ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: rsteph on July 18, 2011, 10:14:17 pm
-
The numbness lasted for months and it was so gradual that I really did not notice the recovery. The tingling sensations on my face came and went and was like a tickle under the skin that would come and go. Eat well. Salmon with the skin. High quality protein and super vegetables and fruit like avocados broccoli kiwi cherries . I mixed bananas with peanut butter and added raw walnuts and blueberries for breakfast daily and had a liquid B-12 drop or two to chase that. Also I bought a Homedics back massager from Target that has the red LED lights on the head that heat up. I used that on my face because of the heat and the vibrations are stimulating. There is some science indicating that light therapy is effective at stimulating muscles and nerves. So I thought that a $19 purchase was worth it. I am a believer now. Try small smile exercises but do not try too hard to overwork the good side. I didn't smile to much during the ordeal so I didn't overdo that. Another thing I did was use my tongue and press it against the roof of my mouth and side to side because it triggers cheek muscles and throat muscles when you do that and that helped me a lot to feel what was going on and no therapist told me to do that. I am telling you a slow recovery is the best. 12-18 months is the timeline for some kind of movement return but considering your tumor size who knows. Don't believe what they tell you because as you said we are all on a different timeline. Had I listen to them I would have allowed them to cut my nerve at 6 months and that is irreversible. They were all wrong with me in the recovery phase. The doctor finally said there is nothing we could have done to give you the recovery you have now. I am afraid to use cellphones but we all have to. For thousands of years civilizations have known that sunlight exposure for the sick helped cure them. That is no joke and only sunlight can produce that good vitamin D that can cure cancer and heal but I am not talking about getting sunburn but sitting out in the late afternoon sunlight that is not so intense but enough to give you a slight tan and not burn you. Don't use sunscreen for this because it will block UVA/UVB rays and will not help you. It all may sound crazy but I guess something worked for me. I worked and stayed in most of the first year but I keep busy at work. My eye is not perfect but lack of tears was not a problem but when I do tear up I can't see well out of my eye usually when I eat or exercise in the wind but I am grateful to have tears.
-
rsteph ~
Thanks for contributing your unique but effective methods of self-motivated, post-op facial recovery. I'm pleased to learn of your progress - and your advice to 'take it slow' is prudent. Your information is appreciated. You've probably encouraged more recovering AN patients than you realize.
Jim
-
If anyone would like to see my pics. I would gladly send them to you. Just send me an email. I had total right sided facial paralysis for 10 months with no movement until the 11 month and it was hardly noticed by me. I thought that was all I would get back but the doctors said it was a beginning of a new timeline. Just when I completely lost hope only then did the movement start to return...
-
The numbness lasted for months and it was so gradual that I really did not notice the recovery. The tingling sensations on my face came and went and was like a tickle under the skin that would come and go. Eat well. Salmon with the skin. High quality protein and super vegetables and fruit like avocados broccoli kiwi cherries . I mixed bananas with peanut butter and added raw walnuts and blueberries for breakfast daily and had a liquid B-12 drop or two to chase that. Also I bought a Homedics back massager from Target that has the red LED lights on the head that heat up. I used that on my face because of the heat and the vibrations are stimulating. There is some science indicating that light therapy is effective at stimulating muscles and nerves. So I thought that a $19 purchase was worth it. I am a believer now. Try small smile exercises but do not try too hard to overwork the good side. I didn't smile to much during the ordeal so I didn't overdo that. Another thing I did was use my tongue and press it against the roof of my mouth and side to side because it triggers cheek muscles and throat muscles when you do that and that helped me a lot to feel what was going on and no therapist told me to do that. I am telling you a slow recovery is the best. 12-18 months is the timeline for some kind of movement return but considering your tumor size who knows. Don't believe what they tell you because as you said we are all on a different timeline. Had I listen to them I would have allowed them to cut my nerve at 6 months and that is irreversible. They were all wrong with me in the recovery phase. The doctor finally said there is nothing we could have done to give you the recovery you have now. I am afraid to use cellphones but we all have to. For thousands of years civilizations have known that sunlight exposure for the sick helped cure them. That is no joke and only sunlight can produce that good vitamin D that can cure cancer and heal but I am not talking about getting sunburn but sitting out in the late afternoon sunlight that is not so intense but enough to give you a slight tan and not burn you. Don't use sunscreen for this because it will block UVA/UVB rays and will not help you. It all may sound crazy but I guess something worked for me. I worked and stayed in most of the first year but I keep busy at work. My eye is not perfect but lack of tears was not a problem but when I do tear up I can't see well out of my eye usually when I eat or exercise in the wind but I am grateful to have tears.
Thanks for this very useful post.. I was searching for some information and finally I got this wonderful thread.. Thanks again
-
How are you doing these days? During my recovery, one of the biggest challenges was keeping my house clean. I just didn’t have the energy for it. I ended up checking Homeaglow reviews (https://homeaglow.pissedconsumer.com/review.html) and decided to give them a try. They were a huge help and made things a lot easier for me. Have you faced any similar challenges or found helpful services during your own experiences?