ANA Discussion Forum
AN Community => AN Community => Topic started by: ppearl214 on February 13, 2010, 06:58:06 am
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well, Accuray (manufacturer of Cyberknife) flew to Boston to do this of me.... and a few others that do not have AN's but had CK done..... OH, do I need a facelift, a nose job and need to color my hair.
So, for your viewing pleasure......
*cringes as types the Copy/Paste command*
http://www.youtube.com/watch?v=GJJh3-j8eN4
Just a side note.... as we know, "individual results may vary...", but this is just my AN CK story........ and sending wellness wishes to all.
Phyl
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Phyl,
Tried to watch but forgot I am on dial up (there is no DSL where I live!!). Will have to wait until I can go to work. Really wanted to see it!
Happy Trails,
Lynn
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Lynn, no worries.... :) Hang in there, m'dear! :)
Phyl
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Hi Phyl,
I posted my comment right on the sight. Thanks so much!
Sue
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Phyl, awesome job. Many people will benefit from this. Btw, you're a natural on camera and you look great.
Patrick
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OH, do I need a facelift, a nose job and need to color my hair.
Phyl
Oh Piffle Pearly Whites... You look fabulous daaarling. Fabulous! All those facial nerves are firing just fine... I see blink action of the eyelids in perfect unison... Baby you look great!!! ... What so many would give for that full function... and to symmetrically show off pearly whites (I would be so lucky!)
You are active, confident to be on camera for the entire web to see... don't change a thing Pearly Girl... We WUVS ya just the way YA AW!!! ;D
DHM
BTW Where did them bUUtiFULLL flowers come from? The bloke? :) Or some news media admirer? ;) (Oh lets start a wild rumor ;) :D )
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Phyl -
from the bottom of my heart, I have to thank you for being such a great advocate for people with acoustic neuromas.
As you know, I recently made a very tough decision in my AN Journey and I've doubted myself and my decision ever since I made it.
But listening to you just now made me realize that I made the very best decision I could have made and I'm very proud to join you on this advocacy journey.
Thanks for all you do. As Patrick said, you're a natural on camera and you look great; truly.
Today, even more than other days, I'm proud to say I know you. Those of us with ANs are lucky to have you.
Keep up the great work. You rawk! ;D
Jan
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GREAT job, Phyl!!
K ;D
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Awesome job Phyl.
And the flowers ( of what we could see) look great as well.
And Phyl, ma dear, its whats inside that counts, not the outside
JO
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WAY COOL, PHYL!
Wow, you are a natural in front of the camera, you didn't even need teleprompters!
I was so touched by this video. What a great thread for those looking at CK- Invaluable :)
Thanks for sharing about your sister. This truly is an inspirational video.
Thanks again for sharing.
Goosebumps :) I got goosebumps :)
Maureen
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Phly, that was very moving! If I was to do anything CK would this will be at top of my list. Thankyou very much for all you have been to so many people here. Mickey
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Dearest Phyl,
How eloquent you are on You Tube and what a wonderful dynamic message!!! Thank-you for your inspiration and dedication to all of us!
Your honesty and sincerity comes across so well! So glad you had great results and I pray that others will also!
Blessings to you,
Jackie from Beaverton
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Phyl ~
Well done! You look fine and delivered a cogent message that will surely help those contemplating Cyberknife treatment.
So, when do you get your own TV talk show? ;)
Jim
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So, when do you get your own TV talk show? ;)
There already is a Dr. Phil Talk Show :)
Thanks all for the kind words. For those that know me well.... well, it was just me being me (for BoSox fans, much like Manny being Manny but not as outrageous!)
My hope in doing this video is to help others along the way in their AN journey, regardless of what decision choice is made (as everyone here knows, I cheer on everyone!).
Jan, as a side note to you.... well, I think you know how I feel, esp. about what you wrote... and I am VERY blessed as well to have you (and so many others) along side as well! :-* You rawk as well! ;) :-*
Thanks again all...
Phyl
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Wow, we know a YouTube Star! Really a great job, Phyl - I'm not surprised a bit that you could do so well in front of a camera. You always do us and the ANA proud - thanks!
Cindy
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What can I say that hasn't already been said without repeating?.....
:-* to you my dear!
I look back on my days of discovery and education regarding treatment with amazement at how far I've come with all the obstacles. Although my choice was surgery I too felt, in the pit of my soul, the same--I made the right choice.
Love and Gratitude,
Karen
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Loved it Phyl ! ! Wish I had done my homework..... I never knew you had a beautiful dimple on your right side ! Always good thoughts, Nancy
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Loved it I wish I could have seen this before my decision to have surgery I definitely would have chosen the Cyberknife.
Best Wishes,
Pat
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Nicely done, Phyl. You come across as personable and genuine, yet earnest and serious, all at the same time.
Plus you kept the bullwhip hidden. :D
Steve
PS: Happy Birthday!
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Another celebrity in our midst! ;D
Phyl, you look stunning, beautiful, awesome...all those good things and more!
Your hard work and dedication is truly appreciated by so many and now it will be able to benefit so many more.
And Steve is right...you can't see the bullwhip or the cattle prod at all! Of course, I didn't notice a halo either. :D
Thanks for all you do!
Lori
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Phyl, I hope you had a wonderful birthday! You looked super on the video. I could not hear it as my sound is not working since I got a new computer monitor even though all is plugged in right. No one with computer knowledge has been here to check it out yet so hope will know in time. But you looked darn good anyway!
Cheryl R
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A belated valentine birthday wish to our celebrity!! You were informative, sincere, dedicated. (I don't expect anything less from you)
Keep up the amazing work you do, you have touched so many people and now even more so with your beautiful debut on youtube. Thank you!
Love to you and the bloke,
Jane
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Happy Birthday, Phyl....I'm always a day late and a dollar short! I hope it was a great one filled with sunshine and rainbows and warmer weather! I'm waiting for your talk show...after your youtube performance I'm sure a smart station will give you a contract......soon.
Huggles,
Brenda
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And the Oscar goes to........the envelope please............
PHYL!!
Great job.
Sue in Vancouver, USA
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On ya Phyl,
This link should be compulsory for all newbies and wait and watchers to watch.
Well done as always. As i have told you before, I'm richer for knowing you.
cheers
Laz
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Hiya Phyl...
Congrats from your old pal in the UK...your video presentation was very professional and delivered with the warmth, sincerety and compassion for which you are rightly renowned and revered by all those, including me, who have benefitted from your wisdom, knowledge and humour in furtherance of our individual battles with the AN condition. You are truly inspirational and your video should be mandatory viewing by all those anxious folk who are newly diagnosed and who are in desperate need of impartial reassurance and guidance from someone who has successfully completed the full AN journey from A to Z.
Well done girl!
Derek
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Phyl .....
You were wonderful on the video. All the right things said and well done.
Clarice
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Great job, m'dear Phyllis!! But as your captain, I have to say you were woefully out of uniform!! No pirate hat? At least the Jolly Roger eyepatch?? I guess the Cyberknife people would not want to know that their gizmo makes you think you are an 18th century swashbucklin' wench!!
As others have said, this is going to be soooo beneficial to newly diagnosed people with small tumors. Wish I had had that info before I let 'em at me with the melon-baller which has screwed up my head for life. However 7 years ago Cyberknife was not that well known--amazing the progress that has been made in such a short time. Mazel Tov!!
Hugglezzzzzzz
Capt Deb(http://i235.photobucket.com/albums/ee60/Captdeb_photos/emoticon___pirate_by_anya1916.gif)
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thanks all for the kind words.... I still think I need a facelift and should have been in my PBW garb to give the full affect of my role around here (as the Cursed Cruise Director of the PBW), but...... had to look the part! ;) Hoping the video does help shed light on AN journeys and I appreciate all the kind words (and the bday wishes....).
Thanks again all!
Phyl
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YOU GO GIRL !! 8)
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Phyl,
Your a star can I have your autograph?
Great job!!!
LisaP ;D
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Phyl,
Finnally got to watch the video!! Great job. You are truly a star!!!
Happy Trails,
Lynn
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thanks all... and Lisa, do not believe my autograph is worth much... but will give you hugglez at next brunch :)
Phyl
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Hey, Phyl
Finally got to see your video debut!
You are marvelous, of course! And, I agree with all - a great patient advocate, now and forever!
Elaine
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Hey, Phyl
Finally got to see your video debut!
You are marvelous, of course! And, I agree with all - a great patient advocate, now and forever!
Elaine
... and I did it with the aid of chocolate..... nice chocolate chip cannoli's were there at the time of taping! :)
Phyl
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... and I did it with the aid of chocolate..... nice chocolate chip cannoli's were there at the time of taping!
Oh, boy ... a bit of drooling going on here!
Now that you're a star, you can order lots of chocolate delivered to your next taping! (Need company?)
e
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with all the glowing comments I am going to have to make a trip to town to go to library and check it out ... dial up just too slow ...
looking forward to it ...
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thanks again all..... if it helps at least one person, then... that is all that matters.....
Phyl
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Lots of good thoughts on your YouTube. Your posts were some of the ones that helped me move toward considering the option of gamma knife...and am so glad I did finally choose that option. It was worth all the agonizing, question asking, list making, researching, talking to docs, etc. Am also, so glad you were there for those of us who were scared newbies. And...glad you are still here, as a matter of fact!