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General Category => Inquiries => Topic started by: michelle on May 13, 2010, 08:35:29 am

Title: Not Diagnosed yet but searching for answers...
Post by: michelle on May 13, 2010, 08:35:29 am: Hello There!

My name is Michelle. I'm a happily married mommy of 4 beautiful little kids, and just turned 30 years old. I have always been extremely healthy, and aside from the births of my children, have rarely been to a Dr. for any reason.

Well, in October 2009 I started to get bad headaches that left me nauseous and dizzy. I'd had a cold a few weeks before, and it seemed to have "settled" in my right ear. It wasn't painful, just felt like an annoying "fullness." I started regularly taking motrin and sudafed, hoping it would just go away. Well, long story short it never did.

I am a runner, and had to stop. I couldn't stand the "Thud, thud, thud" like there's something bouncing up and down in my ear/head whenever I run, jump, walk fast, etc. I started thinking maybe something had crawled in my ear and died. I don't hear a "ringing" in my ear, but more of a "woosh, woosh, woosh." It is completely clogged/blocked and does not come and go, it just is this way. When I plug my nose and blow air to "pop" my ears, only my left ear does anything.

Finally, my hubby convinced me to go to the Dr. a few weeks ago. I went into urgent care. The dr. said my ear looked normal, maybe a little refracted (?). He did a test where he blew air into my ear and said that my ear drum doesn't move, and it should. He said maybe there's air caught in my middle ear, and precribed steroid nasal spray for me.

Well, that didn't help at all. In the past couple of weeks, I started to have more alarming symptoms. The ring and pinky finger in my right hand have been going numb, and my upper lip area on the right side of my face feels tingly. This FREAKED me out, and I made a Dr. appt a few days ago.

This Dr. totally blew me off. He said that I should see a dentist for my TMJ (that I supposedly have in my jaw, but has never caused me any problems before.) He prescribed a different nasal spray, even though he said I do not appear to have any allergies or anything. Before I left, his nurse did a quick hearing test which, surprise surprise, showed moderate hearing loss in my right ear (completely normal in my left.) He ordered a referral to an audiologist for a more extensive hearing evaluation. I'm waiting for that to be approved by my insurance.

Meanwhile, this is seriously affecting my life. I'm finding it difficult to focus on caring for my children and the kids I take care of in my home child-care. I promised myself I would not turn to Dr. Google, but the symptoms combined have left me quite unnerved and I'm desperate to know what is causing it. Acoustic Neuroma kept popping up when I would enter my symptoms yesterday and it led me to this board. I have read a few of your diagnosis stories and some of the symptoms are eerily similar to what I'm experiencing.

Part of me just wants to go to the Emergency Room and demand that they do whatever test necessary to make sure I do NOT have some sort of brain tumor. Then I get a grip and rationalize with myself that I can wait and find out after the audiologist, and then I'm assuming I'll be referred to an ENT, and go on from there.

I'm not looking for answers, I know that only a physician can diagnose what's going on with me. I'm just scared and searching for some advice.

I do not usually take over the counter medications, but I have been living off of motrin for my headaches and sudafed in some hope of relieving the pressure in my head and ear.

Also, when I turn my head, there is a grinding/squishing sensation behind my right ear at the back of my head that is so unnerving. Sometimes I will even be sitting still, and the "woosh, woosh, woosh" just starts in my right ear. The weird upper lip numbness feeling has only started happening in the past few days, and the numb right hand for a little over a week. Both symptoms are so alarming to me though.

I am supposed to run in a race in 3 weeks, and it is impossible for me to even walk fast without this terrible THUD THUD THUD in my right ear. It's driving me crazy.

I just want to wave a magic wand and have all of this disappear! :-(

Any advice or help anyone can offer would be greatly appreciated.

-Michelle

P.S. If it makes any difference, I live in Los Angeles, Ca.
Title: Re: Not Diagnosed yet but searching for answers...
Post by: sues1953 on May 13, 2010, 09:35:31 am: Hi Michelle,

Welcome to this forum it is a wealth of information. I am so sorry that you are experiencing these symptoms, you are right to be alarmed. After your test with the audiologist you will more than likely be referred to an ENT, as you know. The best advice I can give is to have an MRI with contrast. If you do in fact have a brain tumor it will show up and they can more than likely let you know within 24 hours.

It is a good thing that you live in LA there are really good Doctors there. I will be thinking of you and praying for the best for you and your family.

Sue
Title: Re: Not Diagnosed yet but searching for answers...
Post by: CHD63 on May 13, 2010, 11:18:43 am: Michelle .....

Welcome to this forum. Although I truly hope you do not have an acoustic neuroma, you certainly need some answers quickly to your troubling symptoms.

I do not know why some doctors blow off patients! You know your own body better than they do. You know you are experiencing new, strange symptoms. In my mind, it is not the doctor's prerogative to make light of your concerns. If I were you, I would kindly, but firmly, insist that these symptoms are indeed progressing to an alarming level and you are politely asking for an MRI with contrast be done to determine the cause. It is imperative that it be done with contrast as this is the only definitive way to diagnose an AN.

Hopefully it will not be an AN, but you deserve answers to possible causes for your symptoms, beyond the ones suggested to you already. Keep in mind, however, that fear of the unknown can make existing symptoms seem worse than they might be otherwise. You need some relief from your fear.

Best thoughts and prayers and please let us know how you are doing. Now you have a group of concerned friends!!

Clarice
Title: Re: Not Diagnosed yet but searching for answers...
Post by: Lizard on May 13, 2010, 11:25:47 am: Michelle,
Welcome to the forum and I know it can be scary to have unexplained symptoms, but the symptoms for an AN can be any number of other conditions. Try not to panic as there isn't much you can do until you get in to see an ENT and have them give you an MRI with contrast. Also being in the LA area there is a great group who specializes in AN's at the House Ear Institute (HEI, do a search on it here, tons of info). You could always contact them and request to be seen they shouldn't turn you down considering the symptoms. Its worth it and they are the best of the best

I hope and pray you do not have an AN, but if you do we are here for you. This forum is a wealth of information so please do not hesitate to ask the questions and express your concerns.

Hang in there,
Liz
Title: Re: Not Diagnosed yet but searching for answers...
Post by: leapyrtwins on May 13, 2010, 11:32:50 am: Hi, Michelle and welcome to the Forum.

As others have said, the symptoms of an acoustic neuroma aren't always the same. Some of what you are experiencing can be attributed to an AN - but then again these symptoms can also be attributed to many other things.

The only definitive way to diagnosis an Acoustic Neuroma is have an MRI with contrast. You should start with an ENT, and if he/she doesn't find any other causes for your symptoms, insist on an MRI with contrast.

Good luck,

Jan
Title: Re: Not Diagnosed yet but searching for answers...
Post by: sunfish on May 13, 2010, 01:11:02 pm: I like Liz' suggestion to simply contact HEI and set up a consult (hopefully, your insurance would allow this). This miight be a faster route to getting some answers. If it's a AN, you generally have plenty of time, but if it's some other condition you might need your answers more quickly. Take care, and know you're in my prayers.
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on May 13, 2010, 01:36:23 pm: Thank you to all who have replied.

Believe me, I do not want to find out that I have any sort of brain tumor. I wish, as gross as it sounds, that the Dr. would have just told me that there WAS a bug that crawled in my ear and died. He could have just removed it, and I'd be on my way. :)

Yes, I am fearful of finding out that this is something serious. I have 4 little kids who are dependent upon me. I am reassured by reminding myself that the odds are in my favor and this is most likely nothing serious at all.

Still, I have been in denial that anything is wrong, and clearly something is. This isn't normal, more alarming symptoms have started showing up, and it does not seem to want to go away. I just walked my son to kindergarten and thought what I wouldn't give for ONE hour of having my ear back to normal. It's becoming so debilitating for me. :-(

I will look up the House Ear Institute. I have an HMO though, so I have to be referred by my primary doctor for anything to be covered.

It's frustrating because I do not have a "regular" doctor. Like I said, I have otherwise been very healthy and unfortunately I am not very good at keeping up any yearly physicals or anything. I guess I could call up the guy I saw who referred me to the Audiologist and see if I could ask him to order an MRI with contrast? I feel like a silly hypochondriac.

I'm rambling now, and need to go pick up my little one from preschool. Thanks so much for the caring concern.
Title: Re: Not Diagnosed yet but searching for answers...
Post by: Debbi on May 13, 2010, 01:48:34 pm: Hi Michelle-
Well, first of all - you're NOT a hypochondriac. My family doctor always reminds me that no one knows my body better than me. If something doesn't feel right, insist on answers. Don't settle for a pat on the head. And, don't worry one iota about what the doctor may think - doesn't matter.

hang in there - and demand answers!

Debbi
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on May 13, 2010, 03:34:47 pm: Thanks Debbi!

I just got the call from the Audiologist's office and I have an audiogram scheduled for tuesday morning. I guess I'll just go from there.
Title: Re: Not Diagnosed yet but searching for answers...
Post by: CHD63 on May 13, 2010, 03:57:55 pm: Michelle .....

That's a start ..... be persistent though.

Clarice
Title: Re: Not Diagnosed yet but searching for answers...
Post by: Jim Scott on May 13, 2010, 04:18:22 pm: Hi, Michelle ~

Although the tests you're going to have may or may not discover an acoustic neuroma, you have a right to be stressed out, struggling with these very debilitating symptoms and a diffident doctor. Although an acoustic neuroma is a benign (non-malignant) tumor that is treatable (via surgery or radiation) it isn't something I would wish for anyone, so I hope the tests actually will show something simpler to deal with. My suggestions is to ask the ENT (that the audiologist will likely refer you to) if he/she would order an MRI with contrast. I know some doctors roll their eyes when a patient says "I saw it on the internet" but your symptoms do match those of a person suffering with an acoustic neuroma. Again, I hope this is not really the case but it's obvious that you need to find out and an MRI is the quickest way to do so. If it shows nothing, at least you've eliminated one possible cause of your symptoms - and gained some peace of mind.

Please let us know what transpires - and welcome to the ANA website discussion forums.

Jim
Title: Re: Not Diagnosed yet but searching for answers...
Post by: james e on May 14, 2010, 02:01:13 pm: Sorry you are here, but this is a good place to be. Some doctors just think some people are "head cases" but you sound like you are detailing your symptoms in a reasonable way. I found it rather unusual how many different symptoms an AN can cause...but there are lots of them. I went to my personal family doctor, an ENT, neurologist, internist, and nobody got it right until I had a MRI with contrast. I think there are so many diseases, bacteria and virus around that can mimic our symptoms, that it is very unusual for a doctor to jump right to AN as the cause. I had just had a stroke in April, and in December thought I was having another one. The MRI with contrast revealed my AN. The hearing test will not be enough to determine if you have an AN...it will be a basis of evidence that can support the next step which might be the MRI. I just had my surgery in March, and it has made my life much better than it was. I am a firm believer in physical fitness, and it will serve you well to stay in great physical shape by weight training or some other activity. My fitness REALLY helped me recover. If you have an AN, keep coming back here. Good luck to you and your family.

James
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on May 14, 2010, 06:33:35 pm: Thanks again.

I obviously hope the tests will show something simple too. Actually, I hope they'll show nothing at all, and the ENT will tell me exactly what's wrong with me, and that it's something super minor, and he can make it go away, and I will go back to being the active, healthy, happy person I've always been.

I didn't want to search anything on my symptoms, because I was SO afraid to find out that they could be signs of a serious problem. I have little kids who depend on me.

I have always been an extremely healthy, active, fit person. I used to run 4 miles a day, cross train, weight train, etc. Since october, I have not been able to do these things because of these problems. For the first time, EVER, I have been gaining weight and feeling out of shape. I *need* to figure out what is wrong with me, so that it can be taken care of and I can get back to being myself.

I'm sorry to vent here. I am just so frustrated and unsure. Just the thought of something being seriously wrong with me rocks me to the core. This is one of those "happens to other people" situations. Unfortunately, I've tried to pretend like nothing was wrong for too many months now, and it doesn't seem like whatever this is is going away on it's own anytime soon. It's time for me to face the fact that *something* is going on, and work towards figuring out whatever it is and dealing with it. (And praying and crossing my fingers that it's NOTHING bad.)

Thanks again for any advice or input.

-Michelle
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on May 14, 2010, 11:03:00 pm: Real quick, a couple people have replied implying that there could be many reasons for the symptoms I'm having.

Would you mind elaborating?

Thanks!
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on May 15, 2010, 09:41:24 am: This morning when I woke up my ear felt worse than ever, and so so blocked. Lately, immediately upon waking I take motrin, tylenol, sudafed, and get the coffee going so I can get some caffeine in there, too. If I don't, I end up with "morning sickness" type nausea and headache.

It's tough being patient. I just want to know what is going on RIGHT NOW.

Again when I woke up I thought of just going to the ER today and asking for an MRI. I feel like it's going to take forever going through all of the Dr appointments and referrals and insurance approvals and waiting for openings, and more waiting, and copays. I just want to know. If someone could just tell me that I definitely do NOT have some sort of tumor or potentially life-threatening issue, I could handle these symptoms better while trying to figure out what's causing them. The thought that there could be something in my head, continuing to get worse while I just wait around makes me very uncomfortable.

I've read that AN's are very slow-growing. I feel like my symptoms have become dramatically worse in the past few weeks. I'm really afraid of it being something even "worse" than an AN. I just want to know what I'm dealing with. :-(
Title: Re: Not Diagnosed yet but searching for answers...
Post by: leapyrtwins on May 16, 2010, 08:36:30 am: Quote from: michelle on May 14, 2010, 11:03:00 pm
Real quick, a couple people have replied implying that there could be many reasons for the symptoms I'm having.

Would you mind elaborating?

I'm not a doctor, so I won't even attempt to say what else your symptoms could be. I just know from being on the Forum for a few years now that we typically have people who think they have an AN because of similar symptoms and then their MRI shows that they don't. While having an AN isn't the end of the world, I honestly hope you are one of the people who don't have one.

Good luck on Tuesday. Please let us know what happens at your appointment.

Best,

Jan
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on May 17, 2010, 11:58:36 am: I'm sorry. I'm sure it's extremely annoying that I'm here.

Obviously, I also hope that I don't have an AN or anything else wrong with me.
Title: Re: Not Diagnosed yet but searching for answers...
Post by: CHD63 on May 17, 2010, 12:22:31 pm: Michelle .....

Please do not feel you are annoying. This is a scary time for you and you have every right to be concerned until you are diagnosed. As I said in a previous post, sometimes our minds play tricks on us when we panic. For this reason, it is important that you try to remain as calm as possible until you have walked through the remaining pieces of the process of diagnosis. Many of us have said, this was the absolute worst part of the journey ..... not knowing and thinking the worst.

We all hope you do not have an AN, but if you do, it is a very treatable condition and remember it is benign. It is impossible for us to speculate on what you may have if it is not an AN, since most of us are not medical professionals and furthermore, we do not have access to your testing and/or results, nor your full history. This is no way means that we do not care about how you are feeling or what you may have.

Many thoughts and prayers coming your way. ..... and please let us know how you are doing!

Clarice
Title: Re: Not Diagnosed yet but searching for answers...
Post by: leapyrtwins on May 17, 2010, 02:40:12 pm: Quote from: michelle on May 17, 2010, 11:58:36 am
I'm sorry. I'm sure it's extremely annoying that I'm here.

:o

Michelle -

I hope you didn't get that impression from my post - because it's NOT AT ALL what I said or meant.

Everyone is welcome here and you are not annoying in the least.

Jan
Title: Re: Not Diagnosed yet but searching for answers...
Post by: Jim Scott on May 17, 2010, 03:23:08 pm: Quote from: michelle on May 17, 2010, 11:58:36 am
I'm sorry. I'm sure it's extremely annoying that I'm here.

Michelle ~

You have symptoms that are very similar to what AN patients experience. Those symptoms are debilitating and somewhat frightening. You're frustrated. You're seeking some answers and a bit of support. Those are all perfectly valid reasons to post on these forums...and you're not the first person to post here that has AN-like symptoms but hasn't been diagnosed with an acoustic neuroma - yet. As we've stated, we would rather you not receive a diagnosis of an acoustic neuroma, but we'll be here if you do - or, to be realistic, even if you don't.

Please don't feel that you're intruding or in any way 'annoying' anyone....because you're not. If you were, as a moderator, I would have deleted your posts and sent you a PM warning you not to be 'annoying'. That hasn't happened because you haven't done anything to apologize for.

Quote
Obviously, I also hope that I don't have an AN or anything else wrong with me.

So do we, Michelle. Try to stay strong and positive.

Jim,
Title: Re: Not Diagnosed yet but searching for answers...
Post by: Tisha on May 17, 2010, 04:35:24 pm: Hi Michelle,

My symptom was the ear fullness. My regular ENT told me I had Mienere's Disease after a month of trying different presciptions, etc. Never even bothered suggesting an MRI. I was devastated at that diagnosis and when googling all about, I read about Neurotologist (an ENT who specialized in the inner ear). I decided to make an appt. with one. Well, he set me up for an MRi with contrast and balancing tests. I had also been slightly dizzy for a year or so. Well, turn's out it was an acoustic neuroma.

I found this board, like everyone else, and it was a godsend. I have to say all the major decisions, advice, where to go, etc. came from the caring members of this website. You could not have found a better one.

Please...insist you have an MRI with contrast. If I had just accepted my ENT's advice (who I had been going to for years), how disastrous that could have been. The ironic thing is she has a neurotologist in her GROUP, and didn't sent me to him...can you believe it? I found that out later. You have to be your own advocate. If this ENT doesn't want to do it, find a neurotologist...they will! Good luck and god bless. Tisha
Title: Re: Not Diagnosed yet but searching for answers...
Post by: sues1953 on May 18, 2010, 07:01:21 am: HI Michelle,

I am sending prayers your way as you see your ENT. I hope you get that MRI and find that you do NOT have a brain tumor. I am having Translab surgery for a 3.2 cm AN on May 20th but I will be checking on your statis. Stay strong and God bless you.

Sue
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on May 18, 2010, 08:11:42 am: Thank you again, all of you, for your kind words and support. This morning I have the audiogram, and I'm assuming that from there I will be referred to an ENT. I just hope it doesn't take weeks to get an appointment!

I will let you all know how it goes. Thanks so much.

Sue, good luck! My prayers are with you for a successful surgery and quick recovery!

-Michelle
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on May 18, 2010, 10:04:52 pm: Audiologist appt. was pretty quick and uneventful. She told me moderate hearing loss in my right ear with no evidence of middle ear fluid. Referral to ENT. Now the waiting for approval for the referral and then an appt. Should be in the next few weeks. Thanks again for all the help.

-Michelle
Title: Re: Not Diagnosed yet but searching for answers...
Post by: sues1953 on May 19, 2010, 06:10:56 am: Thank you Michelle for the well wishes. The waiting game is tough but try not to worry. I know you are busy with your kids so do try to stay positive :). You will get the answers you need and move forward from there.

Good luck to you :-*

Sue
Title: Re: Not Diagnosed yet but searching for answers...
Post by: Lizard on May 19, 2010, 11:37:30 am: Michelle, Hopefully when you speak to the ENT office you can request an MRI right off the bat. I would try to get one even before the initial appointment.
Push for it, what do you have to lose?

Hang in there I know you'll get to the bottom of this soon,
Liz

:)
Title: Re: Not Diagnosed yet but searching for answers...
Post by: moe on May 21, 2010, 03:04:03 pm: Hi Michelle,
Read this post and your other one too.

I ditto what others have said. You are not being annoying! If you were being annoying and we wanted to avoid you, we wouldn't open the post and read and respond ;)

But that's what the forum is for- to vent and ask questions, even if it means asking questions again and again about the same issue.
No worries.

Hopefully you are feeling better by enjoying your kids, the outdoors. Keep pestering to get that ENT appt and don't leave until you have the order for the MRI with contrast!

I blissfully ignored my subtle symptoms for many many years. I was a busy mother of 3, part time nurse/military wife/ etc....... You are on top of the game by getting to the bottom of this now, so keep that it mind.

Try some relaxation things along the way if you can- you sound like a VERY busy lady!

Big calming breaths help. In through the nose as deep as you can and then exhale slowly as if you are blowing bubbles.

I loved actually blowing bubbles with my kids when they were smaller. Something about all those floating bubbles. Think of your worries in the bubble as they float away and POP they're gone (Okay I'm such a polly anna).

Laughter therapy works wonders. Watch some funny movies with your kids. We LOVED watching those goofy Pet Ventura movies with Jim Carey. I actually love all of his movies. Some people can't stand him, but I end up gafawwing on certain parts of each movie.
Liar, Liar
Evan Almighty 2 that come to mind.

And if you must, eat chocolate! It has that ingredient (?) that helps the moods.
Hopefully you don't have an AN, so let's presume you don't until the verdict is in.
Peace,
Maureen
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on May 24, 2010, 09:43:40 am: Thanks again to everyone for your help and concern. I'm trying to be patient and keep my mind off of these troubling symptoms while I'm waiting for answers. I just want it to all go away.

Thanks again,
Michelle
Title: Re: Not Diagnosed yet but searching for answers...
Post by: nanramone on May 24, 2010, 03:17:43 pm: Michelle - I'll throw in my 2 cents worth.

I noticed then ignored all of my symptoms for years. I had intense vertigo with vomiting several times, hearing loss, tinnitus that eventually became constant, mild confusion that may or may not have been caused by this thing, and still, I didn't go to the doctor.

I had GK on 5-18. The doctor's guess is that this AN has been with me for 6-7 years, based on the history of my symptoms.

I think you are correct to seek medical attention. Things are working out well for me now, but I'm sure I should have at least had my hearing tested before it got this bad.

By the way - I used to run a lot, and several years ago I also used to experience that "thud,thud,thud" you mentioned...never knew what it was, but it was annoying!

I hope things turn out well for you...keep us informed, and please try to relax about this. I know that's easy to say, but I hope you find some peace and some answers...

Nancy
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on June 08, 2010, 01:53:51 pm: I'm just checking in and saying Hi. I'm STILL waiting on the ENT referral, but I'm much more patient now. Thanks again for all of the help and advice
Title: Re: Not Diagnosed yet but searching for answers...
Post by: nanramone on June 08, 2010, 06:39:20 pm: I'm glad you're feeling better now, and hope your problems are related to something more easy to deal with...
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on June 09, 2010, 10:49:39 am: My ENT appointment is scheduled for 8am, Monday the 21st. I hope all of these symptoms are caused by something easier to treat, too.
Title: Re: Not Diagnosed yet but searching for answers...
Post by: Lizard on June 09, 2010, 10:57:45 am: Us too, make sure you let us know either way OK, we're pulling for you :)
Liz
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on June 17, 2010, 08:51:21 am: My ENT appointment is monday morning. What should I say? What questions do I ask? I feel like I'll come across as a total psycho-hypochondriac if I ask him to check for an acoustic neuroma, because I researched online and that's where my symptoms led me. I also don't want to be brushed off and not find out what's going on. Help?
Title: Re: Not Diagnosed yet but searching for answers...
Post by: 4cm in Pacific Northwest on June 17, 2010, 10:17:59 am: Quote from: michelle on June 17, 2010, 08:51:21 am
My ENT appointment is Monday morning. What should I say? What questions do I ask? I feel like I'll come across as a total psycho-hypochondriac if I ask him to check for an acoustic neuroma, because I researched online and that's where my symptoms led me. I also don't want to be brushed off and not find out what's going on. Help?

Michelle,

BIG HUG!

Between 1998- 2002 I kept going to a doctor with symptoms. My research had led me to a â€œpossibleâ€ tumor also. I asked for an MRI and my PCP flatly refusedâ€¦ and treated me as a hypochondriac and he even had the audacity to suggest I see a â€œstress therapistâ€. His ego was apparently insulted by me (a lay person of all things!) walking in the door with printed Internet research material. (His problem! His arrogance! His male ego... Not mine)

In 2007 (age 44) I finally switched doctors. I asked for an MRI and got it. There was a whopper XXL 4cm tumor â€¦ and it was too-late-in-the game to qualify for radiation- at that size. Early diagnoses may have saved both my hearing and my face (I have some paralysis and synkenisis as a result of the surgery- being it was such a long and complicated surgery with such a XXL tumorâ€¦ and other issues that may have been avoided.)

Who cares if the doctor thinks you are a hypochondriac?!? :-\

Ask for a MRI to be done both with and without contrast die. The MRI is a small painless process that will give you piece of mind. You do not want to do as I did â€¦and go almost a decade with symptoms going by- without accurate diagnosesâ€¦ as the tumor grows to a life threatening level. Please learn from my mistakes and lack of assertion in my age 30's.

â€œIFâ€ there is a tumor it could be too late to treat without complications if you do not get one done NOW. If I had been accurately diagnosed back in 1998, when I first had symptoms and I actually went to see my doctor -we COULD have treated it when it was smaller. (In those days CIGNA required a PCP referral 1st- now they do not.)

Hold your ground and get the MRI done. Absolutely INSIST on an MRI!!!!!

Feel free to print this up and take to the doctorâ€™s office. The doctor does not want to be negligent -as my first one was.

I hope you will report back after the MRI- and you are clear of a tumor. However know that â€œifâ€ there is something on the scanâ€¦ the resources and treatments now are so much better than they were â€¦ even 3 years ago. 8)

There have been many success stories of treated people who are now back at cycling, sail boarding, surf boarding, snow boardingâ€¦ and some even back sitting on executive boards listening to othersâ€¦ with hearing aids and high tech implants.

I see you live in LA. HOUSE Ear Institute is world renown and basically in your own backyard. (Many people on this forum are from all-over-the-world and flew to LA to go there- specifically.) IF you do not need a PCP or ENT referral than simply make an appointment and go there for a hearing test â€¦and talk to a doctor about you symptoms. HEI can do an MRI right there at St. Vincentâ€™s hospital.

Here is their information.

House Ear Clinic
http://www.houseearclinic.com/

About House
http://www.houseearclinic.com/about.htm

LA office contacts
http://www.houseearclinic.com/losangeles.htm

2100 West 3rd Street
Los Angeles, CA 90057
(213) 483-9930
TDD (213) 484-2642

Office Hours:
Monday thru Friday
8 am - 5 pm

If you do not need a PCP ENT referral -just call them directly. If you do then, again print this up, and take it to your doctor and ask for a referral. (Actually replace â€œaskâ€ with â€œinsistâ€ in my last sentence.)

Be assertive and go for an appointment and a MRI.

I no longer have patience for male doctors who make women feel like they are neurotic hypochondriacs. I am sorry- but I have had to deal with one too many incompetent male chauvinist doctorsâ€¦ and I have little tolerance for those who will not treat me or send me for diagnoses referrals- when I need it done. (I have less patience for nurses, male or female, which cannot keep my childrenâ€™s medical file â€¦or mine â€¦neatly organized and accurate.)

I am a Canadian residing in the USA who was not used to simply walking out of a doctors office when not satisfied â€¦to go find another. In Canada you have NO choice. :-[ I stayed way to long with my 1st incompetent, here in USA doctor with that mind-set, and should have walked out of his office ages ago. Recently I had a doctorâ€™s office totally mess up on my childâ€™s immunization and her record chart. I set an example for my daughter and said, â€œThis is unacceptable- we are leaving.â€ >:( I took her by the hand and we walked outâ€¦ never to go back. 8) You live in the USA and have freedomâ€¦ 8) freedom to find a doctor who will listen to you, treat you with dignity (not as a hypochondriac) and get you an accurate diagnose. It is your right here- in the USA.

Stand strong and directly ask for a MRI to be done â€“ both with and without contrast die.

I pray (one of the 4 freedoms I so respect here the USA) that there is no brain booger and that if it is an ear issue -it may simply be treatable with a pharmaceutical prescription.

Your freedoms here in the USA are:
1)   Freedom of speech and expression
2)   Freedom of religion
3)   Freedom from want
4)   Freedom from fear

You need to have freedom from fear of the unknown here.

Speak you mind to your doctor â€¦and get an accurate diagnosis.

You need piece of mind. See a specialist! You live in the country that has freedom. Be thankful for thisâ€¦ and exercise your rights.

Please DO let us know the results. I hope you are not diagnosed, as one of us. However if you are you will find open arms and lots of support here. In the meantime get resultsâ€¦

â€¦ and know we are here for you.

HUGS

DHM
Title: Re: Not Diagnosed yet but searching for answers...
Post by: 4cm in Pacific Northwest on June 17, 2010, 11:08:27 am: Quote from: michelle on May 18, 2010, 10:04:52 pm
Audiologist appt. was pretty quick and uneventful. She told me moderate hearing loss in my right ear with no evidence of middle ear fluid. Referral to ENT. Now the waiting for approval for the referral and then an appt. Should be in the next few weeks. Thanks again for all the help.

-Michelle

Michelle,

I had not moderate but "Mild" hearing loss in the left ear. I had 100% word recognition in both ears. If I did not have an MRI no one would have believed I had a tumor as big as 4cm. The hearing test is just NOT enough.

Remember insist on this one thing at the ENT appointment- a MRI. It must first be done without contrast dye... then with IV the dye must be inserted so they have an accurate comparison- in the scans.

If I had had radiation in my 30's I may still have hearing and full facial function today. However because surgery was my only option, a decade of growth later in my mid 40's once it was finally diagnosed, the hearing was lost and the face damaged in the surgery process due to cranial nerve damage.

MRI .... MRI... MRI... get it done!!!!

Praying your MRI report says "NO brain booger"

Another HUG...

DHM
Title: Re: Not Diagnosed yet but searching for answers...
Post by: CHD63 on June 17, 2010, 11:58:45 am: Michelle .....

I wish you well on your visit to the ENT on Monday. Unfortunately you may not have any more answers until you have an MRI with contrast ..... as DHM said INSIST on it if the ENT does not automatically send you for one ..... you have the right, given your symptoms. My ENT sent me immediately for an MRI. (Most docs do not want to be sued for a missed diagnosis.)

It is always possible that your ENT will uncover a reason for your symptoms that are not related to an AN, but the AN should be ruled out anyway with an MRI with contrast.

Regarding questions for the doctor: basically express your concerns regarding the type of symptoms you are having and what he thinks could be causing them. If he/she brushes you off, at that point insist upon an MRI with contrast. If an AN is found on the MRI, there is an excellent list of questions to ask the doctors. Just go to the ANAUSA web site home page, Overview, Questions for Treating Physicians.

Best wishes and many prayers for a quick diagnosis.

Clarice
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on June 17, 2010, 02:37:55 pm: DHM,

First of all, thanks for sharking your story. I'm sorry that you had to go through such a run around to finally get diagnosed! Also, thanks SO much for all of the advice and support! I feel much more confident to go in there and be assertive regarding my health care. I'm such a wimp when it comes to stuff like this!

Thanks, also, for all of the useful info! I have an HMO and am required to have referrals and authorizations and whatever else for EVERYTHING, and unfortunately do not have the budget to do anything out of pocket, so I'm forced to stick to my HMOs guidelines and boundaries. It is very useful though to know about the HEI.

I am also praying for no brain booger. My biggest fear though, is that it's something "worse" than an AN. It's so scary to have four little kids and thing something debilitating could actually be wrong with me. Hopefully it's nothing!!! The first time I finally sucked it up and went into urgent care for all of this, I was so afraid they were going to tell me something had crawled in my ear and died (irrational, since the symptoms had been consistent for 6 months by then, but still.) Now though, I WISH that it would just be something that simple and they could take whatever it was out and I would be back to normal!

Clarice, thanks again for more support. I will come back and let everyone know how it all goes when/if I find something out.

-Michelle
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle d. on June 18, 2010, 07:08:30 pm: Hi Michelle :) Haven't responded but have been reading your entries and wondering how things have progressed?? Have you had an ENT look into your problems yet? Please keep us updated....I remember how terrible the waiting was...i was just telling my husband tonight that about a year ago this time, I was starting to get scared of the symptoms I was experiencing but didn't seem to get any help from doctors and I was starting to doubt myself! Fortunately, i went for a 3rd opinion in late summer last year, to the right ENT and he suspected right away, in 5 minutes, what it was and ordered an MRI which confirmed an AN. Even if yours is a different problem, you need to be vigilant about getting a different opinion if the doctor isn't listening to you....YOU know your own body better than anyone else, so keep trying. And please let us know how you're doing, ok? Take care....~michelle d.~
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on June 18, 2010, 10:19:28 pm: Thanks Michelle!

I saw in another post that you're from Rochester, New York. That's where my mother-in-law was born and raised. :-)

Thanks for the advice and support. My ENT appt. is scheduled for Monday morning. I will post about how it goes.

-Michelle
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on June 21, 2010, 03:31:13 pm: Saw ENT today. He prescribed 3 weeks of prednisone for something called "Hydrops." I have no idea what that is and do not have time to research right now, as my little one is ill.

I go back on July 12th, and if the steroids have not helped, we "go from there." I was a wuss and didn't have the guts to come right out and ask for the MRI. :-(
Title: Re: Not Diagnosed yet but searching for answers...
Post by: moe on June 21, 2010, 07:53:54 pm: Hi Michelle,
I can't imagine having 4 little ones and all this stuff going on.
Wikipedia says this:

In general, hydrops (pronounced /ˈhaɪdrɒps/ "HI-drops") is another name for edema.

* Endolymphatic hydrops - a pathological feature present in MÃ©niÃ¨re's disease.
and another google site from E Med;

Background

Endolymphatic hydrops by definition refers to increased hydraulic pressure within the inner ear's endolymphatic system. This pressure accumulation causes the following tetrad of symptoms: (1) fluctuating hearing loss (sometimes good or bad); (2) episodic vertigo (can be violent); (3) tinnitus or ringing in the ears (usually low-tone roaring); and (4) aural fullness (pressure, discomfort, fullness sensation in the ears).

So see how those steroids work,but still insist on the MRI with contrast! We are your subconscious! You're not a wuss, you have your hands full, but we are all of the same consensus that it must be done. Better to know now IF it is something.

Hang in there,
Maureen
Title: Re: Not Diagnosed yet but searching for answers...
Post by: Keeping Up on June 21, 2010, 08:23:34 pm: Hey Michelle, mom of four

I like finding moms of four ... we aren't that common. I too understand how your own health priorities take the back seat when a little one is ill. (My just three year old is now the proud owner of a WATERPROOF fibreglass cast for his more than likely broken foot ... no sign of break on the xray but a very bruised/sore foot.) Your world stops for them.

Ask for the MRI. You are not a wuss.

Deal with the next step after that --> for someone with a very small, asymptomatic tumor (except for hearing loss and that gosh darn ringing!), it is very easy to say.

Welcome, but hope you don't have to stay!

Ann
Title: Re: Not Diagnosed yet but searching for answers...
Post by: opp2 on June 21, 2010, 08:37:46 pm: I know how hard it can be to ask for the MRI but I can tell you if I hadn't asked for one who knows when we would have found the tumour. Sometimes writing it down on a piece of paper and taking it with you can help. Then if you can't actually say the words just hand the Doc the paper. Whatever it takes Kid. Hang in there.

Nikki
Title: Re: Not Diagnosed yet but searching for answers...
Post by: kenneth_k on June 22, 2010, 07:52:57 am: Hi Michelle (and Nikki).

It is actually a very good idea to write it down and bringt it with you next time you see your doctor.
I strongly encourage you not to give up and keep on going.
Get the MRI and get it out of your system. It is a lot better to get a false positive result than speculating about disease for a lengthy period of time.

Kenneth
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on June 22, 2010, 10:48:08 am: Thanks again everyone. That description of Hydrops does sound a lot like what I've been dealing with. Maybe (hopefully) that's all it is?

Part of me wants to just say, "Okay, that's what I have" and take the steroids and hope it all goes away.

Another part of me thinks that weight gain and mood swings from three weeks of steroids doesn't sound like much fun IF it's not the hydrops thing. I kind of want to call the Dr and leave a message requesting a referral for an MRI before taking the prednisone. I'm not sure.
Title: Re: Not Diagnosed yet but searching for answers...
Post by: leapyrtwins on June 22, 2010, 12:06:07 pm: You're only slated to be on the steroids for a short period of time, so I'd try them and see if they work. Just my opiinion here.

Hopefully they'll solve the problem. If not, I'd insist on an MRI since that's the only definitive way to rule out (or diagnose) an acoustic neuroma.

Good luck,

Jan
Title: Re: Not Diagnosed yet but searching for answers...
Post by: Jim Scott on June 22, 2010, 02:42:48 pm: Michelle ~

Although your doctor is making a clinical observation (an educated guess) about your symptoms being caused by edema, the steroids are, as Jan suggested, worth trying. He probably won't order an MRI unless he sees that his initial diagnoses is incorrect. Insurance companies don't like paying the high cost of an MRI if there are other possibilities that might determine the cause of your symptoms. If the steroids actually help, you'll have your answer.

Jim
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on June 22, 2010, 03:44:12 pm: You're both right. Thank you.
Title: Re: Not Diagnosed yet but searching for answers...
Post by: mk on June 22, 2010, 07:18:56 pm: Hmmm, based on my experience, even if you have an AN, steroids can help with tumor related edema, therefore help the symptoms to subside. So IMHO, even if the steroids help (which they most probably will), this doesn't rule out an AN. Also a tip for steroids: take them in the morning. That way you get to burn all the energy that comes with the steroids during the day, and might still get some decent sleep at night.

Marianna
Title: Re: Not Diagnosed yet but searching for answers...
Post by: 4cm in Pacific Northwest on June 24, 2010, 11:10:13 am: Quote from: mk on June 22, 2010, 07:18:56 pm

Hmmm, based on my experience, even if you have an AN, steroids can help with tumor related edema, therefore help the symptoms to subside. So IMHO, even if the steroids help (which they most probably will), this doesn't rule out an AN. Also a tip for steroids: take them in the morning. That way you get to burn all the energy that comes with the steroids during the day, and might still get some decent sleep at night.

Marianna

Marianna is SOOOH right here. I did the steroid thing and the symptoms did subside... then almost a decade later we DID find a whopper tumor at 4cm. (way too late to treat with radiation) Looks like my DR was very wrong and should have done a MRI from the start. You can repeat my mistakes ... or learn from them.

DHM
Title: Re: Not Diagnosed yet but searching for answers...
Post by: Lizard on June 24, 2010, 05:38:41 pm: Michelle,
You have to ask for the MRI. An idea is to call the ENT and ask to be sent for an MRI. Hopefully the Dr will call you back to discuss, I find its easier to be honest and speak my mind to the Dr over the phone...they can be intimidating in person...just my 2 cents!
Hang in there,
Liz

PS hope your little one is feeling better!
Title: Re: Not Diagnosed yet but searching for answers...
Post by: anissa on June 24, 2010, 07:25:53 pm: Hi! Also a mom of four here! Mine are 6, 6, 4, and 2. I agree with pp's in try the steroids but def call the dr andask for the MRI. After 3 appts I told my dr I thought I had a brain tumor and he was speechless that I would make that assumption. I feltlike a total hypochondriac but it unfortunately turned out I was right. Best wishes and I'm sending you strength!
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on June 29, 2010, 08:19:37 am: Thanks everyone! Hi fellow moms-of-4s! :-) It's true, there's not many of us. I find especially not here in LA!

Well, I've been on the 60 mg. of prednisone now for 1 week. Would I be noticing any difference yet? I still feel about the same. My ear is still 100% full, un "pop-able", and muffled. The "thud, thud, thud" when I walk, jump, anything, is still completely there. The only thing I've actually noticed is less of the pulsating tinnitus when I'm just sitting or laying down. Really, the most annoying thing right now is that grinding/squishing sensation in the back/side of my head up through my right ear when I turn my head, look down, or even roll my eyes. :( I'm also having painful headaches centered on my right, lower side. No fun.

The good news is that I'm not as scared or focused on all of this. Yes, it's on the back of my mind most of the time simply because the physical symptoms are constantly annoying me, but I feel more comfortable with waiting it out to find out.

I am planning on calling my Dr. and asking him to schedule me for an MRI with contrast before my next appt. (July 12th.) I want it done either way, to rule out the possibilities.

Thanks for all the advice!

-Michelle
Title: Re: Not Diagnosed yet but searching for answers...
Post by: moe on June 30, 2010, 09:39:43 am: Michelle,
Glad to see a positive, and relaxed attitude. There really is nothing that can be done until the MRI shows what is going on, so just continue plugging along like you are doing, with your busy life, and it'll all come around.
You'll see. ;)
Did the doc ever tell you to take antihistamine/decongestant type medicine? I would imagine that would be a no brainer..
Maureen
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on June 30, 2010, 10:43:23 am: Actually, I was taking sudafed daily in an effort to help the clogged/pressure feeling. The ENT told me to STOP. He said, "You don't have allergies, you don't have sinus problems, taking a decongestant will do nothing." So, I guess that's that. :)
Title: Re: Not Diagnosed yet but searching for answers...
Post by: anissa on June 30, 2010, 02:44:57 pm: My brother had similar symptoms and the Dr. prescribed Lipoflavanoid which is supposed to increase blood flow to the ear. It helps him with fullness and tinnitus, they think he has Mineare's Disease.
Title: Re: Not Diagnosed yet but searching for answers...
Post by: moe on July 02, 2010, 12:31:07 am: Quote from: michelle on June 30, 2010, 10:43:23 am
Actually, I was taking sudafed daily in an effort to help the clogged/pressure feeling. The ENT told me to STOP. He said, "You don't have allergies, you don't have sinus problems, taking a decongestant will do nothing." So, I guess that's that. :)

Doctors think they know everything, don't they.... he could have easily said you can take them if you want but they may not help.....Just my 2 cents worth ;)
Maureen
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on July 12, 2010, 01:09:10 pm: Went to my follow-up today. The steroids have not helped. The ENT prescribed a diuretic and ordered an MRI with contrast to rule out an Acoustic Neuroma. I should be getting a call tomorrow or the next day for my appt. time. I will let you all know how it turns out. I'm praying, crossing fingers, and whatever else I possibly can that I DO NOT have an AN, and that the diuretic plus steroids helps whatever is causing this. It will be nice to finally know one way or the other.

Thanks again for all the help and support.
Title: Re: Not Diagnosed yet but searching for answers...
Post by: Jim Scott on July 12, 2010, 01:21:08 pm: Michelle ~

Our thoughts and prayers will be with you as you approach your MRI date. We share your hope that you don't have an acoustic neuroma.

Jim
Title: Re: Not Diagnosed yet but searching for answers...
Post by: Lizard on July 12, 2010, 02:44:34 pm: Michelle,
You will be in my thoughts and prayers until you FINALLY come to a conclusion...hopefully no AN, but if you do have one after all, where here :)

Hang in there!
Liz
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on July 16, 2010, 10:14:03 am: My MRI is scheduled for Monday morning at 9am. I'm nervous. :(
Title: Re: Not Diagnosed yet but searching for answers...
Post by: nanramone on July 16, 2010, 10:58:33 am: michelle - I'm glad to know you're following through with all of this in spite of the stress - keep us updated.
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on July 16, 2010, 02:17:40 pm: Thanks for the encouragement. Of course I just hope, hope, hope that they find NOTHING. I can live with these symptoms forever if I know that I don't have some kind of brain tumor causing them...My worst fear is that it's something worse than an AN. I know that's not likely. I will be thankful to finally stop wondering.
Title: Re: Not Diagnosed yet but searching for answers...
Post by: nanramone on July 16, 2010, 09:24:34 pm: I know this is a very difficult time. Having made the MRI appointment, see if you can find a way to relax throughout this weekend. It's summertime! Have some fun, and you will find out about your circumstances later, ok?

Just find at least a few moments of peace, so you can relax. It's important.
Title: Re: Not Diagnosed yet but searching for answers...
Post by: jazzfunkanne on July 17, 2010, 03:30:52 pm: hi michelle, ive just started reading your posts , good luck for monday and let us know how it goes, about the sudfed i used it for years before they found out i had a AN, so doctors dont know it all. x
Title: Re: Not Diagnosed yet but searching for answers...
Post by: suboo73 on July 18, 2010, 06:11:30 am: Michelle,

Hi and a belated welcome to the Forum!
I originally came to this site, as my sister (aka BigSister) had been diagnosed (quickly) with an AN.
Me - i went to 2 different ENTS over the course of 12+ years with inconclusive audiogram results, so finally gave up on going - UNTIL my sister's diagnosis.
I said 'What? I have been describing the same symptoms all this time!'
So i went to a major medical center, had another audiogram and then had same 'inconclusive' results. At this point, i said, "Look, my sister has an AN and i similar symptoms... I would like an MRI for my peace of mind." Doc said, no problem, and the rest is history.

In fact, i had the MRI at my local hospital and after waiting for a week, called and got a copy of the report myself.
I was alone, my husband on a business trip. Believe it or not, i was relieved to read the report - it gave me some answers instead of more questions.

But my point here is this: I believe knowledge is power and wanted to know what was going on.

Now you have the opportunity to finally get some answers.

I wish you ALL THE BEST tomorrow.
My thoughts and prayers are with you.

Sincerely,

Sue

PS. Possible tips for MRI - if you have not had an MRI before, they can be loud/annoying. The first one i had done, they didn't have headsets for music (i don't like them anyway, i found out.) The technician put towels around my ears and i couldn't move my head. My sister suggested closing my eyes (i am somewhat claustraphobic) I was so determined to have the test done, i closed my eyes and tried to focus elsewhere. It worked and i got thru the test. Have had 2 more since, no problems.

Will be thinking of you tomorrow. Please let us know how things turn out. Take care.
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on July 18, 2010, 12:38:44 pm: Thanks all!

I am not worried about the actual test. I do not have a problem with claustrophobia. I had an MRI as a young teen for scoliosis, and remember just being more bored than anything as it took over an hour, and was difficult at that age to keep still. Now, with 4 kids at home, I'm actually sort of looking forward to being forced to just lay there and do nothing for a little while with no one hanging on me saying, "Mommy, mommy, mommy!" Hehe.

I do feel relieved that I will have an answer soon about whether or not "something" is in there. Hopefully it's NOT, but if there is I'm thankful that I've found this kind, supportive group. You have all been so great, and I'm not even an official member of your "club!" (And, NO offense, but I hope I don't have to join!) ;-)

Thanks again,
Michelle
Title: Re: Not Diagnosed yet but searching for answers...
Post by: moe on July 18, 2010, 07:13:16 pm: Quote from: michelle on July 18, 2010, 12:38:44 pm

, I'm actually sort of looking forward to being forced to just lay there and do nothing for a little while with no one hanging on me saying, "Mommy, mommy, mommy!" Hehe.

So true! I was soo tired prior to my diagnoses, and just plain didn't feel "good" or "right" so I dozed right through mine! Enjoy your time alone :)
Maureen
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on July 19, 2010, 08:24:26 am: I leave in 1 hour for my MRI. I'm nervous about the results.

I've seen people mentioning receiving a cd of their MRI. How does one obtain that? Do you just ask? Do you have to bring your own cd?
Title: Re: Not Diagnosed yet but searching for answers...
Post by: sgerrard on July 19, 2010, 09:03:48 am: Michelle,

I just asked, and did not need to bring my own CD. I hope that works for you too. Best wishes on the MRI, and relax.

Steve
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on July 19, 2010, 11:23:41 am: Well, I'm already back from the MRI. I decided not to even ask for a cd. I will update when I hear the results from my ENT.

Thanks again for all the help.
Title: Re: Not Diagnosed yet but searching for answers...
Post by: Lizard on July 19, 2010, 02:17:19 pm: Michelle,
Well hopefully the Dr won't take too long to get back in touch with you.
Hang in there,
Liz
Title: Re: Not Diagnosed yet but searching for answers...
Post by: michelle on July 20, 2010, 06:09:09 pm: I just picked up my report and CD from the imaging center. From what I can tell on the report, it was NORMAL!!!!

Thank you so much, everyone, for being so kind and caring. Seriously! And for putting up with my neuroses.

I wish you all the best in your journeys. Please feel free to reference my situation to those undiagnosed people who are led here by their symptoms. You can have unilateral hearing loss, fullness, tinnitus, headaches, etc...and still end up NOT having an A.N.

My prayers will be with all of you going through this battle. My eyes have been opened up to this condition that I never even knew existed!

All the best, God Bless, and THANK YOU for keeping me sane during the waiting period.

-Michelle
Title: Re: Not Diagnosed yet but searching for answers...
Post by: nanramone on July 20, 2010, 08:03:18 pm: Michelle,

I hope you read things correctly! Yippee for you, and I hope you find the reason and a solution for your problems.

Nancy
Title: Re: Not Diagnosed yet but searching for answers...
Post by: CHD63 on July 20, 2010, 09:23:27 pm: Michelle .....

So glad it appears your MRI report is being read as normal. Do let us know what the doctors think has been causing your symptoms. It still might be helpful to others walking this journey.

Best thoughts and prayers for answers to your situation and appropriate treatment.

Clarice
Title: Re: Not Diagnosed yet but searching for answers...
Post by: moe on July 20, 2010, 10:37:53 pm: Great news that you have no AN, but I do hope they find out was is causing your symptoms and that you get relief from them.
Best wishes,
Maureen
Title: Re: Not Diagnosed yet but searching for answers...
Post by: Lizard on July 21, 2010, 11:49:45 am: Michelle,
Congrats to you on your normal MRI...I'm relieved for you :)
Take care,
Liz
Title: Re: Not Diagnosed yet but searching for answers...
Post by: Jim Scott on July 21, 2010, 01:07:41 pm: Hi, Michelle ~

Allow me to add my congratulations on your 'normal' MRI report. I'm always happy to learn that someone with an acoustic neuroma diagnosis hanging over their head has been relieved of that threat. I do hope the cause of your symptoms can be found and addressed, soon. Thanks for your prayers and kind words for our membership, too. We wish you all the best. :)

Jim
Title: Re: Not Diagnosed yet but searching for answers...
Post by: leapyrtwins on July 23, 2010, 10:36:27 pm: Michelle -

I'm happy to hear that you don't have an acoustic neuroma.

I hope you are able to get some answers about what is causing your symptoms very soon.

Jan