ANA Discussion Forum
Post-Treatment => Facial Issues => Topic started by: AnthonyNJ on December 22, 2012, 12:51:59 am
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Any advice on a cross nerve graft using Sural leg nerve? I'm 41 and 8 months with no movement from a 4 cm pain in the butt AN removed 4/23. I was told nerve intact but very stretched/comprised during surgery. Don't want to do another surgery if it's coming back but also don't want to wait too long and miss any opportunities? Any advice here? Also going to see Dr BoAhene at John Hopkins in Baltimore anyone use him or dr Byrne? Thanks in advance for any advice! nervous in NJ!
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Just used Dr. Byrne on the 18th for an outpaitient procedure/ 5th nerve transfer to 7th. Won't know results for 6 months but satisfied with doctor.
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Kay (Forum name Kaybo) went to Dr. Bryne and had very good results.
Jan
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Hi Anthony: I went to Dr. Patrick Byrne @ Johns Hopkins for the T3 (Temporalis Tendon Transfer). He is amazing. I have permanent facial paralysis & was not looking for any grafting, just looking for symmetry.
He will evaluate and let you know what you need. I highly recommend him.
Best wishes, always good thoughts, Nancy
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My husband suffered significant damage to his facial nerve when his 3+cm AN was removed. At 9 months out there was no change and his surgeon suggested facial reanimation surgery. Ken wouldn't consider another surgery after a very difficult recovery from the first one.
Here on the boards, we read about Jackie Diels, the facial retraining therapist, based at the University of Wisconsin Medical Center and got in touch with her. She was able to detect the slightest indication that the facial nerve was healing and felt that Ken would benefit from facial retraining therapy. And he has!!! His face has improved tremendously. If you were to meet him, you might notice a slight asymmetry, but nothing that would indicate he had grade 4 facial paralysis after surgery.
If your nerve is intact, I urge you to get in touch with Jackie Diels in addition to exploring surgical reanimation options.
Miranda