ANA Discussion Forum
AN Community => AN Community => Topic started by: Cheryl R on February 11, 2010, 11:22:05 am
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Is there an AN group on Facebook or is just the various forumites who are there. I am but don't comment much. I think it has been mentioned before but can't find it. Just wondering.
Cheryl R
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there is an AN group..but I think alot of us just add friends from here.
JO
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Just search vestibular schwannoma. There are three groups. I went there a lot in the beginning, but rarely now. Joe Bloggs is a mod on one of the three.
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There is one... saw it recently...
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I'm on there Cheryl and there is a group with over 800 members.
Anne Marie
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Cheryl, I'm on there too and before you could just search Acoustic Neuroma or the Vestibular Schwannoma. BUT, since FB has changed, I can't seem to search very well.
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Here is a link to one of the groups on Facebook:
http://www.facebook.com/group.php?gid=8190517727
Steve
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http://www.facebook.com/group.php?gid=78633792319#!/group.php?v=wall&gid=78633792319
Hopefully that works, it is another one on Facebook. ;)
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Thanks, Steve. I am on there now. Cheryl R
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No longer on FB... my profile/acct was hacked... then rehacked.. then rehacked again. I gave up. If you all talk about me out there, pls be kind. I'm a tender soul. ;D
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Oh, Phyl.....would we ever talk about you behind your back? :-X Nah, we'll just say it right to ya!
Lori
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Oh, Phyl.....would we ever talk about you behind your back? :-X Nah, we'll just say it right to ya!
Lori
Oh, I am SO gonna play frisbee toss to the dog with your halo! ;) :)
xo
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I'm on facebook. I'm in the AN group and I should be easy to find because I have the same picture I do here. :-)
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I'm not on Facebook - although Lori and Kay are; there always has to be one "odd" one in the "family" LOL
I am on the Cochlear Community (frequently) and the BUSK site (on occasion). They're both great places for those thinking about a BAHA; and for those who have them.
Jan
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Phyl-
I wondered why I was getting all those weird invited from you!
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Phyl-
I wondered why I was getting all those weird invited from you!
you weren't the only one noting this to me..... the "hacker" flooded you all with invites... t'was not my fault... FB has done nothing to assist me with this (after numerous emails to them to fix it/delete my profile). They noted for me to "change your password" and told me to contact this dept or that dept (when I followed their link for "report if your account has been hacked"). Go figure.....
Phyl
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Phy, you ARE actually on FB! Watched your video from YouTube posted there! Great video by the way!
(it was you, right??) :)
Denise
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No longer on FB... my profile/acct was hacked... then rehacked.. then rehacked again. I gave up. If you all talk about me out there, pls be kind. I'm a tender soul. ;D
Since you aren't on FB anymore, I wanted you to know that the "I bet the redsox will get 100,000 fans before the yankees do" group kicked the yankees bootey!
For everyone else...Looking for me on facebook? http://www.facebook.com/EJTampa (http://www.facebook.com/EJTampa) Send me a friend request and put in the message, "AN friend".
Ernie
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No longer on FB... my profile/acct was hacked... then rehacked.. then rehacked again. I gave up. If you all talk about me out there, pls be kind. I'm a tender soul. ;D
Since you aren't on FB anymore, I wanted you to know that the "I bet the redsox will get 100,000 fans before the yankees do" group kicked the yankees bootey!
Was on the "Redsox" fanpage on FB before I got hacked, so I should be counted in those numbers... somewhere... since FB will not "delete" my acct.... :)
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FB has become a hacker heaven ... I'm on there a lot but I never click on any user posted links... especially the "tiny" links where you can't tell where you end up ... they are ALL bad !
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Hi Joef: Hope all is well by you. I just joined fb 2 weeks ago & am still learning the lingo (with computers too). Anyway, what do you mean by 'user posted links', etc: I didn't understand what you just wrote ! Thanks, Nancy
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you can look at http://tiny.cc/example.php for help on tink links.
It short .. if you see a post like:
You got to check out this video! http://tiny.cc/NoRy6
dont click on it!! Even if its your best friend.... your account will be hacked or worse ... this is a way to hide where links really go by using this tiny links... so your best to NEVER NEVER EVER click on these....
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FB has become a hacker heaven ... I'm on there a lot but I never click on any user posted links... especially the "tiny" links where you can't tell where you end up ... they are ALL bad !
hmmmmm... haven't clicked on links as they scare the heck out of me... and usually iggy (ignore) invites and such on FB. Not sure what happened but... they got me... and I'm not given in to them.... I'll just take my harrassing ways elsewhere! :o ::) ;D :)
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Thanks for the fb education Joe ! ! Always good thoughts, Nancy
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I'm not 'on' Facebook because (a) I don't have time for it and, (b) I don't think I have much to share that anyone would be interested in. Also, I like my privacy and the hacking problem is a hassle I don't need. However, the family is represented by my wife, Tina and my adult son, Chris who both have Facebook accounts. Tina is 'on' the Facebook site daily, Chris, less often, but both tell me they have quite a few 'friends'. I have quite a few friends right here and prefer to leave it at that. Now that I know about the Facebook hacking issue (thanks, Joe) I'll warn my wife and son but I'll continue to resolutely resist what seems to be the inexplicable lure of the Facebook website.
Jim
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Thanks, Joe for the info - I will keep my eyes out for "tiny" stuff!!!
Nancy - Let's find each other on there!! ;)
K ;D
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I'm with you, Jim.
No FB for me - or my kids; the parental controls in my house block them from it.
Jan