ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: Myrty on March 22, 2005, 08:56:10 am
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Has anyone had any experience with denials & appeals from the Social Security Administration? My husband is 8 months post-op. He is a heavy equipment operator. Unfortunately, SSA seems to think that that removal of the AN clears up ALL the symptoms. Unfortunately, it didn't. He isn't safe when it comes to driving a vehicle - much less a piece of equipment that weighs tons. There is no improvement in dry eye, facial paralysis, hearing, motor skills, or balance. Any suggestions for the appeal would be appreciated. Thanks Myrty
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First of all I'm the wife of a AN patient. not a doctor or anyone special in the medical area. In reading your post I believe that we have alot in common. We applied for and did receive Social Security Disability. one thing that we learned that alot of people are denied because of lack of information, not providing a clear picture. It's important to start a log, just writing on a calender actual instances of problems encounter. This will prove helpful when you do the paper work. Include all other medical problems, it may well be the total sum of everything. One other key factor that we were told was "if it take 25 extra sheets, then by all means send 25 extra sheets. Don't limit yourself to the little form.
Explain how each loss affects your husband. Point out safety risks and limitations. Live with the paperwork for awhile. Write down problems and how they relate to each section as you think of them. (You'll be surprised when you suddenly remember something important. at the least expect time.) Write down medical problems as you seem them, sometimes it helps to draw a stick figure and divide the person up into sections to help you focus.. Talk to the treating doctor that is the most open to the disability issues. Also report health problems/complications to your doctor as they occurr. You don't want the doctor to say "well he never mentioned that to me" Document everything (back to the log. day time and who you spoke to. ) Talk to family members and close friends, often times they will seem things that those that are closer to the event can't or don't see.
I know how frustrating this can be. It's important to remember that the majority of AN patients do have positive outcomes and are able to pretty much resume the lifes they led prior to treatment. So it makes it harder for agencies such as SSD to understand why you're the exception. Also remember that from SS viewpoint the question is "Is he employable in other jobs, rather then the field of employment at time of disability, meaning a lessor paid position. Your log and clear examples of problems will help lead them to a better understanding. Please feel free to contact me.
Best to all
Raydean
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Myrty -
I don't know if you still need advice on SSDI - your post was from awhile ago. Maybe someone else will read and need the help as well. I write from 2 perspectives: an AN'r who actually did apply for SSDI and receive the benefits - "on the record" even, which simply means they didn't even bother to put me through a hearing, and also I'm an attorney who did a tiny bit of this work (emphasis on tiny) several years ago. Raydean, in her response, was right on about writing down everything AND how it affects your husband's work. The standards for SSDI revolve around limitations to ability to work and function, so that is how you must think. I know it was very hard for me to get into that mindset at the time I applied because I could certainly do SOMEthings...and for many people, it is very difficult to admit to any kind of "failure" (in the sense of not being able to do things they used to be able to do). But, you just have to. You need to be 100% honest, but that includes admitting you (your husband) is a wreck. If his symptoms cause him to need a nap after 1 hour of very light work, document that. Talk to his doctor about that. Make a total and complete nuisance of yourselves over these PHYSICAL issues. I emphasize physical because the SSA is typically not too concerned, unfortunately, about emotional or mental issues. I.e., they won't necessarily care that you are depressed, but they might care if your depressioin causes headaches or fatigue.
The other thing I would STRONGLY recommend is taking the time and spending the money to at least consult with an attorney - and it has to be one who specializes in Soc Sec Disability - otherwise, don't bother. It's a very, very specialized field. I know the attorney I hired was a huge reason why I got my benefits. She knew how to write the petition, who to send it to that would give it the best chance of getting around regular channels, etc. Of course, I was a physical mess, but I still think I would have been denied until at least the appeal level. By then, you are so broke and demoralized you are likely to give up.
But never say never!!! Just document like crazy, talk to your doctor(s) like crazy, and talk to an attorney. It does work.
Anyone can feel free to contact me about this.
Jane
RS surgery Aug 2005
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I too was unable to collect disability even though I was constantly falling, once down a set of concrete stairs, wrecking my car, running into walls, etc. I never did convince them even though my doctor wrote them a letter telling them I was unable to work. My advise is to find a good attorney to represent you. They seem much more cooperative when they are talking to someone in the legal profession. Good luck to you!
Laura
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There are lots of attorneys who specialize in SSD. In my line of work, I see it constantly. If you can afford to, do seek an attorney. I never tried to collect but instead found a job approximately 10 months after the surgery and I'm still at it. Ya gotta do what ya gotta do!
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I applied and was denied twice - I got a SSD attorney and we got approved right before it went to hearing. Although the attorney costs some money- had to pay a small retainer fee and the rest was a percentage of what the first award was and it is capped as to what he can get....and it may result in you having income vs. not having any at all. So I found it to be very worthwhile.
I agree with the post that says provide everything you can. I saw two neurologist, a psychiatrist, hearing specialist, physical therapist and a vocational evaluation expert. My report was quite lengthly.
I had someone tell me that getting SSD would be difficult because I was still young (at the time 40) and my disability was not "visible". In the end it came down to someone at the SS review board understanding that although I could still function at some things, it was impossible for me to keep and maintain a normal full time job/work schedule with any reasonable employer. The key words were "maintain" and "reasonable employer". It was important for us to show HOW the disability affected my ability to get and/or maintain employment. This is where SSD attorneys can really help - they know the key words to use.
Hope this is helpful to you or someone else out there.
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I applied for SSD and it's in process. 4 months post op. I applied January. My quesiton is, Has anyone been asked by SS to see a Phd. doctor? to know mental status? I'm afraid I will just get denied for one I'm only 30 years old, 2nd my husband makes enough money for the both of us. but I have 2 minor kids need to support and my ability to do things is very much limited every day.
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Sunshine I talked to a policeman who's wife had an an removed and was denied as they said he made enough money..BS>.they aren't paid much more than teachers around here. He also said they claimed she didn't have enough work credits.
I read online somewhere that if you go through vocational rehab for retraining and they deem you disabled which they did me. It helps with your social security claim.
JMritter how did you get your claim through so fast? I was told repeatedly I had to wait a year to apply since the severity of my problems wouldn't be known in it's entirety for a year. I did just apply and am still waiting for my first denial lol The girl at the window told me it would take 5 mos to be turned down the first time. Now that was ridiculous!
Sunshine I know a guy who gets ssd for mental problems. He supposedly has agraphobia but still works everyday under the table. He's bipolar too which is why I think he got approved. I won't worry about mental status. That is part of why some of us can't work. There was a list of things that they look at for disbility on the ssi site. I went through the list and could check off just about everyone on there. Hopefully they got it if not I try again!
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IMO I think the SS admistration reject's all claims just like insurance agencies do. Why cause most people are too proud to see it through, or say I tried and give up. I have also seen programs on 60 mins and others were aliens that haven't worked a day in this country get it. So, DON"T be discouraged, Get a laywer, annotate, see a doctor what even it takes. It's your hushand rights he worked for and earned the right to be disabled and that is what the disability portion there for. Just don't give up and take no for an answer! And besided when you get approved you will get back pay from when you first filed. There are few that understands what AN are let along the problems that come after a hole is drilled in you head where the 12 crainal nerves are. IMO even the specialists really don't understand your pain.
Most symtoms I have. riding or driving in a car makes me dizzy and so times i get motion sickness. Struggle with headache's two, three, and sometimes four days a week. I get tire awlful easy and after I get home from work I'm worn out and on days I have a headache have to lay down, sometimes all evening and all night just to be able to go to work the next day. Ear buzzes with any noise no matter how loud, and with loud noises creates hearing problems, Turning my head too quickly or back too far creates unusual pains. I am afraid to pick up something real heavy or do alot of heavy strainous work due to spinial fluid leaks, Due to the fluid running out my nose when I do it, then headaches start.
I have to wear a ear plug 90% of the time. Normal noise is too loud for me now, taking a shower makes my an side buzz really loud making it hard to hear after showering. Even riding in a car at 40 MPH makes my ear buzz. Can't listen to any TV, radio, over 3 bars. These are some of the things I have to get through and I consider myself better off than most. I also think use AN'er get a condition where any noise is magnified and annoying. IMO you need to set down with you husband is sessions and write down all the things that bother him and what he can't do. This will help you case when doctors document his conditions IMO>.
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This is been really helpful..thanks to those of you who have shared! Gives me hope that I'll figure this thing out yet in case I can't get back to work in august.
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I have been on ssi since my surgery, Oct 02. My husband applied for me. I am 47 now. I had 3 brain operations.(I swelled up) a stroke, two seusures, pnomonia, a blood clot etc. It was hard excepting ssi at first, to know that you are disabled, but it sure helped pay the bills. Now I depend on it, if I sop getting it I don't know what we would do. I was told I'll get reviewed in 3 years and I have'nt yet. Is it possibable that they think 'm so bad off that I will permintly get SSI and I won't ever have a review? I am fine now but have no job that I will be able to do, I come from a factory(26 years} I would be to slow. I walk slow, if I fall its a job getting up. Slow life, but a happy one.
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My SSD experience was a mess and very hard to go through. First of all SSD tries to waite you out, the reject your claim almost always the first time. Their purpose is to try to wait you out, "many many" people STOP their claim for SSD, they do that to see if your serious. Truth is your entitled to get SSD if you can prove your disabilities. I was denied twice, then I got a lawyer and my claim was okayed and I recieved my SSD a fer months later. Show them you mean business and that your not going away and that you need the SSD. I worked over 30 years and paid into the system all that time and then they fight to keep it from you when I need it. Bull! It takes time, but you get SSD retroactive from when you first applied, when your approved. Thew lawyer gets paid out of your settlement that is how the system works. It is tuff without money coming in, or living off your savings. You need the support of your family and friends and a lawyer and you will provail it just takes time. That is just the way it is, I guess it also helps them weed out all the BS claims for SSD. Us AN sufferes know our disabilities are real that is cross to bear in life. Keep on keepin on. Wayne
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Wayne what has me sitting on the fence with the whole thing is I'll be 2 years with no insurance, a teenager and I'm uninsurable...That is the one thing that is keeping me from proactively persuing. I did file my claim and figured I'll be turned down and then I'll know I need to suck it up to go back to work whether I can handle it or not.
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Oh, I admire your determination Wayne. I know I'm legit, I can't work. I'm feeling better now, but I'm struggling mentally......... Sometimes I just feel I shouldn't have done this surgery BUT I know I need and have to....ÂÂ
Anyways, back to SSD. I had worked here. Had 4 full time jobs before surgery. I got a paper from SS stating how much I will get if I'll be disabled now... blah blah blah. I said good, I won't worry if anything should happen to me after surgery. Then I applied and can't believe what I have to go through and knowing my chances of getting approve is ZERO? Anyways, applied SSD by phone (I didn't get qualified on SSI coz my husband makes enough money), long interview, got lonnng forms in the mail to filled out, and I thought that's about it. Just couple of days ago got a letter from SS stating I'm required to go see a Phyciatrist to check my mental status, after that who knows. A letter stating "APPLICATION DENIED"!!!!!!!!!!!!!!!!!!!!!!!!!!!! ???????????????  I don't mind to go through their procedure, I just hope I'm not going through it only to get denied....... **sigh**ÂÂ
I will not give up. I'll get a lawyer if I have to. I know I deserve it and need it...... I applied January. I think it will take about 6-8 months to receive anything? So, I still have to wait 3-4 months more........ÂÂ
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My disability attorney informed me that 97% of disability applicants are turned down on the first application, and 95% of those who reapply are turned down. Especially in the past 6 years under the current administration. You have GOT to get a lawyer if you want benefits. They don't charge you unless you win. And then it's 25% of your retroactive claim or $4900, whichever is LESS! It's the law. They do charge a small fee up front for aquiring your records, OR you can do that your self. It is absolutely worth pursuing if you can't work.
Capt Deb
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Before seeing a Attorney go ahead and keep the medical appointment that they have arranged. It could go in your favor. if you're denied after the appointment then by all means see an Attorney.
A member of our local support group was in a simliar situation, denied the first time, sent to a Phyciatrist and was approved. In fact she called me before receiving notication because there was "alot more money in my account".
My husband's claim went thru very fast, approved first time, within 6 weeks. I did the paperwork without asistence. In reading this thread we must be the exception. But two years later he came up for review with the paperwork much like the first time around. Since he wasn't under treatment we didnt have the comfort of doctor's assistence. We had a mandatory appointment with a neurologist. At the time I was quite negative about having to go to one more doctor, when we had a pretty full plate going at the time. I truly resented it. I have got to say that the appointment itself was one of the best evaluations that he has ever had. Because of her report he has not come up for review again.
I can't not state how importent it is to clearly give them a picture into your life. Draw a simple figure and divide it into sections and list problems for each area, This way you have a problem list and won't forget important things during the exam. Remember it just isn't AN issues, but the sum of all issues.
Wishing all of you the best
Raydean
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Guys, if anyone read my post on this thread I said ssi. Stupid---------- I mean SSD------A brain tumor thing.
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Cakes you when you apply for ssd they automatically send your application in for ssi so made sense to me since i had just gotten my rejection letter for ssi lol
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Hi guys, I'm back. I had a short trip to be with my Dad and kids.... I had a great time except some headaches and little bit of dizziness.
Okay, I just got a letter from SSD and I'm now required to go to another doctor. Neurologist. First is Pyschiatrist now a Neurologist? Is this means any good to me or another procedure of SS for me to get denied? I'm okay. It's just that now it's all in my mind.... wondering what's next? =)
It's nice to be back. PHyl thank you for waking me up! ha ha ha...
I miss all of you!!!!!!!!!!!!!!!!!!!!!!!
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Sunshine I just got my letter yesterday with social security telling me they don't understand my problem and they want me to see a doc for a mental examination....should prove to be interesting. Sounds like you might be one step ahead of me.
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So SSD wants you to see a psychiatrist also? I have an appointment w/ a Neurosurgeon next week and two weeks after that have to see the P.h.d ....... see what happens, battyprincess. I'm still hoping to get the benefits on the first try.....
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I'm not expecting to but figure it's worth the try. Did you get turned down for medicaid? I've got that hassle going on too. I'd be more than happy to see anyone they want me to especially if any of them have any answers!
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I got turned down on SSI.... and so far that's it.
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I did too on the SSI based on the fact that I'm getting disability payments right now through work. At least that was the reason they gave me lol
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I think I posted this somewhere else, so excuse the redundancy.
It took me about 1.5 years to get approved for SS Disability. I got turned down the first try right away. I went straight to an SS attorney that was recommended. It was worth it! I got turned down on the appeal but before our hearing date for our second appeal, the arbritrator reviewed my case and approved it! And to this day, that person has been one of the only people that has truly gotten it! Although there were some days when I could probably work some, I could NEVER keep a regular 40-hour schedule and that no reasonable employer would accept that...and that is what I got my SSD on.
I also saw a psychiatrist (at the suggestion of my attorney, not SSD) to proactively rule out any other causes. I also sought out a second opinion from another neurosurgeon.
And I agree with Raydean - get all the documentation you can and don't limit yourself to their little questionairre spaces. Be very specific about your problems - example - don't just say "I have headaches"...get into the details. I also kept a daily health log descirbing in detail my problems from day to day and rated each day. I turned in 6 months of logs with my appeal.
Anyway - hope this helps some. Brenda
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Thanks for sharing Brenda! There are days were work seems possible and days were it's totally impossible! Good idea on the log!
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I too had my AN surgery just over 2 years ago and things have seemed to be going down hill ever since. I work (or should I sayd worked) in the banking industry, as a credit card customer service representative taking inbound phone calls from folks like you and others who have a credit card problem, and wait on hold for what seems like forever.ÂÂ
MY STORY:
I had been growing a tumor unaware a couple of years prior to when I was diagnosed with a AN in July 2002. It caused me extreme dizziness, hearing loss, ear pressure fullness, facial numbness, and headaches. I was working as an inside sales person using the phone daily with a manufacturing company at that time. It was misdiagnosed that the symptoms I was having were from a residual ear infection from a previous bad cold I had earlier in the year. Strangely, I was laid-off about 2 months later due to a downturn in that company's business, so I had to seek employment elsewhere(Go figure). June 2002 I started work with the bank.ÂÂ
I took a pay cut, but a job is a job. July 2002, I was correctly diagnosed with a AN after going to a better and different doctor. This was one month after starting my job at the bank. I was told to wait & watch until they had to remove the tumor due to the type of job I had and the fact that good communication & hearing was a prerequisite for my job. Since I had most of my hearing and just started my job, I agreed to his advice. The Neurologist scheduled a followup MRI for August 2003.ÂÂ
May 2003, I continued to have more balance/hearing/headache problems so,... back to the doctor.  He found the tumor to be growing much faster and larger than expected in less than 1 year. Worried that it my not be a AN but a Malignant tumor, I wanted to go ahead with Micro surgery. I researched all my options for the different ways to remove a tumor and felt this the best choice for me. You may or may not agree but using the Gamma Knife approach and frying your good brain cells surrounding the bad just didn't appeal to me as a final solution.  Moral of the story,....don't wait. Your chances of losing your hearing only increases the longer you wait.
I was told things will get better as you recover and for the most part they haven't. I don't have the headaches as much, and my balance and hearing initially were terrible before surgery, but have now plateaued and not "getting better". I actually think my hearing is getting worse. I am getting a hearing test in late May just to see. I have trouble going down stairs, driving, walking, talking, thinking, heavy eyelid, and the worse part is my hearing. Given the 80% chance I'd be deaf, I felt the 20% chance I wouldn't be was worth the risk. After surgery, I initially lost 40% of my hearing. I too am single-sided hearing now, but I do wear a hearing aid. I tried doing the Customer Service without it. That wasn't working.  I asked my employer for a double-sided headset. That helped, but I still have problems hearing certain conversations and pitches with a lot of background noise. I work in an open cubicle and the noise from co-workers is loud. You credit card customers really get upset and yell when your representative has to ask you to repeat your name or address because they can't hear your tones of certain speech. (Now you know why customer service is sometimes so bad) Stress can make you depressed especially when you can't perform your job the way you did.ÂÂ
THE STRAW THAT BROKE THE CAMEL'S BACK:
I finally gave it up when I hurt my neck for the 2nd time in my life. This was a double whammy. First the Brain Tumor and now this!! I was working at home on a chain-link fence repair when I ruptured my C6-C7 cervical disk. I have 2 disks fused and after 7 months from that surgery, I'm still in physical therapy for that injury which has effected my nerves in the right hand, fingers, back, and shoulder. I tried to return to my job for 2 months, but with the combined injuries, I couldn't handle the mean customers, nerve damage, balance issues, and hearing loss. I am depressed and at one point, nearly suicidal. So,...I'm now going to counseling for depression/anxiety. I couldn't decide if I should try to continue to work again or file for SSD.ÂÂ
I finally filed Social Security Disability. To top it all off, the bank has cut off my short-term disability insurance due to the fubar of paperwork not sent by my physicians on time or so they say.  I'm appealing that decision and should hear something in the next week or two, but after reading some of the threads here, it sounds like they are going to drag that out too. OOh,...and they threatened to fire me since my FMLA ran out. My attorney said let them try!!! So far, they haven't terminated me, but I'm not getting any disability insurance pay either while in the appeal process. For a percentage and fee, the attorney would help me collect that too. I'm going to give them a few weeks.
My wife wanted to work 2 jobs. She teaches Special Ed and in the summer works at a Major Department store. If we didn't have her income, we'd be bankrupt. My first denial of social security came in the mail about 2 weeks ago. My attorney who specializes in SSA told me we wouldn't take your case unless we thought you'd win and not be alarmed by the denial. I am 53 and I don't feel I am disabled in my mind but my body says I am. So,...why doesn't Social Security??????? I am playing the waiting game right now and hoping my attorney can prevent this from going to an appeals judge. I will let you know the outcome.....
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Hi Just... I sent you a private email..hope you get it.
I say keep applying with ssd you should get it. They just passed some new guidelines in March of this year which is suppose to make the process easier!
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I am on SSD now. I can probably do a little work at a fast food restraunt or something like that, but is'nt SSD determined on what you were doing previsely? I came from a factory for 26 years and i KNOW I can't do that again.
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no ssd is based on that you can do something full time! it's based on what you were doing and if you can be trained for something else. age is a factor when the make the determination.
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No burger flipping here.
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Cakes you lost me! I couldn't stand long enough to flip the first one!
How long did it take you to get approved for ssd?
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After 3 tries. About 3 months.
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Last week I had a mental exam...next week I have a physical one with a gp...I'd rather be seeing a neurologist.
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3 tries? Goodness..... So, you have to wait almost 2 years to get your benefit? Did SSD had you see any doctors? I seen a Neurologist and Psychiatrist. Just waiting for the result now. Or should I say, just waiting for the denial papers now... ha ha ha
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Just a heads up. For those that have been denied Social Security Disability make sure that you file your appeal within the timeframe allowed. ( 60 something days?) I would hate for anyone to be delayed due to a tecnicality.
Batty Princess, On the letter you received telling you of this appointment should be the name and phone number of the person handling your case. Have you tried calling her/him and ask that your appointment be with a Doctor Knowledgable in AN brain tumors and outcomes?
At the post 2 year evaluation they requested Chet be seen by a doctor with four initals behind his name beginning with M. All I know is that I had never heard of this person. I called up and asked the person how much experience he had with large AN.s, hydrocepalus and brain injury. How many has he treated within the size of Chets. Total practice? I explained that these were questions that I asked of all doctors that we were considering seeing. She replied she didn't know but was sure he was qualified. I repeated the questions, she said she'd get back to me. She later called and rescheduled Chet with a neurologist. In fact it was one of the best evaluations that he has had and I didn't have to pay a cent!!!
Be sure and state at the beginning of the evaluation that you'd like a copy of the evaluation sent to a
doctor of your choice (we did our family doctor) that way you have a copy available to you.
Thinking of you guys. Hang in there!!!
Raydean
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I've requested copies sent to my Family doctor. I am going to call tomorrow to see if he received it. Thanks for the tip, I'll call the case manager tomorrow. I know the doctor who did my mental exam said the person making this decision has no medical background. YIKES!
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Big YIKES !!!!!!!!  Michelle, you need a Doctor that knows what's he/she is looking at. A GP is not going to get you anywhere, except probably another denial. I dearly love our family doctor, who's been very supportive of Chet, but he's the first to admit that "he doesn't know" on some of these issues. Don't think that GP will know either. You're right, it's in your best interest to have a neurologist see you.
Make that phone call ASAP and please let us know.
Raydean
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Sunshine, I was "out of my mind" at the time, I have to ask my husband how things went. He said we went to SS 3 times before we got SSD. I only remember once. I was home from the hospital about 3 months before I got a check.
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Raydean,
I tried calling the guy and of course no one answered just got voice mail. So, I left a message and sent him a letter with my return confirmation and recopied the orginal stuff I sent as I noticed it was different names of case workers. I'm going armed with my notebook with all my vestibular and an stuff. I figure I'm not paying and can sit there until she understands! Especially with my speech problem. Of course that will be a day I wake up with clear speech LOL
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Hi Everyone,
I got approved of disability, I got the letter today. Got approved on the first try. I had teary eyed and thanks God, he heard my prayers!
My case will be reviewed once every 3 years. My question is, I thought I will get a retro pay? My payment starts May 06.. But I really thought I'm getting a retro pay from the time I got disabled? I had the surgery November of 05. Did I misunderstood it? Was I wrong?
Oh well, I'm still thankful atleast I don't have to go through the stress of hiring a lawyer or going through anymore stressful process of appeal. All I can say is I'm legit I can't work right now. I just hope I get better soon and comes back to almost normal atleast.
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I believe it's retro to 6 months after the onset of the disability. I was turned down twice, the last time I was totally unable to drive, do housework, fix food, or get out of bed at all. I guess they figured I was LYING to them. I think they just NEVER give it to self-employed people unless they are comatose.
I'm really happy for you!
Capt Deb
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Congratulations!!.  As to your question regarding retro payments dating back to date of disability I think there was a misunderstanding.
Unfortunately there is a down time when no payments are made.  In 1997-98 it was a 5 month period. As an example  date of disability was in August and payments started in  Feb.  I'm not sure if the wait time is 5 or 6 months now between the date of disability and date you start receiving payments.  Two years post the date of receiving payments you are eligible for Medicare under the disability issues, instead of age.  ( My guess that is why alot of evaluations are done at the two year mark) .  Had the approval process taken longer then the waiting period then you would of received  back payments to the date of when payments would of started.
Chet also came up for review at the 2-3 year mark which included an evaluation.  That was 6 years ago with no further evaluations so i think it depends on other factors including age.  Anyway, congratulations.  You must of done an exceptional job on your paperwork and had your Doctor's cooperation for a first try approval!!!  You have to be proud of that!!! ÂÂ
On a personal note Chet would give it all up in a NYC second if he was able to work again.  He truly misses it.
Best to you
Raydean
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Another note about why I got turned down--I was still selling paintings even though I was unable to work and make more of them--they counted this as working income even though I wasn't able to work--a big Catch-22. Nowdays I can work about 3-4 days a week if I don't let up on the narcotic pain meds. Without them I'm non-functional. I lived without regular use of them for 2 1/2 years until I got turned down the second time and I ran out of paintings to sell. Just decided I had to work again inspite of this non-stop headache, so told the doc I had to get some kind of relief to let me work. So now I have a 2 to 3 Vicodin a day habit and an income. Thanks SS!
Capt Deb
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I'm so frustrated with the whole thing. I'm working 10 hours a week from home by the grace of all is holy to maintain my medical insurance. Of course ssd looks at it as I can work. I worked 4 hours monday and had a meltdown and all i was doing was sitting in a chair looking at teachers paperwork. Oh boy..what a long road I have!
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thank you for the respond Capt. Deb and Raydean.  I just feel very fortunate that I got it on the first try.  I know I can appeal it if I did get denied, but the way I am now and couldn't imagine the emotional and physical drain I would of experience if I would have to go through it. ÂÂ
Now, I guess the next question is How this money would affect me and my husband when Uncle Sam knocks on my door once a year? ÂÂ
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ssi is not taxable up to 25,000 in income. I'm assuming it works the same way with ssd. If you get payments for your children non of it is taxable. If your spouse makes more than 25K then it's like 1 dollar for every two you make through ssi that is taxed. I know there is a big formula.
I'm so jealous sunshine! I get the hassle of the appeal process. I feel so overwhelmed!
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Batty Princess,
I know and understand how frustrating it is for you. Just remember that lots of ppl here went through the same thing and in the end they got it.ÂÂ
Like I said on my email to you, I think the Neurosurgeon(SSD) helps a lot w/ my case. He was able to see how the AN affected me physically and mentally.ÂÂ
I feel glad I got it, but deep inside my mind something is telling me I'm not a winner. Because now I know I'm legit disabled. For how long? I'm supposed to be celebrating! But knowing I might not be able to go back the old me, smile normally, act normally, walk normally, think normally..... **sigh** I don't know...... Oh no my pessimistic me is attacking again......
M, take care
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Sunshine, I know what you mean. I worked since I was 19-40 hours or more a week, and I'm greatful for SSD but there is a sense of loss that comes with it. I felt I had to "be out there" in this busy world. After a year or two, its more like,"its about time I get a break". I'm used to it now.
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While all the information is helpful, I was looking for the bottom line which I felt is what Deb said. If I can't get work because of my disability within the time until my unemployment runs out, that is what I think I should pursue but I will definitely find an attorney. I don't have the strength to go through all the BS without someone who knows the ropes with/behind me. I just don't feel like I can go that one alone. I feel like I can work, but honestly, while I was working, like someone else mentioned earlier in the thread, every day is a struggle and it is annoying when a coworker complains about their hangover or stubbed toe or whatever it is, then blast the office radio so I can't concentrate or hear myself think let alone function with the phone which was part of my job. I haven't documented much since my surgery but I think I'll get a composition book and start writing what I can remember or at least within a ball park and keep a better log from here on in. Losing my job is scary but not being able to find something else when I really NEED the income to get by (and I don't mean live it up, we rarely, if ever, even go out to the movies or to a restaurant, it's just cheaper to do it at home) is even more scary. I'm wondering if I should even spend the $ on gas to ride to the shore for a day to clear my head and also take my daughter along since her last day of school is Tuesday. I guess something you HAVE to do to keep your sanity, at least that's how I'm trying to look at. I've been reading alot of different threads on this site since I have a bit more time now that my oldest has graduated and for the most part is ready for college in the fall, and also because she went away for senior week and I can use her lap top whenever I want to LOL! Anyway, my point was (I get distracted so easily) with everything I've read I feel like I am still a lucky person having gone through what I did and still be here to talk about it. There are so many people out there on these boards who have so many wonderful words of encouragement and are going through same/similar things, it makes more sense when you read someone else's perspective. I will get through this, we all will get through this with the love and support of others. Thanks to everyone even though you may not know it, you have helped me in more ways than you think! Hugs all around!!
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OK guys, I just GOTTA VENT!!
I heard from my lawyer today and he said he FINALLY got my local hospital records after 14 Months and numerous requests.
14 MONTHS!!!!! >:( >:( >:(
They said they were "re-organizing" (the hospital, not the lawyers.)
On my last appeal, I trusted SS to procure those records for me and they probably didn't even have them then, who knows. That's when I got the lawyer and I wish I'd gotten him before I even applied the first time. No wonder I got turned down twice. I'm REALLY upset with the hospital, and Dr. Love is a little perturbed with the lawyers and says that if he had known that Watauga Medical Center was dragging their feet so much he would have gone down to the business office and raised holy hell till they forked 'em over.
The lawyer also said that normally it takes 14 to 20 months to get a hearing, but during a 6 month period prior to May, NO disability hearings had been scheduled by the court system whatsoever. NONE!!! >:( I wonder how many folks had to go without their medication or food for their kids in that time?
He said the current administration has devastated the funding for disabled Americans in the past 6 years--so all you guys REMEMBER that when you go to the poles next time!
AAAAAAAAAAARRRRRRRRRRRRRRRRRRRRRRRRRGGGGGGGGGGGG!!!!!!!!! (not the pirate growl, the frustration one!)
Capt Deb
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what took them so long? Geesh I found out my doctor reported I was working 10 hours a day....i've been working 10 hours a week from home for months. No wonder they thought I could work a normal shift LOL
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Deb, That is flippin ridiculous. Our healthcare/legal system stinks! There is also NO equality. I better stop here. I don't think many people will want to hear what else I have to say and Zoey, my puppy, needs to pee! Later
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I'm thinking you should take zoey to pee at social security LOL :-*
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Hi to all,
A word of advice, ... don't forget to do your yearly MRI scan. It has been 18 months since my last one. Batty Princess, you may remember my comments on page two of this thread.
I found out today, the results of my 4th MRI since my surgery.....and you guessed it,..... IT's BACK! :'( :'( :o >:( I have a regrowth AN in the same right inner auditory canal ear as I did from July of 2003. Almost 3 years to the day, since my surgery....! I thought I was in the clear until I started having more dizziness and headaches. My hearing initially was saved and I had a loss of 40%. I had filed for disability in Mar 06 and have been denied 1 time. I have the copy of my newest MRI report and it shows I have a small regrowth AN tumor. 9.8mm x 5.3mm x 7mm which is less than 1 cm. I think it was too small to be detected in last years MRI.
Anyway, ... I'm still fighting the Government for my SSA and I don't know if the new regrowth will help me get it or not. My attorney says it definitely will. My employer wants me to fax the report to them to expedite my short-term disability and so that too may help me get my pay started again since they denied it for paperwork reasons.
I am shocked, angry, upset and scared again. I don't want to do the surgery all over again and most likely when I do this time, my hearing will be totally lost due to the damage already done from tumor 1. I can't go back to my previous surgeon from before, because he has retired doing AN surgeries. He felt them to be too complicated I guess....no reason given to me. I'm suppose to make another appointment with a Neuro-otologist or Neurosurgeon and I'm in the hunt for a good one again. I don't guess I'll do the wait and see stuff; what's the point? I will at least listen to what the Doc has to say. :-\
So, there you have it.... 1 person in 100,000 have a brain tumor. Of those, 7% are AN's, and of the those 7%, only 5% may grow back.
Now you know why I have the user id of "JUSTAFACTOFLIFE" in my case.
If it's going to happen to someone, it seems it always happens to me. >:(
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justafactoflife
oy. What do I say by oy? :'( I know things are brutally tough right now.. and nothing I say can truly help, but sending you hugs! I am curious if you can have radiosurgery, like CK, for the regrowth? It is small and CK or any fractionated radio-surgery may help to zap that sucker while trying to maintain healthy tissue around the regrowth. Is this an option for you? Did your dr note anything about it? Maybe an option so you don't have to go through surgery again, esp. with the size that it is? Just a thought......
Please hang in there... we're here for you!
Phyl
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Justa
Sorry to hear about the recurrance. Hopefully things won't be as difficult for you this time. I don't know what I'd do if that stupid thing came back again. I'll be going for my 2 yr MRI as soon as I get pre-approval from my insurance company. Apparently, it seems they feel that people go through the banging bs of the mri just for the fun of it because we all know how much fun that thing can be. Haven't had so much fun since an alligator ate my little brother. So, they have to decide whether the mri your doctor has ordered is necessary. Flippin insurance decision makers aren't even doctors making these decisions. In case you can't tell, I'm feeling kinda bitter this morning.
I feel the same way as you Justa, soon as I get on my feet I get knocked on my arse! Haven't had a recurrence, but I've found it's always something. It seems as though you are more in the accepting stage right now, I'm still very angry about my layoff. Ok, so I better not go on a rant. Take care and let us know how you are doing. May you find the strength to do what you have to do and keep your sanity while doing it!
Karen
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ppearl, static,
I haven't had a chance yet to see the neuro---. I have been giving the Gamma Knife some thought, but I'm not sure about it yet. It appears that due to the small size of the regrowth, they caught it early enough that I have some thinking over time to decide what I'll do.
The 1st time surgery wasn't that bad and I did OK with the exception of a Diabetic reaction to the brain swelling prevention steriod called Decadron. My concern is I don't want the room to start spinning again like last time. I really got sick from that experience. As for SSA, I already feel I can't do my job as it is and with the new regrowth, who knows what they (Feds) will do. I have already gave my Attorney the heads-up and I am monitoring the actions taken by him. Hopefully, ...he will convince the review of my case and it will go forward quickly. You have to turn a negative into a positive and enjoy your life as best you can!
I'm patient (soon to be one too), ...and I've made my mind up (what's left) this will take a few years. It all depends on your actions and the reactions of the SSI, SSA folks. I don't think I have the mental capacity anymore to fight for SSA alone. I'll forget something.
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Hey Just..I just read other post and just had an MRI yesterday for my 9 mos follow up. My son asked if I overheard anyone gasp and say "would you look at that?" My biggest fear is this sucker will come back or move to the other side and with everything else going on in my life I half expect it. I'm the one always in the well less than 1% etc...of course it never happens that way if I buy a lottery ticket: :o( I finally got an attorney for my ssd as I just don't have it in me...I figure reaching through the glass and choking their employee is a bad bad idea ;D Hope everything works out for you!
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OMG Batty, your son! LOL That was a good one!
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Static, he's my best medicine sometimes he's a regular stand up comedian. He makes me belly laugh at least once a day..usually more! :D
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Hey all,
I don't think of myself as a litigious type of a person, but after reading this discussion, SS Disability looks to be something I need to take a 2nd look at. I checked the SS website like 1 month or so post-op to see if SS Disability was something I would qualify for given my state of being post op. From what I read initially, I didn't think I would be able to get SS Disability because I was more or less still of the mindset that most of the problems I was having then would go away, and I would return to my pre-op state of being. Here it is 8 months post-op, and boy was I wrong about my state of being coming anywhere near what it was pre-op.
Since it sounds like using a lawyer for representation with the SSA is the way to go....does anyone know of a good disability lawyer in the Washington CO. MD area? Or maybe a resource for where I can find a lawyer. I would much rather use a lawyer recommended by someone rather than picking one from random out of the phone book.
My fiance and I are already racking our brains trying to re-call a chain of events and contacts/conversations, etc surrounding everything that has happened with my AN.
L8R
Zokess.... >:(
This is a great web-site...Kudos to those who formed it and keep it going.
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Okay...so I did a quick web search for a lawyer in my area specializing in SS disability cases. I sent them my informaton, and just received a call from a lawyers office that told me the SS Administration will deny any claim if the person filing the claim is actively employed!! What a crock that is, I am not employed in the same industry or by the same company as I was when I has my AN surgery, there is no way I can do the job I was doing pre-op, and the job I have Post-op doesn't pay anywhere near what I was being paid pre-op. So the search goes on for another lawyer I suppose. It wasn't much of an issue initially, but now it's becoming a matter of principle!
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Bruce hate to be the one to burst your bubble but...the social security admin does not care if you are presently doing the job you were doing...they just care if you are able to do ANY job. I'm a teacher who can't go back to teaching and was denied (which I understand they typically deny everyone the first time) I did get an attorney and was told that they didn't care if I could teach they just cared about if I could work. He suggested a security job where I just check in badages and I had to laugh. As long as no one needed chased I'd be fine for about 4 hours until my back would start hurting so bad I'd have to lay down or pop pills. I asked him if they'd give me a gun so I could shoot anyone who got out of line....he very quickly said...er um you can't do that LOL
I was told if you're working at all you will not get ssd. I was only working 10 hours a week from home when I was denied. The doctors put me on complete disability due to stress and inability to cope with loud noises.
Zokes someone on here recommended I believe it was Binder and Binder and they are nation wide. I picked a local guy. You can not get an attorney until you have been denied the first time in Fl you might want to check out the requirements for your state. And like I previously told Bruce if you are working at all, they will deny you. Also, do what raydean suggests in the ana newsletter this month, I know it made a big difference with my doctors this last go round.
Best of luck to you both!
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Hi all,
Well, almost a month has past since last on-forum. SSA is such a battle to get or at least it has been for me. As Batty Princess says, if you work at all, they don't think you need SSA. Just because you don't look like you are disabled on the outside,doesn't mean that you aren't. My attorney has advised me to keep a diary/journal of my daily activities and how this is phsycially, and mentally is affecting me each day or in general weekly. I know I can't remember or hear as well, so that type of info can be deliberated on more in depth daily. I found out from my employer that my doctors so far haven't sent any clinical evidence as to why I can't do my job. Those of you who have Short-term Disability/Long-term Disability, be aware that if you can't prove your AN affects your job, you may be suspended or could be terminated. I wasn't made aware of this until I asked them the right questions. Your Short-term disability is nothing more than an insurance who has the employer's best interests in mind. My appeal was denied due to "No objective findings". I have been given 2 weeks to present that objective finding from my surgeon/MD to a special committee or go back to work full time or face the consequences.
My regional area hospital best suited for AN surgery or Gamma knife is in St Louis, MO. Rated 8 out of 10 best Neurological Hospitals and Research Hospitals. St Louis University Hospital is a Teaching hospital. Barnes-Jewish Hospital is highly recommended. My 1st surgical resection was done in St Louis but at St Anthony's Hospital 3 yrs ago. The Dr then no longer performs resections of the AN tumors. He recommended to me Ralph G. Dacey, Jr. M.D. as The BEST!(Wished I had know that then) He can be seen at Neuroscience Center, Center for Advanced Medicine, 4921 Parkview Place, Suite C, Floor 6, St. Louis, MO 63110. Phone: (314) 362-3570.
As for me, I am still undecided whether to make the trip to St. Louis or do it locally. We are blessed to have the Halston Cancer Center here in Springfield, MO. Dr Robert D Strang, M.D. is board certified and fellowshiped in Skull Based Surgery. He prefers to do Gamma Knife I've been told. I will be going to 1st appointment sometime in the next few weeks. To check out him and his procedures. RESEARCH, RESEARCH, Research!
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For those going thru the Social Security Disability process if denied it's important that you appeal the denial because there may be differences in the Judicators. All the Judicators follow the sames rules and guidelines but there may be differences in interputation.
To add to Battyprincess's posting, it's not if you're able to do the same job as before, but any job even if it's lessor pay. At the far end of the job issue scale if the job that you can do doesn't exist in your area, that doesn't mean approval, rather it could mean that you'd be expected to move to the area of availability of the job that you are able to do.
At least that's how I understand it.
Raydean
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I'm Worried!!!
Help!!!!
Sorry for the long note but I have a lot going on!!! :'(
You know you can look just fine and still be in pain and disabled. I found out this week, I have a partially torn rotator cuff. This has been an on-going problem that went undiagnosed by my previous Neurologist who performed my fusion on the neck. Since Jan 2006, my employer medical insurance changed and so rather than change doctors at that time, I continued on with him trusting his knowledge and expertise. I wish today I hadn't. After going thru 3 months of physical therapy and his nurse telling me the Dr pretty much felt he had done all he could for me, I finally changed to an In-network doctor in July. The first thing he asked me after reviewing my files, was did I have an MRI performed on my right shoulder? I told him No,... because the previous doctor didn't order it thinking all my problems were in my Cervical disks and nothing more than a muscular problem in my shoulder. I even took one of his painful shots in the shoulder/back to supposedly ease it up but it didn't help.
So a word of advice,...Don't always take your doctor's advise for the final explanation of your pains and suffering. You have to do what you have to do and get a second opinion sometimes. Not that I don't have enough going on with the AN tumor, and cervical neck fusions already mentioned,... now I get to see an Orthopedic Surgeon next monday for a torn rotocuff. By the way,... my mistake....Dr Strang prefers the surgical resection rather than Gamma Knife, but he will assist in the Gamma Knife procedure.
I'm not sure if I will pursue the SSA disability or not. My employer's short-term disability/long-term disability insurance folks have denied my pay by their doctor. I have been told I have until July 27th to produce documentation of "Objective Findings" which my 1st doctor never provided. I have to return to work, or be terminated.....thus losing my medical insurance and benefits. This is the biggest thing that we worry about when filing SSA Disability, and Batty Princess can vouch for that. I have a choice and a bad one at that.
If I go back to work in pain, I get to keep my benefits as long as I am employed. My attorney advises me to not go back to work if I can afford it because it will make my SSA Disability case look better showing that you really can't perform your job due to the pain. She also told me if I do go back to not work more than part-time. This makes my case harder to prove, since I can perform my job. Since my job is sedentary, they believe I can still do it within reasonable pain tolerances. HELP???? What Should I DO???? I am sure to have up and coming surgery for the tumor, and most likely the torn roto-cuff, so I will need my insurance. I can't afford to be without it. I left work in February of 2006 thinking my work short-term disability insurance would helpout until I am declared disabled by SSA. This is my delima:
I can't get the doctors to provide my employer insurance evidence (or so they say) showing "Ojective Findings". I hope the Orthopedic surgeon or my New Neuro Surgeons will do so before July 27th or I'm sunk. I have been told that evidence must more or less be a Function Report by a doctor showing what I can't do with my ailments in relationship to your job. This is expensive and probably not covered by insurance. The doctors have provided my records to them but that is evidently not enough. Of course they don't provide me what exactly they are looking for so what should I do???? Any suggestions??
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I'm not a doctor, lawyer or anyone special in the fields of expertise that is needed in your case. But from my outside looking in viewpoint.
The first priority would be keeping your medical coverage either thru your employment, or on a private basis. Health Insurance coverage is needed in order for you to have the needed medical for the AN and arm surgeries. The issue would be go back to work to keep your coverage at risk of the other issues. By law you are able to continue with your present coverage should you decide to quit, but you are responsible for the costs of this which can be very expensive.
It's important to remember even if all things went perfect with your SSD application and you were approved. There is wait time of (in 1998 it was 5 months, may be longer now) where no payments are given. As an example my husband was found disabled in August and started receiving payments in Feb. 5 months without income. Medicare does not step in for 2 years from the start of payments.
Which means you have to purchase your own health coverage for two years. (I pretty well depleted our savings purchasing health insurance during this time.) Even with Medicare supplemental coverage is necessary in order to cover everything that Medicare doesn't.
Sounds like you're between a rock and a hard place. At this point and time I think the financial issues and what you can or can't afford to do will lead you in the direction that you need to take,
will be the factor in which direction to take. I do understand how you feel and the difficult choices that you have to make.
Another factor to consider is should you decide to quit your current employment It would be necessary for you on a private basis to continue with either your current health coverage at your expense, or purchase a different coverage at your expense with no laspe in time. Coverage must remain continual. Should there be a laspe in coverage then "pre existing' clauses will come into play and thats another hugh headache.
Idon't think there are any easy answers. Would it be possible for one of your Doctors to write an release for "light duty" what would place limits on what you are able to do that would help to protect your arm and limit the pain. Could there be modifications in your work place environment that would help with the medical issues. Does your company have a Human Resourse person (all larger companies are required to have one) that will assist you and work with you to help with the disability issues that affect your work? Modifications, changes in equipment, maybe a different job within the same company?
There's alot on your plate right now. Know that we care and will help in any way possible.
Best to you
Raydean
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Thanks for your quick reply Raydean. Sometimes we just need a listening ear to bounce things off of ourselves. Great advice about continuing my insurance if terminated. Thanks to you jogging my mind, I remember my wife is a school teacher, and if I lose my job, she can add me on to her insurance. It is not as expensive as cobra nor is it as good of coverage but it will suffice. I will have to be added on immediately if that happens as you say, they will think of it as pre-existing otherwise. As for money, I have thought of bankruptcy as a last resort. I also have 401K and IRA to fall back on for awhile(may last 2 years)but I hated to use that. I wanted to keep that to supplement my SSD. I also found another forum that may help others here on this one in offering legal advice. http://www.laborlawtalk.com/index.php?
I posted to it my concerns about STD/LTD problems with my employer and what if any legal actions could be taken. Someone told me you also could file a complaint with (EEOC) Equal Employment Opportunity Council and it is no charge for them to investigate if they feel you have a valid complaint.
Thanks
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Do any of you have State disability programs in your area? or has this already been exhausted? I live in California and I am currently on Ca State Disability and this can cover for up to one year and it is based on if you are able to do the job your were doing previously. I am not sure what states you live in or the laws in that state but this should be a short term option for some of you. I have been on Ca State disability 3 times since my AN surgery (9 months then 5 months and currently for 3 months and counting), I was able to return to work between disability claims, so the clock started over each time.
Cheryl
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Hi
I live in Missouri and none that I'm aware of other than SSA SSI.
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OK,
I gave it up and went back to work. I felt if I could do my job and make a living, I would be better off financially, so I'm going to try it again. Against my attorney's advise, I did this. I need the insurance to have further treatment of my new AN tumor. My wife's insurance was expensive and so this is an option I can't take except as a last resort.  Each person is different in their abilities and what they think they are capable of . The attorney did say to try it for 90 days or less and I could still keep the SSA case open. After that, ...it would be closed. I know I'm not well and I know I can't do my job as good as it was for me in the years past. My pride won't let me file bankruptcy. I now feel like I'm being scrutinized by my employer as being a person who is a complainer, chronically ill, depressed, and trying to fake SSA due to my symptoms each day. They are afraid to fire me for the fear of EEOC and ADA being on their backs. So far, nothing has been said about my STD or LTD being paid to me for the months off work. I guess I should count myself lucky to have the job still.
I borrowed a loan on my 401k at work and an Insurance policy. This was just to pay my doctors and for the physical therapy for the misdiagnosis. I just love Doctors!!!!!! My neck injury is not painful anymore but I have limited neck movement. The Carpal Tunnel seems better now that I wear a support at night but I still have a lot of pain. The rota-cuff injury is minor enough not to cause me problems as long a I don't lift anything or extend my arm upward and out. Hopefully, both will heal on their own in time without surgeries. The main issue is the AN regrowth. I most likely plan to have surgery soon and will need my insurance. After that,...who knows what the outcome will be. HR has told me, my FMLA starts over again in 3 months, but my STD closes in 2 months.ÂÂ
I feel pretty banged up and defeated both physically, and mentally. Filing disability will have to wait until I'm near death I guess.
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I have had my seconf denial in the SSD process. My daughter is a paralegal, so she and her boss helped with the first two processes. When I was denied the second go round her boss, who is an excellant personal injury lawyer) referred me to an SSD specialist. After speaking with me and reading this forum, he took my case and now we are in the waiting for the appeals hearing. HE said that because I had not been off work for a year since my surgery I was denied the first two times. ALso, both my ns and ENT wrote that I had severe balance problems but they WOULD get better in a year, no problem. I did a walk test and a few others on my one year anniversary for my ENT and NS and told them both they needed to go back to school or at least read up on AN's and what happens to us after surgery that most of us are not made aware of. The waiting process here in Texas for the appeal hearing is about a year and a half. By the time I hear something I will be off three and a half years.
My husband has an excellant job, but I've always worked and had my own income and I don't like being dependant. I had worked for thirty eight years before all of this happened.
My Dad applied for SSD back in the 80's. He passed away three days before his approval letter came. We thought that my Mom would get the back SSD money because you do receive a lump sum of the monthly amount for the number of months from when you first applied. No such luck. SHe receive a check for burial expenses and wrote accross the face of it in big red letters : DENIED. She sent it back with all of the paperwork they had submitted and the paperwork Dad and his Docs had submitted. She was guttsy lady.
I hope that the time frames help some of you. ::)
BrendaO
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Brenda O
Boy are we in the same boat! I've been denied twice as well and am working with an SSD lawyer. It's been 1 1/2 years since I started with the atty and the same since my second denial. I, too, have a hubby with a good job and hate being dependant. We don't even have a joint checking acct. Last year, I sold off much of my private art collection that I wanted to leave to my grandkids to pay my medical bills and health insurance. Unfortunately, I am self-employed and have been for years and that is a worse-case scenario for collecting disability.
Capt Deb 8)
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I was just told last week if my appeal is denied it's a long line for a hearing and the entire process could take up 3 to 5 years. That's just WRONG! I could be living in a cardboard box under the bridge by then...hey maybe I'll be skinny so that would be something to loo forward to right? ;D
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I was denied also. Didn't surprise me one bit. I expected it, after reading about all of you guys not getting it and most of you are worse off than me. So....oh well. I'm only a year and a half away from collecting Social Security...It's not that big of a deal to me. I guess.
Sue
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did you appeal? they deny almost everyone on the first try.
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Brenda O
Boy are we in the same boat! I've been denied twice as well and am working with an SSD lawyer. It's been 1 1/2 years since I started with the atty and the same since my second denial. I, too, have a hubby with a good job and hate being dependant. We don't even have a joint checking acct. Last year, I sold off much of my private art collection that I wanted to leave to my grandkids to pay my medical bills and health insurance. Unfortunately, I am self-employed and have been for years and that is a worse-case scenario for collecting disability.
Capt Deb 8)
Deb,
I was self employed for a number of years too and didn't pay as much as I should have but, back then I was also a single parent so I did double duty with raising my girls. We don't have a joint checking account either, but my father-in-law (bless him) tells my husband that I work as hard if not harder than he does and I deserve far more than he gives me. He is getting much better. I wish his Dad lived closer. I'd live like a Queen! Not quite but almost. I'm really lucky I live in a community property state and my daughter reminds me often that I have a right to be taken care of. I may have the right, but I don't have to like it!! A friend of mine who had a cancerous brain tumor removed at 25 finally received her SSD just a few months before the appeal's hearing. She keeps me up to speed on how things work and how to get them moving a little faster. She just turned 28 and is doing better than anyone ever expected. I'll keep you in my prayers.
BrendaO
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Hi All,
I have a quetion that you might be able to help me with. My daughter was diagnosed with a 6 cm AN in June "06. She was admitted to the hospital on June 16 and released Sept. 16th. She still has to go through a series of radiation treatments, 30 in 6 weeks, as there were atypical cells. She turned 18 in Aug. She was to start college this year which she has had to defer. Several people have suggested that she apply for SSD. She did work her senior year and quit in June because of her situation. The question I have is, can she recieve SSD if she is going to school? It was in the plans that she work part time while in school (10-15 hrs.) but I'm not sure she will be able to do that. On the other hand, If you are going to school can you recieve SSD? Does anyone know? Thanks.....Michelle
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Michelle,
I suggest you call your local Social Security Office. Before you go through all the hassle of applying it's best to know if she would even qualify.
Capt Deb 8)
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Michelle,
Go to www.socialsecurity.gov and go to the SSI section. You have to have enough work credits to get SSD but SSI is not based on that. It's a long and detailed process. We have applied for Taylor, but they tell you it will be 120 days before you are approved or denied. We just did this in the last couple weeks so it will be the end of Feb. before we know anything. As long as she lives in your house, your income is considered, too, but don't let that stop you unless you are wealthy.
Check out the web site and do your research. Their are lots of rules and guidelines they must follow (surprise!! Government paperwork. They don't make it easy) But if she can qualify for a little money every month for awhile, it's worth it.
Good luck,
Kathy
PS--Glad Chelsea is doing better!!!!!!!
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Ok,
I know it has been a long, long time, but I had to come back and let you all know that I finally got Social Security Disability! I filed way back in Feb 2006 and then after frustration tried to go back to work in Aug 2006. I had radiation (Cyberknife) treatments in Nov 2006. That combined with previous AN surgery in 2003 did me in. I left work again in Jan 2007. After waiting for over 2 years to get my first hearing, I finally got it. At my hearing, The Judge didn't award me my original determination date of Feb 2006 because I had tried to see if I could work. You can get penalized for that if you work more than (3 months) Social Security will allow which was the case for me. That's another subject but anyway,...I finally got it and the determination date was for Jan 2007.
I have vertigo, right-sided total deafness, and tinnitus as the result of my AN tumor and the main reasons for disability. I have other physical problems combined with this, but the amazing thing I remember most is what the Judge asked me. She wanted to know in helping her decide my case "what is the most dibilitating symptom I had. "Would I agree with her it was my Balance or Vertigo that caused me the most problems?" I looked to my attorney who was nodding his head and told her "yes, I would agree". Now, I know that is not the only thing that we AN'ers usually have wrong with us, but for this Judge, that was the one thing she felt would be the deciding factor to her that I was disabled. Just a Hint when you present your case to Social Security.
My previous job was in a sedentary job, and I did very little walking about in the office. I did use a telephone a lot and I felt my hearing loss and not being able to hear conversations well enough to understand speech would get me disability. My attorney admitted this is a serious symptom in and of itself but not enough to get disability by itself unless you are totally deaf, or one-sided deaf and hard of hearing on the otherside combined. I do have problems getting around without using my cane both at home and other places, so... I guess that is another reason they chose vertigo as my main problem. Listen to your attorney and take their advice.
My attorney was a former staff attorney of Social Security Disability. He not only knew the in's and Out's of Social Security, but he knew the Judge, how she makes her decisions, type of person she is, her background, and etc. He did his homework, don't you think? Even though I got disability, I still feel the process could be quicker and more simplified and if you are trying to get it on your own, most likely, you will fail. "Bite the bullet" and get a "Good Attorney" who knows how to play Social Securities little game, and beat them at it!
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Congratulations! Glad to hear that the system finally worked for you!
Brenda
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I applied six months out becouse i had a cleaning bussines......due to vertigo ,balance,fear of walking in public w/o falling,anxiety,major neck issues,short term memory loss...got approved through SS office ...it was then sent to another eview board in PA....denied and sent back to local office..who fought for me .where they had all agreed i was clearly disabled...sent back to Pa office and approved.
best of Luck...fight for your rights...keep all mri,vetub rehab info,drs visits er visits and all recomendations for these offices.