LoL, thanks for registering ... I think if our little AN community to jump start that site, it could be extremely helpful for a lot of people.
Title: Re: Help an AN brother Out?
Post by: msuscottie on August 25, 2006, 09:59:41 am
By the way, you're definitley a smurfette  =)
Title: Re: Help an AN brother Out?
Post by: Battyp on August 25, 2006, 10:00:45 am
Thanks!  But a smurfette is blue and I wanna be pink!
You should really list pirate or scalaway on your list  LOL
I'll be back to check it out further when I get back from class.

Title: Re: Help an AN brother Out?
Post by: msuscottie on August 25, 2006, 10:01:45 am
I'll see if I can add pirate to the list   :)
Title: Re: Help an AN brother Out?
Post by: msuscottie on August 25, 2006, 10:10:23 am
Ok Batty, I added "Pirate" on there just for you! That should get Captain Deb in too   :)
Title: Re: Please Help ...
Post by: Battyp on August 25, 2006, 01:37:03 pm
You know....I just got an email from an acquaintance of mine looking for a web site to help her friend who has cancer and it's not hopeful for.  She knows I've been doing an online support group and how much it's helped me...coincidence or what?  I'll be passing on your link!
Title: Re: Please Help ...
Post by: msuscottie on August 25, 2006, 01:41:57 pm
Great, this is exactly the kind of person I'd like to help. Right now it's all about building up a membership base. With a free site, I hope that's not too hard. Thanks for the referral!

and for you ...

(http://www.patient-network.com/gallery/I/2005/01/01/8.jpg)
Title: Re: Please Help ...
Post by: Captain Deb on August 25, 2006, 05:03:23 pm
Well, Scottie, I'm on but where are the pirates. Batty said there were pirates!
 Third Cutest Baby I ever saw!! (My grands gotta come first!)
Capt Deb
Title: Re: Please Help ...
Post by: msuscottie on August 26, 2006, 05:18:27 am
When you set up your profile, under "occupation," "Pirate" is listed. Just you you all   :)

The Pirates will all come once the Captain is on board!
Title: Re: Please Help ...
Post by: msuscottie on August 26, 2006, 09:38:59 am
Thanks to everyone who has visited the site, I really appreciate it. I already had a local newspaper call for s story about the site!
Title: Re: Please Help ...
Post by: nannettesea on August 26, 2006, 05:58:31 pm
Looks great, Scott--good job!  I don't have a digital camera for pics, but think it's a well-thought-out site...
Nan
Title: Re: Please Help ...
Post by: msuscottie on August 26, 2006, 09:12:37 pm
Thanks Nan
Title: Re: Please Help ...
Post by: FlyersFan68 on October 18, 2006, 09:58:28 am
Great Site ! I just signed up.    www.patient-network.com/msuscottie 
Title: Re: Please Help ...
Post by: msuscottie on October 18, 2006, 10:01:40 am
Thanks man I appreciate it. It took some work to get up, but now we have close to 90 members and it's really taking off. Thanks again to all who have joined and and for those who haven't, let's go! It's free!

www.patient-network.com (http://www.patient-network.com)
Title: Re: Please Help ...
Post by: FlyersFan68 on November 14, 2006, 11:53:22 am
I've noticed the increase.....It's Sorta like MYSpace but has a more meaningful purpose.