ANA Discussion Forum
AN Community => AN Community => Topic started by: Rich56 on November 29, 2009, 06:11:13 pm
-
There was an underlying message in some of the threads regarding the Thanksgiving Day feast preparations, that message was, starting a few days early and accepting help, rather than trying to do everything yourself and in one day helped reduce stress and fatigue.
So, as the holiday season continues, please keep this message in mind ;)
Monday Doc (DoctorB) has a follow-up with his AN surgeon. Doc, we hope your follow-up goes well and that he has some answers for you regarding your future CK treatment. We are also keeping our fingers crossed that the eye procedure you had done last Wednesday to help preserve your cornea works.
Tuesday Tricia (horsekayak) will be having LINAC treatment. You will be in our thoughts and prayers that the treatment is successful and that you are able to continue your work training the horses in the equine therapy programs for disabled/at risk kids. Hopefully your balance issues will not keep you from horseback riding in the future.
Also on Tuesday Nancy (NancyMc) is celebrating her birthday.
HAPPY 59 FOREVER Nancy ;D
Hi to Dave, hope he’s doing better.
Wednesday though it is not on the AN Calendar, Doc (DoctorB) will be going back to his Eye Surgeon to have the sutures removed from last Wednesday’s procedure. Good thoughts flowing your way Doc, hope he says everything is healing nicely.
Thursday Sharon (shabuck) who is located over in the UK will be having surgery in London. Sharon, we know you can’t wait to get the surgery behind you, it will be over soon. We will be praying that your surgery is successful and without complication.
Friday Sue (Suboo73) will be having her 1 year MRI. Sue, we will keep you in our thoughts and prayers that your MRI indicates no growth, and that you are able to continue to W&W.
And for everyone on the recovery road, we hope you feel better each and every day.
Rich & Scarlett
-
Thank you, Rich. Dave is not feeling better, but your kind words are encouraging. We'll be happy to get his surgery behind us . . . postieland!
I'm wondering and have been for a while how you and Scarlett are doing.
I'll be eating cake all day on Tuesday, so be thinking of me!
Seriously, best of luck to all with procedures and follow-up appointments and tests. And Jo, honestly, say it ain't so! Be sure to let us know the outcome of your meeting tomorrow.
On to the big 6 - 0.
-
Hi Rich,
Thank you for your words of encouragement - they mean a lot to me.
[I dislike the MRI but will try to be brave. ::)]
My daughters were both here for the Thanksgiving weekend and put up the Christmas tree for me - it was so thoughtful!
For someone who always does the decorating at this time of year - well, i am grateful for my daughters' help. God bless those can help others.
To all those having procedures and treatments - my thoughts and prayers for successful outcomes.
To the BD girl - no way your next stop is at 6-0......! You look fabulous!
[So sorry to here Dave is not feeling better. I don't remember the details of his surgery, but will say a prayer for him. Please keep us posted.]
Sincerely,
Sue
-
Rich:
Our collective thanks and appreciation for the weekly update.
My best wishes and prayers are with Tricia as she undergoes her radiation treatment on Tuesday (12/1).
Sharon (in the U.K.) will also be in the thoughts and prayers of many as she has her surgery on Thursday (12/3).
Doc has struggled with a variety of eye-related problems and my hope is that as his stitches are removed (12/2) his eye issues will finally begin to be resolved and that his follow-up doctor visit on Monday (11/30) will also be rewarding.
Happy Birthday to Nancy. Still a lass at heart, I'm sure.
We're all rooting for Sue to have a drama-free MRI scan Friday (12/4) and to be able to Watch-and-Wait for many more years.
I echo Rich's good thoughts to those in recovery mode.
Jim
-
Thanks Rich for you postings:
Hoping to add me (Denise Sanford) for about a 1 month follow up post surgery. I have been having lots of troubles and some brain swelling.
Went for full MRI's today and hopefully thigs will just keep getting better.
-
Rich,
Thanks as always for the update -- you really do a wonderful job!
DoctorB- I hope your followup visit with your AN doc goes well and he gives you the answers you're looking for with regard to CK. I also hope your eye is healing well and that you get good news on that front. Keep us posted.
Tricia - Good luck today with your LINAC treatment.
Happy Birthday Nancy! I'm sorry to hear that Dave is still not feeling well and hope that changes soon.
Sharon - Good luck on Thursday. I hope you come through your surgery with flying colors and no complications. Will someone be posting for you?
Sue -- Good luck with your trip to the Tube of Gloom on Friday. No one enjoys them, but hopefully it will once again bring you good news. Keep us posted.
Wendy
-
shame on me for being late to this thread as I always try to stay on top of on-goings in our AN world...... :( My bad.....
Many have already endured this week and I send continued wellness wishes your way. For those getting "younger" this week, MANY hippy burpday! ;) For those having follow ups or visits to the Tube o' Gloom, good vibes, good vibes coming your way!
Try to have a good week all!
Phyl
-
What's the 'tube of gloom'? :)
-
Denise .....
You made my first grin of the day! The "tube of gloom" is the MRI machine that all of us have come to know and love! ::) :'(
Rich, thanks again for keeping us up to date!
Clarice
-
Oh gee thanks Clarice......I spent 2 1/2 hours in that "tube of gloom" yesterday :( At least now I get it.
I should get some reports on all of the ''tube of gloom'' studies on Friday.
Glad I got a grin out of you ;D That darn thing had me in tears by the time we were done. Got too much going on.
Thanks tough!!! I'll for sure never forget that one now!
Denise
-
Good Luck & Prayers to all...Happy Birthdays too.
Today is also LA David's 2 YEAR anniversary!!
K ;D
-
Hi Kay,
Thanks for reminding everyone about LA David's anniversary.
Hi David,
Wishing you a very happy second ANniversary! How is the balance thing going?
Wendy
-
Hi Kay,
Thanks for reminding everyone about LA David's anniversary.
Hi David,
Wishing you a very happy second ANniversary! How is the balance thing going?
Wendy
LADavid, I know its been a VERY difficult road, but congrats on 2 yr ANniversary! You KNOW I send my infamous hugglez your way! :-*
Phyl
-
David,
2 years! Wow. You are an invaluable contributor to the forum. Thanks for all that you do!
Kate
-
Well, I know I wasn't on the list for this week for some reason (my name was on the calendar). But I had my one month check up yesterday and the doctor John Zappia from MEI said I had so much swelling and ended up with the delayed onset of paralysis. The paralysis getting about a hair better each day, so it will come, just don't know how long. I had to have a MRI of brain all to the bottom of spine. The brain is still a bit more swollen then they usally see at this point, so I need to be on strict orders for another month at least. There was one other possible concern that I possibly have a mastoid infection. So they put me on antibiotics. Said it won't hurt anything anyways due to thiis time of year and stuff going around anyways.
As for the spine stuff and neck pains I have been having, of course that isn't from the tumor, but possibly with laying on the talbe so long and in bed for 24 hours, may have flair up something in my body. Luckily the neurosurgeon Dr. Pieper who worked on me is going to look at that stuff.
The hearing for sure is gone as of right now, but was told I still have a chance beacause of all the swelling. Go back in 2 months for more check up and another hearing test. If I do for sure has SSD, I will be inquiring with my insurance about a BAHA....they showed me that thing and I loved it.
I just have to say how patient and caring and wonderful my doctors and their staff have been down ther!!! My tumor situation went great, it's just my body that is giving me trouble!!!
So. please keep me in prayers and thoughts! Sorry I had to mention this here, but I'd be honest to say my feelings were a bit hurt when my name not mentioned and I knew I was on the calendar. thanks
Denise S
-
Hi Denise,
When I do the weekly, I copy paste the entire calendar week into a word document, then I proceed to write the post. As you can see, at the time of the original posting for this week, neither you nor Caroline (rezski) were on the AN Calendar.
(http://inlinethumb09.webshots.com/44040/2138433350033870391S500x500Q85.jpg)
I would never do anything to hurt any of you. That said…….
I am sorry that the swelling and paralysis continue, and sincerely hope that the antibiotics do the trick regarding the infection. We will indeed keep you in our thoughts and prayers for better days ahead.
Caroline, you are also in our prayers, with hopes that your MRI comes back with great results.
David (LADavid), congratulations on your 2 year anniversary. The Weekly just isn’t the same without you, but I try ;)
Rich & Scarlett
-
Rich,
We had lots and LOTS of snow yesterday, 6+ inches or so - then the satellite internet was GONE for the rest of the day, oh my! Now the sky is clear and i am back.
Thank you for the updated updates. You do a GREAT job with the this thread and i am pleased to read it every week.
So here is my update - all's well, that ends well, and another uneventful ride thru the tube o' gloom. My AN declared as 'stable' with no growth, so i remain in W & W for another year, yea! 8) --- I thanked the MRI tech, Jimmy, he was great! He thanked me for being such a 'good' patient.
Denise - you have been in our thoughts and prayers since the first time you posted on the Forum. I am so sorry about your recent (and LONG) trip thru the MRI. [I really dislike the darn machine, and am even somewhat claustrophobic.] But i don't take any drugs, just try to 'be in the moment' and handle the machine, knowing that it is the most WONDERFUL technology we AN folks have. I also believe that if you do need a little something to get you through the test, that is certainly ok too. -- Please keep us posted on your progress, and know that we are thinking of you.
LA David - 2 years, congrats to you!
Thank you, everyone, for all your thoughts and prayers. I believe.
Sincerely,
Sue
-
Rich~
You do an INCREDIBLE job and it is GREATLY appreciated - I know I hardly ever look at the calendar! IMO, you go above & beyond and read up on the situations that are listed on the calendar so that you can, not only alert us of that week, but also give us a bit of background and follow up!
THANK YOU!!!
K ;D
-
Rich
for the job you do, double apple dumplins at next brunch (and a few major hugglez thrown in for good measure!) :)
P
-
Rich, ditto what Sue, K, and Phyl said. We very much appreciate your efforts on the weekly updates. Thanks.
Patrick
-
Rich .....
You do an incredible job summarizing the calendar for us ..... just wanted to say thank you!
Clarice
-
Rich -
I want to echo the others here. The job you do on the weekly is very much appreciated. Like Kay, I rarely look at the calendar on a weekly basis (although I do add events to it - like Jeeper's BAHA surgery next week) so it's nice to read your weekly recap. I always read it. Sometimes I reply, sometimes I don't - but either way it keeps me posted on the week's events.
It's not an easy job to do the weekly recap - and it's often thankless. At least two other forumites have come before you and you've all done a phenomenal job. Although LADavid was originally "nominated" to the post, Keri and then you just saw a need and picked up on it. Incredibly kind of both of you ;D
Keep up the good work!
Jan
-
Thanks Everyone,
As of this post, there have been 607 newbies after me (3/15/09).
I don't get a chance to greet the newbies as I would like to.
All of you are right there in the trenches everyday, several times a day to greet and support them.
Thank you for all "your" hard work.
Hugglez right back at ya ;D
Rich
-
Thank You very much Rich for posting that too. I also GREATLY appreciated the time and efforts you do to post that.
I guess I just didn't understand why mine didn't show up....kind of odd. I know I added it about 2 weeks early.
Thank you for clarifying it though..................I KNOW there are many of you out ther still praying for me and thinking of me. THANK YOU
Rich, it's very thoughtful,, thanks for pointing it out, we just arent' sure what happened ;)
Denise