ANA Discussion Forum

Post-Treatment => Facial Issues => Topic started by: Roblangford on January 17, 2013, 03:41:24 am

Title: Face and neck spasm
Post by: Roblangford on January 17, 2013, 03:41:24 am

I had 80% of tumor removed 4 years ago. Then I had radiation. Well past 4 months the spasms have started and are getting worse. Eye down to my neck. I am taking neurontin and not working. Really getting depressed..... Any ideas of treatment or medicines??  ???

Thanks

Title: Re: Face and neck spasm
Post by: ginsue on January 24, 2013, 11:16:24 pm

Hey glad to meet you Rob
I hope that I'm not the only one that you hear from because I don't have the best answer. My tumor was removed 21 years ago and I have always had muscle spasms in my neck on the AN side.  It does not effect my life in any way so I have just gotten use to it. It does get worse at times but it has also gotten better.  Keep your spirits up!   Sue

Title: Re: Face and neck spasm
Post by: chloes mema on January 30, 2013, 11:11:25 am

Rob

I also have facial spasms and they're going down my neck and out to my shoulder.  My PCP said they're not life threatening, just annoying (so I guess basically I'm suppose to get over it).   ;D

I have come to terms with the spasms since no drugs have helped me and now when I have one while speaking to someone I just saw excuse me while I have a spasm.

Hopefully for all of us that have spasms some day they will stop just as suddenly as they started.

Good luck

Karen  

Title: Re: Face and neck spasm
Post by: Brewers7 on January 30, 2013, 12:26:40 pm

Have you tried Botox?  I have "twitching" and it has helped me.

Title: Re: Face and neck spasm
Post by: Roblangford on January 31, 2013, 03:22:46 am

Not yet. The doctor started me on clonazapam yesterday. Neurontin was not helping. Botox is next option I guess......