ANA Discussion Forum
Post-Treatment => Facial Issues => Topic started by: sarahinPA on December 21, 2010, 08:03:19 pm
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Hello everyone! I am 3 weeks away from my 2 year post op anniversary (Gamma Knife , Jan 14, 2009). In the last 3 months or so, I have been experiencing facial paralysis/spasms while i am laughing or smiling alot. My AN side always feels tighter than the other side, and i experience some twitching and smaller spasms in my upper lip and lower part of my eye. I contacted my neurosurgeon today, and he suggested having an MRI sooner than my annual check up. This has me slightly nervous, and I was just wondering if anyone else has had this type of experience?
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Hi Sara: I have total paralysis right side post AN surgery, so I never had this experience.
I'm glad to hear you called your neurosurgeon on this.
Always good thoughts, Nancy
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Hi,
I just happened to see your post. I hope things are well for you and you found out some answers. You described my facial issues perfectly and so I thought I would respond. I usually don't look through this section of the forum but..... this past week I had facial paralysis or a strong spasm a few times this week for the first time. Also, lots of twitches in my upper lip and eye... and it is my AN side. I discovered that mine occurred anytime I was jogging (I am a PE teacher :) I called my doctor and he thought it is probably my tumor shrinking... at least we both think it is. I had surgery last March and it grew back so then I had radiation in September. I am having my second MRI next week and am hoping that it shows that it is shrinking. My AN was pretty large, over 4 cm, so it created a fairly large space. Now, if I can just fill it back up with brains :) Hope all has gone well for you. Take care.
Shannon
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Hi All,
I received a letter from my doctor today which explained that my recent MRI is showing my AN 2mm bigger on the skull side. This could be from swelling from the gamma knife 2 years ago, or it could be regrowth, which he says is only a 2% chance. I took a 6 day dose of steroids and am asked to return to get another MRI in June. This was slightly discouraging for me today, I was hoping for better news, but I guess we have to take what is given to us. Thank you for your support.