ANA Discussion Forum

General Category => AN Issues => Topic started by: thisisajourney on May 25, 2010, 08:30:43 pm

Title: i dont know if i had a stroke or not they say they cut a nerve
Post by: thisisajourney on May 25, 2010, 08:30:43 pm: i had a 4cm by 2.9 AN I am devestated
Title: Re: i dont know if i had a stroke or not they say they cut a nerve
Post by: moe on May 25, 2010, 08:42:57 pm: Hi there,
Can you give us more info on your symptoms? I see a previous post about blinkeze that you posted.

There is also the WTT (willing to talk) part of this forum that you may want to call.

Please tell us more. We can help you! (emotionally that is). :)
Maureen
Title: Re: i dont know if i had a stroke or not they say they cut a nerve
Post by: opp2 on May 25, 2010, 08:46:02 pm: Well that sure is a big AN. I'm really sorry that you have a tumour and like Moe we're here to help, however we can. Most of the folks on here have been through a lot. Me, I'm pre op so I can only say I wish you strength to handle what has come and is to come....

big ole cyber squeeze to you.
Title: Re: i dont know if i had a stroke or not they say they cut a nerve
Post by: Lizard on May 26, 2010, 09:19:42 am: Please don't hesitate to ask or vent or whatever you need that's why this forum is here. More info on your surgery and condition would be great to hear.
Hang in there
Liz
Title: Re: i dont know if i had a stroke or not they say they cut a nerve
Post by: Jim Scott on May 26, 2010, 01:14:24 pm: Thisisajourney ~

After seeing your screen name, my first thought was, "it certainly is"!

I'm terribly sorry to see that you're 'devastated' post-surgery. Like the previous posters, I would like to know a bit more about your situation, such as what complications developed during or immediately after the operation, your doctor(s), facility, post-op issues and what you're doing for physical therapy as well as what kind of support system you may have.

We're all involved with an acoustic neuroma in some way. Whether we're 'veterans' of surgery and/or radiation, going through a period of observation ('watch-and-wait') or simply dealing with a recent AN diagnosis and seeking a path to wellness. As you probably know, some AN patients have a relatively easy time of it with surgery or radiation and enjoy swift and complete recoveries. Some have temporary problems that eventually resolve awhile some deal with intractable issues - but we all deal with an acoustic neuroma in one way or another and have empathy for whatever you're going through.

These forums exist to supply information, advice and support for those who seek it. We're not doctors but collectively, our members have a wealth of experience at all stages of the 'AN journey' that they are eager to share with those in need of it, as I suspect you are. Let us help. Feel free to ask any question or just 'vent' your frustrations. We understand - because we've 'been there'.

Jim
Title: Re: i dont know if i had a stroke or not they say they cut a nerve
Post by: thisisajourney on May 27, 2010, 10:16:29 pm: well i feel that the doc was so not helpful i have to keep researchin things and well inform them i am so mad and yes this site is great
Title: Re: i dont know if i had a stroke or not they say they cut a nerve
Post by: 4cm in Pacific Northwest on May 27, 2010, 11:08:29 pm: "thisisajourney"

WELCOME to the ANA forum. You made it on-line! Yeah- that is SOOH the best step in the right direction. Way to go! You got through the log in and setting up an account stage - the rest is easy sneezy. I see you have already met some of my fabulous supportive ANA buddies here.

I just sent you a PM.

Feel free to ask any questions and those of us who have been through this can offer you some understanding and empathy (from our own experiences)

Please know that it DOES get better. I too had a whopper 4cm tumorâ€¦ and for a couple of months, post op there, I could not walk nor knew which end was upâ€¦ but you know I did get betterâ€¦ and I do not even need naps anymoreâ€¦

Know that you can come on this forum any time, even in your PJâ€™s ;) or having a bad hair day ;D and someone will most likely answer your posts once they are too logged on and see it.

Also know it is totally OK to vent your frustrations hereâ€¦ we all know what the early stages of post-op recovery are like. Don't harbor bad feelings... let it out...

Know that you are welcome here on the forum and you are not alone. It IS going to get better. Some days the recovery seems to take as long as watching a banana slug cross a tennis court on a Pacific Northwest rainy dayâ€¦ if not longer :-\ â€¦ or like watching the paint dry when there is 100% humidity in the airâ€¦

Cyber HUGS

Again welcome to the forum!!

Daisy Head Mazy (DHM) :)
Title: Re: i dont know if i had a stroke or not they say they cut a nerve
Post by: Kaybee on May 30, 2010, 09:18:34 am: thisisajourney, my tumor was approximately the same size. I know how you must feel. I do not know how recent your surgery was, but things do improve. And yes, what a journey it is! The people on this forum are amazing and their words (directly to me or more likely to others) have helped me more than they will ever know. Keep posting whenever you want to share or vent or whatever. You will find comfort. All my best,
Kaybee
Title: Re: i dont know if i had a stroke or not they say they cut a nerve
Post by: Kaybo on May 30, 2010, 03:57:06 pm: thisisajourney~
Welcome! I'm sorry to hear that this is overwhelming you right now but trust me, it WILL pass. I had surgery for a "huge" tumor over 14 years ago when I was 25 and have complete paralysis in my face on the right side. I also had a stroke so I had to relearn how to do just about everything! It may take a while, but recovery IS in the future - I have a great life now! Slow & steady wins the race...
Ask any questions...

K ;D
Title: Re: i dont know if i had a stroke or not they say they cut a nerve
Post by: satman on June 06, 2010, 09:06:22 am: i can so relate to what your feeling.
in time things will get better, from my exp anyway.
i had an 8cm with a 17 1/2 hr surgery and 6 months of therapy along with all that comes with it.
if you need to talk feel free to pm me
Title: Re: i dont know if i had a stroke or not they say they cut a nerve
Post by: 4cm in Pacific Northwest on June 06, 2010, 11:31:25 am: Satman Super 8!

Wahoo you are back!!!!!!!

We have not heard from you in ages! I have really really missed you... and was wondering where on earth :-\ you disappeared to. Welcome Back!!!! :-*

You have been a huge inspiration to me -in the past... I figured if you could get back on the horse after having a 8 cm removed ... then I had to get off my duff, quit pouting about my predicament (which was only half the size as yours) and work at getting better too.

Cyber HUGS to "SUPER 8" from DHM (formerly called "4")

"Thisisajourney" Know that Satman is a great :) person to connect with...

DHM
Title: Re: i dont know if i had a stroke or not they say they cut a nerve
Post by: satman on June 06, 2010, 12:08:45 pm: to my better half- :-* :-* :-*, i'm blushing .