ANA Discussion Forum

Post-Treatment => Post-Treatment => Topic started by: gms on September 22, 2010, 01:06:33 pm

Title: Pulsating sensation on AN side
Post by: gms on September 22, 2010, 01:06:33 pm
Hey, I was wanting to know if anyone out there has had any problems with a pulsating sensation on their AN side. I had my tumor removed in 2004 and for the past 2-3 years, I have this sensation that I only know how to describe as "pulsating". It is very annoying and bothersome. It can last for several hours and usually appears when I am tired. Mostly in the evening but has come during the day as well. It can be very depressing for me. I feel overwhelmed by it at times and just want to go lay down with a pillow over my head (although it doesn't help). It is so distracting for me, especially when it occurs around other people, such as at my kids birthday parties or at games.
Any suggestions to alleviate this problem. I haven't noticed is much over the summer, but now as we are approaching fall, I am busier with kids and also have Allergic Rhinitis. I don't know that these things matter much, but it has been worse the past couple of weeks. Today, when I was rocking my youngest child, and feeling very relaxed, it started again. It does seem to occur when I am relaxed and tired too.
If anyone has any thoughts or comments on this, it would be appreciated greatly.

Thank You,
GMS
Title: Re: Pulsating sensation on AN side
Post by: leapyrtwins on September 22, 2010, 03:44:42 pm
Wish I could help, but I've never had this issue.

My surgery (retrosigmoid) was about 3 1/2 years ago.  I still get the occasional "issue" when I'm overtired - but it comes in the form of wobbly balance and/or dry eye.

Have you checked in with your doctor recently?  And when was your last MRI?

Jan
Title: Re: Pulsating sensation on AN side
Post by: sunfish on September 23, 2010, 07:57:31 am
Lots of us have "weird" symptoms afterwards that are practically impossible to describe.  I've read several threads over the summer of people with "shudders," or "zaps."  When my symptoms are particularly active, I have "waves" of something - part hearing, part inner sensation.  Only when my symptoms are very active now, which is infrequent.
Title: Re: Pulsating sensation on AN side
Post by: Funnydream on September 23, 2010, 08:42:20 am
I have a wave thing going on when I look up too long or feeling stress.

Its like someone has their hand on my volume nob and is turning it up and down over and over. And I have to sit still and calm down for it to go away. My ENT said that my neck has blood vessels that go to my Brain from the front side. And that when I look up I'm stretching those vessels.

Sorry to hear you not whole so long after your treatment. I'm 41 and still have knee problems from high school football.

Hope you figure it all out.
Title: Re: Pulsating sensation on AN side
Post by: opp2 on September 23, 2010, 12:24:49 pm
I had the wave thing too--for a couple of years...never came back after surgery..pressure on the brain stem and vessels...Sorry that you are having this pulsating. When is your next MRI?
Title: Re: Pulsating sensation on AN side
Post by: gms on September 23, 2010, 12:35:27 pm
I had an MRI this past spring. My Dr. said everything looks fine. We did visit about this sensation a bit and he said that this is a "universal" problem and is not uncommom. I just wanted to know if anyone has actually experienced this and if there was any way to help it.
Title: Re: Pulsating sensation on AN side
Post by: cin605 on September 23, 2010, 04:40:30 pm
Yes...I am over 2 years out and get this its either the heart beat in the AN side or a little like gushing water going through my head plsating to my pulse i guess.
Title: Re: Pulsating sensation on AN side
Post by: Lizard on September 24, 2010, 11:41:54 am
I have this sometimes, but its only when I'm having issues with pressure in my head that day.  Even wearing pants that are to tight can cause my fluid to build up and cause this pulsing...we have the strangest symptoms.  I figure it keeps things interesting...
Liz
Title: Re: Pulsating sensation on AN side
Post by: cin605 on September 25, 2010, 10:22:00 am
MMMM...yes...definatly interesting.Google must think i am crazy! ;D
Title: Re: Pulsating sensation on AN side
Post by: joyce perry on March 08, 2011, 12:37:18 am
Concerning pulsating sensation on AN side...I have this sensation almost every evening and sometimes during the day.My surgery was 3 years ago. I have recently found that caffeine increased this sensation. I have tried to eliminate caffeine. I know there is a little caffeine in decaffeinated beverages and in most soft drinks. Having no caffeine helps somewhat. When I have caffeine the sensation intensifies. I hope this might help a little bit.