ANA Discussion Forum

Watch and Wait => For those in the 'watch and wait' status => Topic started by: Jackie on March 23, 2011, 01:24:05 pm

Title: MRI result time again
Post by: Jackie on March 23, 2011, 01:24:05 pm

To my AN family, and fellow W and W buddies,

Just received an amazing letter from Dr. Brackmann at House, saying that my AN remains stable, and small, and advises to continue to W and W,
for at least another year!!!! So I continue into year 5. Hooray!!! This was contrary to the info from my Doc. locally! I'll go with the expert everytime!!!
Jackie
Sending Blessings to all of you in your journeys

Title: Re: MRI result time again
Post by: Jim Scott on March 23, 2011, 02:36:00 pm

Jackie ~

Please accept my heartfelt congratulations on this splendid news!  :)

Jim

Title: Re: MRI result time again
Post by: Mickey on March 23, 2011, 03:54:30 pm

Way to go Jackie! Lets keep on going with a positive outlook. I`m goiing into Manhattan on Sat. to an AN meeting and will ask about the latest on Pill technology such as (Nilotinib). Whatever we choose to do lets stay on top of things. Best wishes fellow W+W'er, Mickey

Title: Re: MRI result time again
Post by: Derek on March 24, 2011, 10:19:43 am

Hi Jackie....

Congrats on your great news...and long may it continue!

Best Regards

Derek

Title: Re: MRI result time again
Post by: tenai98 on March 24, 2011, 11:16:07 am

Yay....mine too came back stable...to recieve such news is great...
JO

Title: Re: MRI result time again
Post by: CHD63 on March 24, 2011, 11:38:53 am

Wonderful news, Jackie .....

Keep it up.

Clarice

Title: Re: MRI result time again
Post by: Kaybo on March 24, 2011, 11:52:45 am

Great news, Jackie!  So happy for you!

K   ;D

Title: Re: MRI result time again
Post by: Jackie on March 24, 2011, 11:56:59 am

AN Family,

I truly thank all of you for your responses. This journey, of W and W can be quite daunting at times, however, in my case after losing 60% hearing almost overnight,
and mild tinnitus, and a few other things, everything else has remained stable, as confirmed by MRI, so, life will continue down this path. Blessings to those in the same boat as me, to remain there!
To all the rest of you wonderful people may your healing continue, and your lives restored!
Jackie

Title: Re: MRI result time again
Post by: Mark241 on March 24, 2011, 12:12:40 pm

Great news!! ;D

Title: Re: MRI result time again
Post by: cnrnocn on April 01, 2011, 09:50:17 pm

 ::) Good news !!!

Title: Re: MRI result time again
Post by: Rivergirl on April 03, 2011, 09:52:24 am

Great news!

Title: Re: MRI result time again
Post by: LisaP on April 03, 2011, 11:32:29 am

Congrats Jackie  from a fellow W&W

LisaP ;D

Title: Re: MRI result time again
Post by: Sheryl on April 03, 2011, 06:33:10 pm

Yippee!!  I know the feeling well.  Pretty soon you'll be up there with Derek and myself (at 9-1/2 years W&W).
Sheryl

Title: Re: MRI result time again
Post by: Keeping Up on April 04, 2011, 09:28:05 pm

Alright this is my third W&W post of the night ...

Great news for you and great news for the W&W team.  It is alway reassuring to see successes with the W&W group.  You do never know but seeing the longevity of some of the 'oldies' brings a smile to my face.

Ann

Title: Re: MRI result time again
Post by: Sheryl on April 10, 2011, 12:26:53 am

Ann - this is the one time I will be called an "oldie" and enjoy it  ;)
Sheryl

Title: Re: MRI result time again
Post by: Derek on April 10, 2011, 10:15:40 am

In total agreement Sheryl...had my 9th year scan last month and awaiting the outcome...will post the result in the 'Top Tips' thread when to hand but hopeful of a 'pass' which would take me to that magic 10 year milestone!

Regards

Derek (a happy to be 'oldie')

Title: Re: MRI result time again
Post by: 4cm in Pacific Northwest on April 10, 2011, 12:41:24 pm

Jackie,

Fab news!

Remember we have a W & W patient in our support group... He turns age 92 on April 23rd... and he is still ballroom dancing!  :o

As I continue to deal with facial issues... I sure wish I had listened to Dr. Brackmann and went with his advice and expertise ...

But no more shoulda woulda coulda's...

I got my Baha  Valentines Day 2011 (very cool to hear from that side now)... and just got an I phone for my birthday 2011... apparently they can work together  8)... once I figure out all the new technology (which is rather intimidating to me still  :-\ )...

We just gotta keep moving forward. I think waiting is not a bad thing as with medical improvements and technological advancements happening at the rate they are... "if" you choose treatment things maybe be so way far more advanced in medicine that treatment may not have to be as invasive as what I had done.

Great News Jackie!!!

HUGS

DHM  :)


P.S. Wow 92. If you and I are both still around when you are age 92 I promise to take you out to a 5 star white linen table cloth restaurant... at that age no one bother to count calories...

Title: Re: MRI result time again
Post by: Derek on April 10, 2011, 01:15:20 pm

Hey Jackie & DHM...

It would be most interesting for those of us in W & W to know how long the 92 years old gent has been diagnosed and whether he has any 'Top Tips' worth passing on...I sure wouldn't mind still having my AN if I can make it to his age and hopefully beyond! :)

Title: Re: MRI result time again
Post by: CHD63 on April 10, 2011, 01:44:07 pm

Hey, DHM .....

Do not want to hijack this thread, but tell me more how the BAHA works with an IPhone .....  Already have an IPhone and getting abutment next month ..... processor hopefully in August.  Probably should have sent a PM ..... but others may be interested.

Clarice

Title: Re: MRI result time again
Post by: 4cm in Pacific Northwest on April 10, 2011, 06:08:27 pm

Quote from: CHD63 on April 10, 2011, 01:44:07 pm

Hey, DHM .....

Do not want to hijack this thread, but tell me more how the BAHA works with an IPhone .....  Already have an IPhone and getting abutment next month ..... processor hopefully in August.  Probably should have sent a PM ..... but others may be interested.

Clarice

Here are the accessories so you can plug i-phone (or i-pod) into the baha.
http://products.cochlearamericas.com/baha/baha-system-and-accessories/baha-audio-accessories

DHM

Title: Re: MRI result time again
Post by: 4cm in Pacific Northwest on April 10, 2011, 06:12:03 pm

Quote from: Derek on April 10, 2011, 01:15:20 pm

and whether he has any 'Top Tips' worth passing on...I sure wouldn't mind still having my AN if I can make it to his age and hopefully beyond! :)

A) He has a great sense of humor.

B) He dances

He had the diagnoses at least a decade ago.

DHM

Title: Re: MRI result time again
Post by: G_Man on April 10, 2011, 08:49:36 pm

Congradulations Jackie.  I hope to continue W+W as well.  Stay strong & positive.

Title: Re: MRI result time again
Post by: suboo73 on April 14, 2011, 06:41:06 am

Jackie

CONGRATS on another MRI with no change!!

Now you can go on with life and a beautiful springtime!

Sue