ANA Discussion Forum
General Category => NF2 => Topic started by: hgtvqueen on February 18, 2010, 01:34:32 pm
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Has anyone used Cyber or Gammaknife to treat any of their NF-2 tumors? Our physican recommends against it due to young age and the fact that "no one knows the long term effects." What what your outcome?
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Hi
I cannot answer to the NF2 portion of the question... but, I can assist with a terrific link from the CK forums ... by Dr. Medbery, re GK/CK and age
http://www.cyberknife.com/Forum.aspx?g=posts&t=2528#jumptobottom
Phyl
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Hi,
I'll share my family's experience. Please bear in mind that these are only personal experiences, not research-supported facts.
My brother (nf2) had radiation treatment on both tumors. Both grew susequent to treatment and required surgery. He also lost most of his hearing after treatment.
I hope that this helps.
Jeff
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I was just reading a detailed review article today and from what I remember it stated that the success rates with radiation are significantly lower for NF2 patients.
Marianna