ANA Discussion Forum

Post-Treatment => Post-Treatment => Topic started by: madison on November 10, 2009, 05:21:14 pm

Title: GK 2 YR. MRI TODAY
Post by: madison on November 10, 2009, 05:21:14 pm
HI EVERYONE!
TODAY I HAD MY ALMOST POST-2 YR. GK MRI. I GO TO UNIV, OF PENN.ON THURSDAY. ALTHOUGH I HAVE THE FILMS AND C.D. IN MY POSESSION,
I AM TOO CHICKEN TO LOOK AT THEM. 6 MTHS. AGO IT SHOWED NECROSIS AND SOME SWELLING, SO WE'LL SEE. I DO HAVE ISSUES NOW AND THEN(LIGHT-HEADED,ETC..) SO I AM VERY WORRIED. DO ANY OF YOU WHO HAVE HAD THEIR TUMOR REMOVED EVER GET THESE KIND OF SYMPTOMS? OR ANYONE OUT THERE WHO HAS HAD G.K.---I WOULD LOVE TO HEAR FROM YOU.
I WILL KEEP YOU ALL POSTED..I'M SO GLAD I HAVE THIS FORUM TO TURN TO. THANKS  ;)
Title: Re: GK 2 YR. MRI TODAY
Post by: sgerrard on November 11, 2009, 12:20:05 am
Hi madison,

I had Cyberknife a little over two years ago, which is sort of like Gammaknife. It doesn't seem odd to me to have some light headed feelings, or fullness, now and then. I notice things like that mostly when I get a cold, or the weather changes, or allergies act up. It seems like I am more sensitive to sinus things. I think people who have surgery also experience some of these things for a while afterwards.

I don't think any of that is a sign of growth of the tumor. The only thing that would diagnose that is a series of MRIs showing continued growth. So don't worry about that, especially if your last one showed necrosis. Have patience.

Hope you get a good report on the MRI.

Steve
Title: Re: GK 2 YR. MRI TODAY
Post by: ppearl214 on November 11, 2009, 12:48:33 pm
Hi Madison and congrats on approaching the 2 yr post-GK mark! Well done! Please keep us updated on what the Pro's say re: your MRI..... and sending wellness wishes your way!

Hang in there!
Phyl
Title: Re: GK 2 YR. MRI TODAY
Post by: DR on November 11, 2009, 01:08:18 pm
Madison - I don't have any GK experience but I wanted to wish you best of luck on Thursday.  Hopefully the little bugger is continuing its slow, quiet demise!
Title: Re: GK 2 YR. MRI TODAY
Post by: GM on November 11, 2009, 02:38:23 pm
Madison,

I don't know why you may be having some lightheadedness...have you tried some decongestants?  I've heard of some sinus issues messing with balance, etc...  I wish you the best for your MRI reading....   Think positive!  ;)