ANA Discussion Forum
Treatment Options => Microsurgical Options => Topic started by: Lesliegc on July 27, 2011, 10:14:38 am
-
...at HEI. Took 3 hours, and I am fairly sure I have hearing on that side, but won't know to what extent until they unwrap the turban from my head tomorrow. Monday I don't really remember, surgery ended at 1 pm and then i was mostly sleeping. Tuesday was really hard...I just kept throwing up, and the anti-nausea meds seemed to make it worse. By end of day we seemed to have a working cocktail for the pain and nausea, so today I'm a lot better, and even ate some oatmeal! The dizzinesss is extreme. I've only gotten up thus far to use the bathroom, and I had to hold onto someone the whole time, but today the PT will have me walking in the hallway. Doctors were great, nursing staff excellent, and all in all I think it went very well, though I won't know for awhile the story on the dizziness. I'm very grateful to this forum for being a source of caring support, information, and stories. Will update periodically as I improve.
-
WOW! This is wonderful. How well I remember the kind PTs and OTs who walked me down the hallways of St. Vincent's. Sounds like you are doing great. So glad the nausea is most likely behind you now ..... never to return! The more you get up and go walk, the faster the dizziness will go away ...... but, be sure to listen to your body and rest between walks.
Prayers .....
Clarice
-
Hi, 'Postie' Leslie ~
Congratulations on what appears to be a very successful AN removal surgery! I hope your hearing was preserved and I'm sure your equilibrium will improve with each day - and lots of walking. We'll be looking for further updates as you're able.
Jim
-
Congrats on your successful surgery! I just got my surgery date this morning. Thanks for posting. I am trying to read as much as possible on this site to help prepare myself. I hope you have a speedy recovery! :)
-
Hi Leslie,
So happy to hear you are doing well! It gets easier as the days go by. Lots of good advice has already been given. Walking is "key" for your dizziness, it will definitely help. Keep us posted and stay positive! Ann
-
thanks, everyone. My hubby left last night to catch the red eye to Boston, and my mom doesn't arrive until noon or so, and I've been awake since midnight myself--I think it must be the steroids. So, things aren't great at the moment. But, the surgery did go well, and I have about the same hearing, a little bit of a crooked smile that will likely go back to normal, plus I got my funky turban removed yesterday, so at least I have an awesome scar to show for my troubles.Started walking yesterday in the hallway, with the assistance of a PT and a leash. Wow, talk about humbling. In my regular life I love to hike big, challenging mountains. I just have to remember this will take time, so I don't get discouraged. For anyone coming out here to do this surgery, they really are so completely competent, and the nurses are the best, esp my wonderful life saving ICU nurse. I had a very strong reaction to anesthesia and couldn't stop throwing up, and she just stayed with me, holding the bucket and swithing it out for a clean one when I needed. I mean, for about 8 hours straight. And, this was with some extra anti-nausea drugs they gave me ahead of time. God knows what it would have been like without! Definitely tell them if you tend to nausea with anesthesia drugs. The only other weird thing is that I have extrememly low blood pressure and resting heart rate. So, during surgery and since, I periodically set off all kinds of alarms because they aren't used to that. Then the doc has to explain to the nurses (who change every shift) that it's just a healthy athletic heart, not me being in danger. OK I think I've used up my quota of looking at words, so I will sign off. Thank you so much for being available at this forum. If anyone wants to read about my journey, i have a caringbridge.org site (just enter lesliecarleton under "visit". I'm more than happy to answer any questions and pay forward some of the kind support I have receieved from this site. God bless, Leslie
-
Leslie-
So glad things seem to be going well for you!! I know about that throwing up thing after being put under - NOT FUN!! this last surgery I had, I didn't get sick once - I they had to go in (& put me under & completely bring me out twice!) - couldn't believe it!! They can keep you from getting sick -IF YOU tell them & make a big enough deal about it first! Girl, I tell EVERYBODY that walks by that I might get sick, they better do something - I'd tell the janitor if he's there!! ;)
Keep listening to your body - it's OK to have a down day here & there!!
K ;D
-
Yay, Leslie! How great that you are doing so well!
I'm glad to hear the nausea is over; it's NO FUN! Strangely, I only threw up were when my surgeon came in to visit! Luckily, he's very good at dodging, but he quickly learned to approach me from the "non-projectile" side ;)
Rest, celebrate your success, and give yourself time to recover. You'll be back on top of the mountain in no time.
-
Hi Leslie,
You are doing awesome! So glad you are happy with your decision to go to House! Each day will get a little better. Some days you can only take baby steps, and other days you are taking leaps and bounds. Will be praying for you to make a full recovery. Ann
-
Hi Leslie .....
Sorry about the nausea, but many of us can identify. So glad they were able to deal with it.
After my first retrosigmoid surgery (17 years ago) I vomited for two days ..... I was miserable. Ever since that experience, like Kay, I have told every person who came near me during any pre-anesthesia that I have this history. After my second retrosigmoid surgery (3 1/2 years ago) I had one tiny wave of nausea upon waking up and no vomiting. What a huge difference! Then, when I was at House two months ago for the translabyrinthine surgery, I had mild nausea in the ICU and one small episode of dry heaves the next day in my room and that was it.
Ahhhh yes, the sleeplessness of steroid use! I did not have a computer in my room at the hospital, but used my IPhone to read the news, play games, text, etc. Sure helped pass the time when my brain would not go to sleep. Glad you are feeling well enough to type a long post.
Yes, you will be back to mountain climbing before you know it. Just remember it is baby steps for a while but you will progress rapidly.
Are you staying in Seton Hall? If so, the walking back and forth from the cafeteria to your room will be great exercise. 5 days after surgery I walked from Seton Hall all the way to the Clinic and back, with just some gentle assistance from my husband's arm. I sort of made it my goal. Make small goals like that and it really helps.
Best thoughts and continuing prayers.
Clarice
-
You sound so good, I am sure there are good moments and bad pretty evenly right now but I know it gets better everyday. You have determination and spunk so I have no doubt that those hiking trails won't be too far off in your future. Heres to a quick recovery and welcome to postie land.
-
Hi Leslie, All the very best wishes for a very speedy and very comfortable recovery. ( Pepcid AC works for nausea..don't know why, but seems to work ...of course, check with your doctor first) Joan
-
Terrific news!! The more you walk the faster the dizziness goes away
-
Hi Leslie, congrats on getting through this!
I'm now a week removed from my surgery, and things have been improving pretty rapidly with my balance and dizziness. I'm far from being in the clear yet, but seeing progress certainly helps with patience! Hopefully you will see these improvements as well, I'm sure you will especially since you were active before hand.
I too got sick, although luckily only once. I can certainly identify with the nausea...
I was very humbled the first few times walking too! :)
Best of luck, and cheers to you for "being on the other side" as well!
Aaron
-
Thank you, Aaron. It helps to hear from someone so recently ahead of me! Speedy recovery to you--hope you have tons of good progress over the next few days. I'm so happy to be leaving the hospital today. L
-
Great news so far, Leslie! I hope your recovery continues to go well and your strength and equilibrium return quickly as well!
I'm getting closer to setting the date for my own surgery soon, next meeting with what will hopefully be my neurosurgeon is 8/8. Nervous, but reading stories like yours are definitely helping to keep me calmer.
-
Hooray! Congrats on such wonderful news! I am so happy to hear about a 3 hours surgery...that has to be one of the shortest operative times! The PT folks at HEI are fantastic. I remember the first time they had me get up on Day 3...I was so out of sorts I was very thankful to be 'leashed' ;D
The steroid sleeplessness will ease up...especially as you taper off. Dr Stefan gave me a very low dose sleeping aid that I used a couple of times while at Seton after discharge. It helped me get a few four hour stretches of sleep. By week 3, you will be sleeping like a baby as your brain and body heal. I slept for 10-12 hours a night for a few weeks once the steroids wore off...
Again, the news of your recovery is just awesome! Keep us updated and take it easy! Your body will tell you when its ready to do more!
-
Thank you thank you! Today i 'washed' my hair (ok, some of my hair). Amazing how the little things help.later today mom and I are moving to a hotel, which feels like Christmas to me, I'm so excited. I'm still not sleeping more than 4 hours a night, but I'm going to request a sleeping pill when I call in to the clinic today, it's probably a good idea. I'm looking forward to those 10 hour stretches of sleep....that sounds like heaven to me! What an experience....I feel lucky to have been able to read about your journey (MUCH harder, makes mine seem a breeze; my kids are teens) and everyone else's...perspective is everything in this world, isn't it? I bet if you ever doubt yourself all you have to do is look back, see what you got yourself through, and give yourself a huge pat on the back. Blesssings to you, thank you for the response. :) Leslie
-
Leslie!
Again, it sounds like you are doing great! I just had to comment back about the hair washing! I was sooo paranoid about keeping my incision intact, etc that I had my mom wash my hair the first few times ;D It seemed to take forever to get all of the neosporin out of it! It does help the mood to not have such a greasy head, doesn't it!?!
Yes, managing the post op with a newborn was so difficult in so many ways. However, he gave me the hope and strength to crawl out of bed in the morning and meet the day...any new parent is tired...but doing it after brain surgery is off the charts! So thankful for my mom and husband who allowed me the time to rest, heal, and rest some more!
If you need any emotional support these next few weeks and months (or ever), do not hesitate to send me a message and I can pass along my phone number. I am 14 months post op now and I still love connecting with AN folks via phone or in person. It makes the journey a lot less lonely :) and it is nice to be understood by people who 'get it'.
I hope that you will get some more sleep soon! I had very, very crazy dreams from the steroids, too. I didn't realize that they could mess with your mind that much during sleep! That too passed very quickly!
Enjoy the transfer to your hotel and enjoy yours walks in a new place! That will be a nice change of pace and will help you to feel more normal!
Wishing you all the best in your continued recovery!
Kris