ANA Discussion Forum

Post-Treatment => Post-Treatment => Topic started by: stevecms on January 12, 2010, 05:50:53 pm

Title: Trying to forget.
Post by: stevecms on January 12, 2010, 05:50:53 pm

Hi,i know there are plenty of people worse off but when do you start to get used to this.I think its a mix of being ssd but also my ear since op now pulsates.Spoke to doc who said its where they removed some bone,no idea why they didnt put it back.But everytime i strain to lift etc the scar area feels tight,sorry to moan on a bit. :(

Title: Re: Trying to forget.
Post by: cin605 on January 12, 2010, 06:18:53 pm

Everyones diff.....You are still early out.....I still get the pulsating n pain when ever i strain.....1 1/2 years out. ::)

Title: Re: Trying to forget.
Post by: lori67 on January 13, 2010, 03:05:37 pm

Hi Steve.

Don't worry about moaning - we don't mind.  Everyone needs to vent every now and then.

Like cin said, you're still early in your recovery and you had a really big AN!  Give yourself some time to heal and try not to be too hard on yourself.

I never had the pulsating ear, but it did take me a while to adjust to the SSD.  When I finally accepted the fact that is was going to happen when it was good and ready to happen and not when I wanted it to happen, I was able to relax a bit and let my body be in charge.  I guess I kinda figured it was going to be in charge anyway, so why fight it?

Lori

Title: Re: Trying to forget.
Post by: Jim Scott on January 13, 2010, 04:53:03 pm

Steve ~

These forums are for the help and support of AN patients.  We know what you're dealing with and if you can't vent here, then where?   Besides, things usually do improve over time. 

Jim

Title: Re: Trying to forget.
Post by: Nickittynic on January 14, 2010, 07:49:04 am

Stevecm,
I had surgery just a little while after you (yours was on my birthday!) and I'm actually starting to feel a bit "normal" now. I don't know if we ever 'forget', though. I still have these scary flashbacks to being in the hospital. :( And while I don't have the pulsing, my scar does get the tight feeling and frequently just hurts.
I attribute my finally starting to feel recovered to taking up daily exercising (light exercise - no heavy weights or anything - like yoga and stuff) and trying to do more mentally involved tasks that I enjoy (like baking - it really is a mental chanllenge when you've got two or more different kinds of cakes or cookies comign in and out of the oven!). I haven't been back to work yet, though, so maybe once I get there I'll feel "off" again.
Hope things look up for you, soon!

Title: Re: Trying to forget.
Post by: martyc on April 11, 2010, 10:51:30 pm

I have a "tight skull" too...that's what the pulsating makes me feel like anyways.  It's usually most noticeable with fatigue.  Look for the triggers for the sensation.  It's definitely one of those things that remind me that I've had brain surgery.
Take care.  You are not alone.
Marty