ANA Discussion Forum
General Category => Inquiries => Topic started by: mindyandy on March 25, 2012, 04:40:54 pm
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For those who had Retro could you tell me where you feel or know the hole is? You know where they put the titanium plate? Behind the ear?
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Retrosigmoid is behind and below the ear. The site of my cranioplasty, the flexible titanium plate,
is about level with my right ear lobe. In my case there is a small indentation there and easy to find.
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Hmmmm you say indent & I feel like a hump where it is.
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Mine is close to 6 months old now, and I did not notice the indentation at first. I really did not notice the indentation until for some reason I felt both sides of head at the same time. The difference on the AN side was then obvious to me.
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Actually I didn't have the indentation at the beginning; I think it wasn't obvious because of the swelling. I felt it for the first time about 4 months post-op - it seems like it appeared almost overnight. Thinking about it now, it must have been that the swelling subsided, and the indentation became obvious. I am now almost one year post-op and I still have a "dent" behind my ear.
By the way, I don't have a titanium mesh - my neurosurgeon uses some kind of "bone cement" to glue in the bone that was removed during surgery. But it seems that no matter what the technique is, the indentation is very common.
Marianna
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MK I think it is swelling on the hole. Is yours located behind the ear? Mine is I think is located behind the top part of the earlobe. This is where I feel slight swelling.
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Mindy ~
As you know, I underwent the Retrosigmoid Approach AN debulking surgery in 2006. I have a slightly uneven 'lumpy' ridge above and around my (left) ear with a 'depression' just past the ear, toward the back of my head. It's not noticeable, even with my relatively short haircut and I don't think much about it, although I'm aware that its there. Just a little reminder that I had the surgery...as if I would ever forget.
Jim
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Mindy,
Jim did a very good job explaining about the "lumpy ridge" around the AN ear. That part felt swollen (and it still does, even though I think that oart if the reason is that the feeling is different there). The identation though is much lower, I would say at the level of the lower ear lobe. Certainly the two parts of the head feel different - I am sure nothing would show up though, and I have very thick hair to cover it. The scar, which was quite long has all but disappeared.
By the way, I must have missed that in one of your previous posts, but how long was your surgery? I guess since they didn't really mess with the nerves it wasn't as long as most retro surgeries are?
Marianna
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My surgery was 6 hours. He didn't touch the others nerves but he did take as much tumor off especially the trigeminal nerve. I believe he put Teflon in to for the trigeminal like they do MVD surgery. Thanks for telling me about your incision. This helps me since I don't know how it should feel.
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I just read Jim's post. Thanks Jim. Your description sounds right. I don't feel anything on the lower half. Maybe the indentation comes later after all is healed & swelling is gone. This is why I love coming here. All you guys are wonderful help. This AN journey is not a fun journey but im glad to have all of you here.
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My surgery was 6 hours. He didn't touch the others nerves but he did take as much tumor off especially the trigeminal nerve. I believe he put Teflon in to for the trigeminal like they do MVD surgery. Thanks for telling me about your incision. This helps me since I don't know how it should feel.
Mindy,
Can you explain more about the teflon for the trigeminal nerve? I asked Dr. Slattery about the use of teflon, and he said it was usually only used for brain stem implants.
Has anyone else had teflon used in their surgical procedures? I will be having translab soon, probably at HEI, but maybe in Houston.
Liz
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Wonderful description by Jim - sounds exactly like my surgery site except that my BAHA implant is directly on top of that area.
The "hole" where my AN was is packed with abdomenal fat plus I have titanium mesh, a plate (titanium ?), and titanium screws in that area - and the BAHA "rod" which is also titanium.
Guess I'm just a walking titanium mine! ;D
Jan
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I should have written, to be clear, that while I underwent a retrosigmoid approach with cranioplasty,
it was a minimally invasive one. The surgical transcript states a 5 cm curvilinear incision was made in the skin and then a 2.5 cm craniectomy starting from the asterion. The tumor removal was from cranial nerves #'s 5 - 11, the brain stem, and two arteries. The cranioplasty followed reapproximation of the dura and employed a micro-titanium plate. The surgery, as extensive as it was, took less than 3 hours. I was discharged (with a minor CSF leaf which resolved on its own in a few weeks) in 48 hours.
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I had retrosigmoid. The titanium plate is at the back of the skull base beside the left ear; same as Jim's description. Compared to the right side, it is uneven and feels like a chunk of the skull is missing. It doesn't bother me and you'd never know it's there.
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Are titanium plates used for translab?
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I came across an older thread (from 8/11) regarding the same topic. The responses on this thread may help answer your question:
http://www.anausa.org/smf/index.php?topic=15842.0
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Liz
I don't know if they use titanium plates for translab. I believe they do. At least I think House does. I had Teflon used during my AN surgery because my surgery & situation is different from others here. I will give a brief history.
Back in 2007 I discovered I have an AN approx 1.4cm
Jan 2008 I had CK done
Nov. 2011 started to have some trigeminal nerve pain. Sent my MRI's to different people Dr. Friedman, Dr. Haines, & Dr. Medberry.
Dr. Medberry could not say for sure but looks a slight bit bigger. Dr. Friedman & Dr. Haines says no change but I was having pain.
Decided to have surgery at House with Dr. Friedman & Dr. Schwartz March 7th, 2012
Dr. Schwartz looked at my MRI & said no change but my AN was touching my TN. He says it has been for years looking at the past MRI's. Why did it just start causing pain???? Million dollar question.
Anyways we decided since there is no growth & my hearing is 100% that he would just go in and remove as much AN off the trigeminal nerve to alleviate my pain. I agreed. When they do decompression of the trigminal nerve they put Teflon in there. If you search trigeminal neuralgia surgery or microvascular decompression surgery you will see they do this.
I hope this helps. If you have questions let me know.
Mindy