ANA Discussion Forum

Post-Treatment => Post-Treatment => Topic started by: mikeGE on May 07, 2012, 06:33:20 pm

Title: 1st post CK follow up
Post by: mikeGE on May 07, 2012, 06:33:20 pm

I just had my 6 month post-CK follow up which included MRI and hearing test. My tumor (kids named "Ike") appears to be dying and my hearing is pretty much unchanged. Great news, even though hearing in my right ear is not very useful and I have tinnitus 24-7. But this was the case prior to CK treatments. Overall, I feel great. My AN has not really slowed me down and neither have the CK treatments. My Next follow up will be in October...

Title: Re: 1st post CK follow up
Post by: ppearl214 on May 08, 2012, 04:52:26 am

Mike

Continued wellness wishes to you! Sounds like great news so far and hoping that all stays on target! :)

If it helps..... I was in your same shoes at 6 mos... and now... I am 6 YRS later... and for me, doing fine! :) 

Phy

Title: Re: 1st post CK follow up
Post by: chloes mema on May 08, 2012, 08:32:35 am

So glad to hear two positive stories!   :D

Karen  

Title: Re: 1st post CK follow up
Post by: mikeGE on May 08, 2012, 06:55:15 pm

Thanks for the kind words Phy!

Given my circumstances, I feel like I made the right choice with CK and it is always nice to hear about the long term successful outcomes of others.

Deciding on treatment type (surgery vs radiation) and when to do it can be agonizing.  It was the most difficult part for me. Looking back on the process I am just grateful that I actually had choice.

This forum has been, and continues to be, a very valuable resource with lots of kind people sharing their stories....I am very grateful for it!

Cheers,
Mike

Title: Re: 1st post CK follow up
Post by: Tumbleweed on May 08, 2012, 11:25:42 pm

Congrats, Mike! Dr. Chang was my doc, too. He is THE BEST!

Best wishes,
TW