ANA Discussion Forum

Watch and Wait => For those in the 'watch and wait' status => Topic started by: chance1212 on March 02, 2012, 11:14:44 pm

Title: Watching and Waiting
Post by: chance1212 on March 02, 2012, 11:14:44 pm
I was diagnosed in July 2011 with a 6mm AN. I just went for my 6 month MRI. It grew 4mm. It's still pretty small and since surgery won't alleviate any of my current symptoms (with the exception of the balance issues), I am wondering whether to do another 6 month MRI before doing surgery. Hearing preservation is not an issue..I lost all my hearing within 3 months of being diagnosed. Any opinions on whether to wait at least until the next MRI to consider surgery?
Title: Re: Watching and Waiting
Post by: Jim Scott on March 03, 2012, 01:31:54 pm
That's fairly significant growth in 8 months.  However, if hearing isn't an issue and you believe that removal of the AN won't alleviate your symptoms (why not?) waiting another six months may not be too risky.  However, as tumor growth usually means complications, I would schedule my next MRI for three months, not six...but that's just me.  :)

Jim
Title: Re: Watching and Waiting
Post by: BeckyMax on March 04, 2012, 07:42:49 pm
Have you considered Cyberknife?.  My AN is about the same size and i am in wait and watch as well.  I expect if the time comes for treatment, that would be my first choice.

Becky
Title: Re: Watching and Waiting
Post by: chance1212 on March 10, 2012, 04:56:26 pm
The thinking behind not going with CyberKnife is that I have been told that I am a young AN patient..haha @ 50! I am a better candidate for surgery because statistically I will live at least 75 more years. If (very controversial) the Cybercafe does cause cancer years from now I will have that to deal with. I am thinking when I'm done watching this thing...I'm going to want it gone for good.
That is a good idea about the MRI @ 3 months. I am also going to send my stuff to House for review.
I must say this last visit with Vanderbilt went so much better than the initial one back in July 2011. I felt they took my symptoms or I should say, me, more seriously. They were much more helpful in making a decision's still left it up to me--but added more information to my growing collection. Thanks for the replies.
Title: Re: Watching and Waiting
Post by: james e on March 12, 2012, 02:17:10 pm
If you are 50 and plan on living another 75 years, I need to know what you eat, and do you work out? I got my AN out when I was 61, and I'm pretty sure I'm only good for another 30 or so...

James
Title: Re: Watching and Waiting
Post by: chance1212 on March 12, 2012, 09:13:19 pm
ha lol James. Just don't tell my 3rd graders about the blunder.
Title: Re: Watching and Waiting
Post by: chance1212 on March 13, 2012, 05:32:26 am
oh and btw, James, it must be the Gigi's cupcakes that I eat!
Title: Re: Watching and Waiting
Post by: james e on March 13, 2012, 12:20:09 pm
Darn! I thought you were on to some great health treatment. My Dad is 91, still dating, and takes his dates all over the world. I'll check to see if he is eating cupcakes!

James