ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: briansmome on January 05, 2010, 01:53:17 pm
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It's been 7 months and I'm still not sure how I feel about it all. Seems surreal. There were only 15 days between the MRI and the surgery so I guess I didn't take the time to absorb. The past seven months have been a bit tough. Stroke during surgery, left vocal cord paralysis, 3 weeks in the hospital, months of therapy...who signs on for this? For a while it seemed it was one thing right after another. Feeding tube placement, laryngoplasty, corneal transplant, etc. I'm doing really well and I know that, but it's almost time for GK and I'm getting nervous again. How did any of you do with that?
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Tumor was 4.2 cm. I am in North Carolina; I believe there is a support group a couple of hours from here, but I don't drive due to decreased vision after the transplant. Have another MRI scheduled for January 13; planning for GK will start then.
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Hi, Briansmom ~
I'm sorry to learn of your post-op struggles and you're right when you pose the rhetorical question: "who signs up for this"? I only hope and will pray that things get better from this point forward. The GK shouldn't be too difficult. Swelling is the main issue and steroids usually quell that complication. I trust that your GK will be relatively uneventful - but totally successful.
Jim
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Brians -
you've certainly been through a lot. My AN wasn't large enough to require both surgery and radiation (debulking), but those who have had it have done well.
Kaybo had a lot of complications from her surgery - including a stroke. She is someone who would be very helpful to you. I've never met a woman with a brighter disposition and a sunnier attitude ;D
I'll PM her and alert her to your post.
Best,
Jan