ANA Discussion Forum

General Category => Inquiries => Topic started by: lholl36233 on June 27, 2010, 06:34:35 pm

Title: Hemangioma
Post by: lholl36233 on June 27, 2010, 06:34:35 pm

Hi,

As some of you might remember from my previous posts, I have a hemangioma near the facial nerve.  I just found out today that I have 3 cousins with hemangiomas.  One on the nose, one on the liver and one on the spine.

Makes you wonder if there is a hereditary connection?  I just felt like sharing.

Thank you.

Laura

Title: Re: Hemangioma
Post by: lori67 on June 27, 2010, 07:29:02 pm

Hi Laura.

That definitely does make you wonder if there's some connection there or maybe it's just really coincidental.  Hopefully, someday the researchers will figure out what causes these weird things and how to make them stop!!

Lori

Title: Re: Hemangioma
Post by: heyct on June 21, 2011, 09:14:31 am

Hi Laura,

We are a rare group! They thought I had an AN, but it turned out to be a hemangioma. I'm still not clear why they couldn't tell before my surgery. It was starting to strangle my facial nerve. Luckily they got "almost" all of it through surgery, altho I do get worried at every little twitch my eye has!

I have no hereditary connection with Hemangiomas.
Welcome to our little group!
Carolyn