ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: mindyandy on March 11, 2012, 06:12:35 pm
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Hey guys. I'm resting at Seton Hall. 4 days post op and so far so good. Taking it easy. I will give details later when I am able to focus my eyes more and etc. I want to say thank you to everybody for all your support. It really means alot to me to know that all the prayers were being said. My husband is wonderful and has been such an angel. I had Retro at House March 7th. I had Dr. Friedman and Schwartz. I cannot forget Dr. Stephan...all wonderful. I did not get all the tumor taken out. Dr. Schwartz and I sat down and talked. His opinion after looking at all the scans I had back in 2007 to present is that he did not think the tumor was growing. He believes that the tumor is on the trigeminal nerve (which it was) and that if he were to take the enitre tumor out since I had radiation is that I would loose my perfect hearing. He did not want me to loose this. He saw my audiology report and saw it was perfect. He said he does not believe the tumor was growing or that it will. It collapsed when he took the tumor off the trigeminal nerve so he is thinking I will no longer need any other treatment. I do still have to get scans just to be safe. Since the tumor was not big he isnt too worried. I valued this opinion and agreed to leave the hearing nerve alone.
So here I sit with a numb face and numb tongue but no longer have Trigeminal pain. YIPPEE. LOl
I am going to go now. I don't even know if I make sense. haha
Oh...I did met Archer, JanetD and Mr. Bill. All wonderful people. There was another lady here who had surgery the same day as me and is released back to her hotel today.
Mindy
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I've been thinking of you every day, good to see you on here. I'm glad everything went well and that you are recovering. Keep us posted on your progress.
Becky
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Mindy,
Good to see you posting again. Glad all went well for you. It was great meeting you at HEI and even better to hear you are doing so well.
Rich
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Mindy, so glad to see you posting again and to hear that it sounds like all went well with very good results. Keep healing and posting. Will still be praying for you.
Karen
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SO good to hear from you Mindy!! I am really glad things are going well for you there and you have this behind you!! Also, I am glad your sweet husband has been there for you. Take care!!
Windy
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Hi Mindy .....
So glad you are back at Seton and resting ..... and no more trigeminal pain!!! How wonderful is that??? Can't beat the Friedman/Schwartz/Stefan combo ..... they are terrific and treat each and every case on a very individual and personal level. So glad you went there.
Tell us more when you feel up to it.
Continuing thoughts and prayers!
Clarice
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Mindy,
Welcome to LA! So happy you are doing well. I've been away for a while, but you have been in my thoughts as I knew your surgery was scheduled for 3/7. All the best to you as you recuperate.
Rose
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Ah, Mindy!!!!!!!!!!!!!!!!!! Double good news! CK did the trick on the tumor (wasn't growing) and the surgery to help alleviate trigem pain and keep your hearing! Love this news! Take it easy, get some rest and know I'm sending MAJOR healing hugglez to you and Andy!
Feel better!!!!!!!!!!!!!!!!!
Phyl
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Awesome, Mindy! Take it easy and get ready to continue life without so much AN worry and pain :)
Cindy
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Great news Mindy, I am so glad you had such a wonderful outcome.
Don't worry about the eyes, I also had trouble focusing my eyes, but this resolved within a few days. My trigeminal numbness also resolved eventually post-surgery. It fluctuated initially for the first couple of months, but then it was gone completely. The trigeminal nerve is quite resilient.
Marianna
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Mindy,
I'm so glad to hear that you made it to the other side. I hope to be there someday! Keep us posted on your recovery when you're feeling up to it.
Lisa
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Hi, Mindy ~
Congratulations! What a splendid update on your AN surgery. I'm so pleased to learn that not only is your trigeminal pain now gone but that your hearing was preserved. Your experience is another demonstration as to why HEI retains such a good reputation. I'm glad you were able to take advantage of their fine surgical team. Now, rest and recover knowing that, along with your helpful husband, you also have a bunch of friends here supporting you as you get your life back to normal.
Jim
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Mindy - Wonderful news! Glad all is well. I look forward to hearing more about your recovery. Best wishes. ;D
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Should have seen me walk to the cafeteria this morning. Lol it was comical. My throat has been sore. Im assuming from being intubated. Not to sure why its sore almost 1 week later.
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Mindy .....
You are just joining the "Dizzy Dames" club! ;D Not unusual for your throat to be sore and it is most likely from the intubation. Mine was sore for a long time afterwards too.
So glad you are walking back and forth to the Cafeteria. When it was nice weather my husband and I walked outside, but after dark or raining, we were sure glad for the tunnel. Stitches out tomorrow??
Many thoughts.
Clarice
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Congrats, Mindy, on making it to the other side! I look forward to being in your position soon. Sounds like things are going well for you--hope to keep hearing good reports on your recovery. :)
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I am so happy to hear you are doing well. I had a sore throat for about 3 weeks--it is from being intubated. I ate all of my meals at the cafeteria at St Vincents. 2 days before I left CA, I walked to the Burger King with my husband. The food at the cafeteria was better:)
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Cindy,
I am so happy to hear your wonderful news. You are definitely one of our success stories. YAHOOO!
Ask for lots of ice cream and ice pops. That will help with the throat. It will go away in a day or two.
Hugs to you,
Mei Mei ;D
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Flight leaves at 6 am tomorrow yippee. Going home. Cannot wait to see my kids. I will then give details of my surgery.
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Cindy...sounds like you are doing just swimmingly well there! I bet you are glad to be home (should be by the time you read this!) Remember...just take it easy...listen to your body and DON'T overdo it!!
Jay
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So glad to hear you are doing well. Take it easy and tell your boys to take care of you!
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You are truly a success story with the surgeons at HEI cannot wait for you to share everything once you return home and settle in will be a inspiration to any Newbies out there even if they just send their reports to the doctors for a telephone consult they truly seem to care about people...
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Mindy,
I'm a newbie and just started to read your posts. Really glad to see you are doing well.
You are a great insparation!
Hope all continues well.
Craig