ANA Discussion Forum

General Category => AN Issues => Topic started by: Jwh on May 23, 2011, 08:11:46 am

Title: June 2nd....
Post by: Jwh on May 23, 2011, 08:11:46 am: Just scheduled my MRI for June 2nd at NYU. Dr. Roland will see me right after to give me the results. BREATH...INHALE....EXHALE....Relax..... Ugh I hate, hate this! Did I mention that I hated this :'(
Title: Re: June 2nd....
Post by: mandy721 on May 23, 2011, 08:48:06 am: Keep breathing! Ken had a follow-up MRI ( about 21 months post - surgery) in April and we were nervous too. We saw Dr. Sisti the same day and he had good news - not only was there no signs of re-growth, but some of the remaining tumor surrounding the facial nerve had disappeared. Here's hoping you have good news on the 2nd.
Title: Re: June 2nd....
Post by: Mickey on May 23, 2011, 10:12:40 am: Wishing you the best! Mickey
Title: Re: June 2nd....
Post by: kraynok2 on May 23, 2011, 06:26:50 pm: I know it's nerve-racking, but try to not worry. I hope all turns out good for you. I wish you luck on June 2. Sandy
Title: Re: June 2nd....
Post by: leapyrtwins on May 23, 2011, 10:03:10 pm: Good luck; hoping for clean results.

Please keep us posted,

Jan
Title: Re: June 2nd....
Post by: tweety on May 24, 2011, 04:18:08 am: Good luck. It is nerve wracking. Keep the faith. Tweety
Title: Re: June 2nd....
Post by: Rivergirl on May 24, 2011, 06:02:31 am: I hate the couple of months before a MRI.....it really gets to my insides worrying and it is something no one else knows but us what that feels like....wishing you good news on June 2nd.
Title: Re: June 2nd....
Post by: Debbi on May 24, 2011, 11:34:36 am: I just had my 3-year a couple of months ago (also with the wonderful Dr. Roland) and I was like a long-tailed cat in a room full of rocking chairs for about a month leading up to it. I think it just comes with the territory. I would think that the jitters would be worse for you since you've already gone through a regrowth and second surgery. If it is any help, I find that chocolate works wonders ...

Best of luck.

Debbi
Title: Re: June 2nd....
Post by: Suu on May 24, 2011, 10:21:02 pm: BREATH...INHALE....EXHALE....Relax..... I hope to see the word aaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaah when you've had it.
Title: Re: June 2nd....
Post by: Mark241 on May 24, 2011, 10:22:47 pm: Best of luck!
Title: Re: June 2nd....
Post by: JAndrews on May 25, 2011, 06:00:20 pm: I just scheduled mine for June 6th. I am a wreck:( Should have had it done a year ago. I have been putting it off. Good luck to you!
Title: Re: June 2nd....
Post by: proudmomof3 on May 30, 2011, 01:33:03 pm: I hope you have good news. It is such a long wait. I am in the "waiting period" now so I do understand. I do not get an mri until October.

Good Luck and let us know how it goes!

Cheryl :)
Title: Re: June 2nd....
Post by: LisaP on May 30, 2011, 02:11:57 pm: Hi,

W&W can be hard, my next MRI is also this October. It has been a little over 3 years now since my dx, so I guess I count my blessings that I can still live with this AN and have not yet had to seek treatment.

hang in there

LisaP
Title: Re: June 2nd....
Post by: rayden1 on May 30, 2011, 02:34:34 pm: Hi

Best of luck to you. Am sure you will have good news.

Ann xx
Title: Re: June 2nd....
Post by: Lorbis on May 30, 2011, 06:49:45 pm: I have a 4:30 appt w Dr. Roland on June 2! My first visit with a specialist since being diagnosed by my ENT a few weeks ago! Good luck to you!
Title: Re: June 2nd....
Post by: wendysig on May 30, 2011, 10:50:39 pm: Jen,

Best of luck. Here's hoping that your MRI is clear. I know you are anxious,because you've had a previous regrowth. I agree, keep breathing and like Debbi, I find chocolate helps almost any nail biting situation. Keep us posted.

Wendy
Title: Re: June 2nd....
Post by: CHD63 on May 31, 2011, 05:41:49 am: Jennifer .....

As you know, I can completely identify with your anxiety over the dreaded MRI this week. This normal reaction is probably something we will live with the rest of our lives.

I am determined, however, not to let the acoustic neuroma control my life. Yes, the fear is always there and the deafness is always there, but how I react to it is what I am working hard to change. For some reason the phrase "make lemonade out of lemons" keeps coming to my mind. I am constantly searching for ways to turn all of these events into positives.

Many, many prayers for another clean MRI for you and a lessening of your fear of another regrowth.

Clarice
Title: Re: June 2nd....
Post by: Kaybo on May 31, 2011, 07:28:08 am: Jennifer~

I completely understand your feelings and I can honestly say that the fears do get less & less as the years go on...but unforunately don't go away COMPLETELY.

This is certainly NOT something to let dominate your life - there is SO MUCH more to life and a LOT of living to do!! ;D

K ;D
Title: Re: June 2nd....
Post by: RichB57 on May 31, 2011, 09:37:44 am: Good luck. Hope it comes back clean.
Title: Re: June 2nd....
Post by: Jwh on May 31, 2011, 07:54:32 pm: Thanks everyone! Tomorrow is my birthday so I am going to enjoy the day. After all it only comes once a year ( : Thursday off to the big city! I love reading responses it makes me feel so much better.
Quote from: Lorbis on May 30, 2011, 06:49:45 pm
I have a 4:30 appt w Dr. Roland on June 2! My first visit with a specialist since being diagnosed by my ENT a few weeks ago! Good luck to you!

Lorbis - you're in awesome hands with Dr. Roland. You'll be amazed by his personality and knowledge. Sooo down to earth. He's fantastic. We will be crossing paths on Thursday.
Title: Re: June 2nd....
Post by: Debbi on June 01, 2011, 12:40:35 pm: Happy Birthday, Jennifer!!!! Hope you are having a great day!

Debbi
Title: Re: June 2nd....
Post by: Jwh on June 02, 2011, 04:43:50 am: off to the big city :o
Title: Re: June 2nd....
Post by: Debbi on June 02, 2011, 05:11:22 am: Good Luck!! Let us know what happens. Fingers crossed.
Title: Re: June 2nd....
Post by: Lorbis on June 02, 2011, 07:40:20 pm: Did I see you at Dr. Roland's office?? :) How did the MRI go? You're right-I liked him very much! He thinks I should have translab surgery-but he also thinks I should wait 6 months and do another MRI first. Hard decisions...
Title: Re: June 2nd....
Post by: Jwh on June 02, 2011, 08:07:18 pm: Hi Lorbis,
I'm not sure if we crossed paths. I left his office at 3:15. He's an amazing doctor! I would trust what he says. Why does he think you should wait 6 months? I waited approx. a year (my own doing) and he finally told me that I should have it done and I listened. What size is your tumor?
Title: Re: June 2nd....
Post by: Lorbis on June 02, 2011, 08:31:33 pm: Mine is 1.5 cm. He said if I have translab surgery I'll lose the hearing that I have. There is no brain stem involvement so he said to do another MRI in six months to see if it's actually growing. He thinks it is but he said I have time to wait. It gives me time I guess.
Title: Re: June 2nd....
Post by: Lorbis on June 02, 2011, 08:33:29 pm: Oh and we didn't cross paths-I was in the hospital lobby at 3:15-got there nice and early...went up to his office at 4:00.