ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: Goldie on February 24, 2012, 07:30:04 pm
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It's been quite a while since I've posted, but I wanted to share that I had my "2-yr" MRI recheck (actually 2 yr 5 mo) today and it was clear - no sign of tumor! Next recheck in 5 years. :D My tumor was stuck to my facial nerve at the time of surgery, and amazingly I was told by my neurosurgeon today that my face looks "normal" - what a nice word to hear. I told him I feel normal, but it's a new normal that I think is here to stay...things that I can live with. I've made it to the "other side" and am still so thankful for my surgeons and the support from friends, family, and this forum.
Denise D. from Minnesota
P.S. Love my BAHA!
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Great news, Denise. I am happy for you and doesn't seem like it's been that long since sat beside each other at lunch and guess that was Chicago. That was when you were worried about what to do,so this is really good news! Hope you've had as good a winter as we have not that far south of you.
Cheryl R
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Congrats Denise! ;D
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Denise~
Congratulations on this fantastically good news! :)
Jim
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Denise, your story is a good one to relate to for a patient with possible growth, post GK. I love reading posts like yours when you have had both treatments. I am so glad you are doing well. Thank you for sharing your good news!
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Thanks for all the good wishes.
Windy, I wish you all the best. I don't wish surgery for anybody, but it can turn out to be a good thing. I look forward to seeing your updates.
Denise
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Great news Denise,
I would suggest that you may want to have annual MRI's rather than wait 5 years.
Laz
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Excellent news, Denise!
And I'm so happy you love your BAHA ;D
I'm right there with ya!
Jan
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Congrats Denise!! That is truly good news!!!! Isn't it amazing how as time goes by this new normal doesn't seem so bad now? :) Laz...good advice on more MRI's for Denise, but I have seen all kinds of intervals for MRI's for everyone on here (search for a thread on this, this was asked a while back by someone...quite the wide array of responses)...I myself have had only two MRI's... one pre and one post...so I guess it just all depends on how the post scan looks, what the tumor was like, how much was left...any number of different factors can all go into the frequency of post surgery MRI's. So I guess unless you have any kind of weird symptoms pop up between now and then Denise...you can ask your doctor! Again...congrats and continue to enjoy your new "normal"! :)
Jay
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Thanks for your comments. Since I work where I get my care (Mayo), I know I can easily follow up with any concerns I have. And since there was absolutely no sign of anything on the MRI, I feel comfortable waiting the five years as long as nothing new comes up. Maybe recommendations for follow-up will change...seems like it does in every medical arena!
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You're right about the inconsistency of recommendations. It comes in waves of change. I just want to congratulate you on your good news. It's always wonderful to hear!
Mei Mei