ANA Discussion Forum

Post-Treatment => Post-Treatment => Topic started by: ALICAM on February 22, 2010, 10:37:23 am

Title: 2 YEAR check up and sooo confused !!
Post by: ALICAM on February 22, 2010, 10:37:23 am
 Hi guys
Sorry I haven't posted in a while ( still reading though!).
I had my 2 year check up in Manchester and although I havent had the actual regrowth size, the little blighter is still there.,attached to my carotid artery. It kind of freaked me out as I hadnt actually asked much about carotid artery and it's purpose.... and his words were ' well thats what keeps the brain alive' !!! AAAAHHHHHH not really calming but he assures me that the regrowth is not at a stage yet where we need to do anything.
What I wasn't expecting was that he suggested I get a BAHA.Of course I had never heard of this and he explained and then told me to go home and think about it and do a trial......still not sure what to do about that....any advice ??Does it really make you believe that you can hear in both ears? Maybe I have got used to the deafness and hearing might be weirder ??
So, also he thinks I need another vocal chord op to try and improve my voice, as the first op done here in Ireland hasn't helped that much. Again, not sure whether I should do this or not.... and finally, although important to me, he has suggested that I get a brow lift to try and give more symmetry to my face and improve the look of the facial paralysis. Has anyone had this done ? Of course, being a woman and wanting to look as normal as possible, I think I may try this surgey.......is that too vain, to want to get surgery for my face but not for my voice ?
I have been spending weeks trying to decide what to do but would love to hear from you guys, as its hard to get a real answer from family who just don't want me to have any more surgery.
Title: Re: 2 YEAR check up and sooo confused !!
Post by: nancyann on February 22, 2010, 12:48:51 pm
Hi Alicam:  I also have facial paraylsis.  I was too scared to do the 7/12 jump (+ I was 50yo @ the time), so I opted for the T3 = Temporalis Tendon Transfer.  It lifted my face,  made speaking easier,  & at the time I had that done they had to lift the other side for symmetry - so I had a face lift, brow lift & I am sooo happy with the results.  Google the name of the surgery, I think there's a doctor in England who does this surgery - I remember reading about a lady there who had it done & she looked wonderful afterwards.  No, you are NOT being vain - no one wants to walk around with an a-symmetric face & all the problems that go with it.  I still have issues pronouncing some letters, but not nearly as bad as before the surgery.   I have partial vocal chord paralysis,  so I just try not to speak too much (I have to at work, but give it lots of rest @ home - thank God for the internet !).
Hope this helps.  Best wishes,  Always good thoughts,   Nancy
ps:  pictures of my before/after are under Facial Issues:  Post Temporalis Tendon Transfer (right now I think it's pg. 4 but that changes all the time as other subjects are added).
Title: Re: 2 YEAR check up and sooo confused !!
Post by: ALICAM on February 23, 2010, 11:14:14 am
Nancy,
Thanks so much for replying ! I read in one of your posts that you had the eye lid op too. I was thinking of that along with the brow lift as my right eye, that is more closed would really benefit from this and of course I believe improve the symmetry when the other eye is done. I'm going to look up the T3 op now, but it seems like a really big op !!
Thanks again, I really appreciate the reply !
Alison
Title: Re: 2 YEAR check up and sooo confused !!
Post by: nancyann on February 23, 2010, 11:53:06 am
Alicam:  Looking back I wish I didn't get the lower non paralyzed side eyelid done b/c now it's flat & my AN eye has a slight bump on the lower lid from the surgeries, so they're less symmetrical (oh well, live & learn).  Yes,  I had the extreme makeover ! !
The T3 was tougher on me than the AN surgery:  it was a 10 hour surgery & b/c I had such extensive work done, I was sooo swollen (my poor mom - 82 yo at the time said immediately post op all she could see was the tip of my nose!).  I could only drink from a straw the 1st week (had to take my meds that way too).  But if I had to do it all again I would in a heartbeat (except for the lower non-AN eyelid !).
Always good thoughts,  Nancy