ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: mk on October 21, 2009, 07:58:47 pm
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Hello everyone,
I have now completed my consultations with radiation oncologist and ENT and I am happy to report that at 18 months post-GK everything is stable. The AN remains unchanged. No shrinkage, but no growth either. The darkening that we saw at 6 and 12 months is beginning to disappear. The radiation oncologist said that this may be an indication that "things are settling down", whatever that means. He said that we should stick with the 6 month MRI schedule for now.
The hearing test was exactly the same as the one that I had right after GK. That is, some hearing loss (30-40 PTA) in the lower frequencies, and normal at the higher frequencies, as well as perfect word recognition. ENT was optimistic that since there is no change in so many months, there is a big likelihood that "it may stay like this for years".
I still have the numbness, accompanied by dry eye, which I know that will likely be there for ever, but I consider this a very minor problem. I haven't had any new symptoms and my energy levels are higher than they have been in more than a decade. I feel very fortunate and grateful, that up to now things have worked so well.
I also think that my doctors did a terrific job, given that my situation was quite challenging because of the size. They obviously devised a very good treatment plan and I am very thankful to them as well.
Marianna
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Marianna,
a MAJOR congrats to you for this update! Well done! :) Love hearing these kinds of results and you know I send wellness wishes your way. Truly.... thrilled to hear this. I know some issues still persist but overall, with the growth not doing anything and "settling down", great news! Stable... dying... I love it! :)
Phyl
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Great news!!! Time to relax and celebrate!
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Marianna ~
Wow, what a great MRI report! Congratulations on such an excellent GK outcome. May things only get better as the tumor continues it's slow-but-sure death.
Jim
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Yeah MK
You have had awesome results. You are my GK poster girl so keep it going. You never know, just might follow in your footsteps.
Ann
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Hi Marianna,
Yeah, yeah, another great MRI/hearing test result, what else is new? ;D
I would like to take this opportunity to thank you for your many thoughtful and sensible replies this year, particularly to questions on swelling and trigeminal nerve effects. They are a big help, I hope you can keep them up.
But take a few days off to celebrate first. ;)
Steve
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Hey Marianna - Just wanted to congratulate you on the great report! That's awesome, and I specially liked hearing about your increased energy levels, which must help in keeping up with your little ones on the homefront.
I'm just past the one year mark, now. I go see the neuro Monday and fingers and everything else crossed. It's been a little bumpy on my road but doing ok overall. I'll report in later.
Take care and keep up the good work. You are an inspiration here and I learn from your posts.
Regards, Joey
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Thank you guys you are so sweet.
Joey, it is good to hear from you. How have you been? I hope your visit to the neuro goes well - I am looking forward to your report.
You are right about the little ones, they are as busy as ever. Same with work, things are crazy. I am grateful that I have the energy to cope with all this.
Marianna
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Good news Marianna :-*
Anne Marie
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That's good news! I'm only a week out now - your posts have always been like a safe port in a storm.
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Hi Marianna,
Sorry for the late reply. It seems I am not up to date these days. It is such great news to hear of your good results. As you know I will be treated in the same place. This brings me great comfort. Keep up the wellness.
Vivian