ANA Discussion Forum
General Category => AN Issues => Topic started by: worrywart on August 04, 2011, 04:32:34 pm
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We finally had the appt with the nuerosurgeon, and I'm more confused than before. She said he has a small spot on his 7th nerve, not sure what it is, not causing any of his symptoms other than his face being partly paralyzed, and that they aren't going to do anything about it other than keep an eye on it. We did look at the MRI and it said it was 1cm, which I guess is fairly small. She didn't give us any information at all, and I am uncomfortable with her saying it isn't causing the dizziness, hearing trouble, headaches, problem focusing that eye, and problems talking and remembering. That is why he had the MRI in the first place and if this isn't the issue I think they could have told us that a month ago so we could figure out what was causing it. I don't get it. I'm not even sure if we should be happy or more worried at this point.
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Go for a second opinion...and a thrid if necessary
JO
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see another doctor. You can send his MRI to House Ear and they will look at it for free and call you
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I think you're right, we do need a second opinion. Where is House Ear? We are in NE PA and it would be great if we could find something sort of close.
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House Ear is in LA...but you can still get a consult with them and then take it from there...In my experience, one has to be their own advocate....when I noticed my hearing loss, and some balance issues, my doc sent me to an ENT closeby, He told me my hearing loss was due to old age..( 47 at the time). Told me to get hearing aids....I knew something wasnt right, so I went for a second opinion and voila, mr booger was discovered...The second ENT wanted me to W&W, but after some research, I told him I wanted it out and he said no problem.
JO
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Go see any of these doctors: Sisti, Golfinos, Post, or Selesnik in New York right away. get checked for Lyme disease also. Knew someone whose symptoms mimicked all of these who had Lyme disease.
Good luck
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Dr. Thomas Roland at NYU is also highly recommended
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As others have mentioned, lots of great docs in/near NYC.
Roland & Golfinos, Sisti, Selesnick, all come highly recommended.
Good luck!
Jan
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Well, I got copies of the mri and reports and he has an appt with the ENT dr next week. The first MRI says suspicious for vestibular schwannoma, and multiple tiny t2 signal foci which doesn't seem to mean much. The second (with contrast) says suspicious for 7th nerve schwannoma. I sent a copy down to MD and I figure we will wait and see what happens after his ENT appt.