ANA Discussion Forum

General Category => Inquiries => Topic started by: mindyandy on March 30, 2012, 06:24:12 am

Title: Eye & facial twitching
Post by: mindyandy on March 30, 2012, 06:24:12 am

I am 3 weeks post op & started to have under eye twitching and slightly on my cheek and lip. I emailed Dr. Schwartz and he said if I have facial weakness even slightly then call for a round of steroids. I think I will do that today. Its driving me crazy. Ugh.... I am feeling fine otherwise. Any others have this? Did it clear with steroids?

Thanks
Mindy

Title: Re: Eye & facial twitching
Post by: Dee-dee on June 24, 2012, 08:29:29 am

I have the same problem.  Opted against steroids for now.  Did yours clear up?  Thanks
D

Title: Re: Eye & facial twitching
Post by: kixit on June 24, 2012, 08:53:34 am

Mindyandy-

I had facial twitching early last week. It was a round the left side of my mouth and after a couple of days ventured up under my left cheek. It went away later in the week. I chalked it up to helaing and everything growing back (nerves) and the swelling going down. I am now 4 weeks post translab with still major balance issues.

Title: Re: Eye & facial twitching
Post by: LizAN on June 24, 2012, 01:35:33 pm

I had it a few weeks ago, and I'm still pre-op.  This is why I opted for surgery instead of radiation.  I want to decrease the pressure on my facial nerve and don't want to take a chance on the tumor swelling within the IAC.

kixit, I'm glad it has subsided for you.  A few weeks ago, I was thinking of asking for steroids, but the twitching has subsided on its own, at least for now.

Liz

Title: Re: Eye & facial twitching
Post by: mk on June 24, 2012, 02:09:38 pm

Hi Mindy,

my understanding is that twitching is very often related to nerve healing/regeneration. I have had a few occasional twitches for the first few months post-op, even though they weren't persistent and didn't last long. Some light massaging helped. Are you experiencing the onset of new facial weakness, or just the twitching?

Marianna

Title: Re: Eye & facial twitching
Post by: mindyandy on July 08, 2012, 04:44:31 am

MK
just twitching.

Title: Re: Eye & facial twitching
Post by: It is what it is on July 08, 2012, 08:55:31 am

As I read these posts, I am soooo glad those of you who have gone before stay on the list to provide information to those of us newly going through this process. Thank you!!!!!

Karen

Title: Re: Eye & facial twitching
Post by: JLR on July 10, 2012, 07:20:51 pm

Hi Mindy, I am 18 months post CK. I had that awful twitching.  Comes out of no where..Had it on my cheek  as well as my lower lip and most of all my right eye ( all on the AN side) it has slowly gone away but it does on occasion come back. I also get this fluttering..almost feel like a butterfly is passing over my face.. this happens a lot on my right facial hairline. That is most annoying as it feels like there is something on my face and of course I just look ridiculous trying to get this imaginary thing off my face...can't make this stuff up! But all in all I'm happy I choose CK..the AN is very slowly shrinking. After all we did have radiation and although it is targeted only to the tumor it is still radiation and all that "stuff" has to go somewhere..Stay well, Joan