General Category > AN Issues
Referred by Dr. Google...
MaureenInNJ:
--- Quote from: Greece Lover on April 13, 2021, 02:26:53 pm ---Maureen,
RELAX. Whatever happens it will be OK! One reason on here you read stories like yours that always result in the tumor is because people who didn't have a tumor DON'T COME ON HERE! There are lots of things that can cause various symptoms. No need to freak out over what you don't know. (I know it's easier said than done.)
That being said, maybe a second opinion would be a good idea, or at least go back to the Dr. to have her/him explain why the CT instead of the MRI.
Good luck!
--- End quote ---
Indeed. Whatever it is, intellectually I know that worrying about it does nothing! Most things in life are simply out of our control.
Trying my best to not obsess, working on taking this one step at a time. It ain’t easy
MaureenInNJ:
--- Quote from: chloes mema on April 15, 2021, 07:19:56 am ---I was speeding reading thru your post so if I missed this my apologies.
I would insist on an MRI with contrast to finally determine if you do or don't have a AN.
You have to be your own health advocate!
Good luck.
--- End quote ---
This is something I have learned well over the years. It is unfortunate but true that we can too easily be dismissed. Or symptoms can be chalked up to anxiety, etc. My appointment with the neurologist is tomorrow, Friday, afternoon. I certainly plan to push for an MRI with contrast and just move this along. If this doctor doesn’t agree, I will start the process of finding a new one. Which of course is never fun because it’s impossible to get appointments in a timely manner, but we do what we have to!
Greece Lover:
Good luck today and let us know what happens. One "GOOD" thing about these tumors (if you even have one) is that they're rarely an emergency. You have time. But you're also right--it's hard not to be anxious.
I live in Iowa now, but I spent 7 years in New Jersey. Didn't think I would ever miss it, but sometimes I do!
MaureenInNJ:
--- Quote from: Greece Lover on April 16, 2021, 08:23:11 am ---Good luck today and let us know what happens. One "GOOD" thing about these tumors (if you even have one) is that they're rarely an emergency. You have time. But you're also right--it's hard not to be anxious.
I live in Iowa now, but I spent 7 years in New Jersey. Didn't think I would ever miss it, but sometimes I do!
--- End quote ---
Hello former New Jerseyan!
Well. I waited over an hour for a doctor to spend 10 minutes with me and put it back on the ENT. One of the most disappointing doctor visits I've ever had. Totally dismissed me.
She had me take maybe 6 steps heel to toe, close my eyes, basic exam. Then pokes me over my face and tells me if I can feel it I'm not numb. I said, "I never used the word numb, I said a strange tightness, an odd sensation."
I didn't expect a diagnosis, but at the very least I'd had no doubt I've have a script for an MRI. Nope. Told me to follow up with the ENT. I left there MORE anxious than when I arrived.
She said, 'you are sniffling, have a lot of allergies.' Yes, NOW my allergies are in full swing. They were not when this started in FEBRUARY. I've been in my body for 52 years, I know what is normal for me and what is not. Frankly there was also a great language barrier that didn't help matters.
I called a few other neuros on our plan, all booked solid. The soonest I can see one is JUNE. I'm on the waitlist for a cancellation.
I'm going to see if I can at least get in sooner with the ENT and push him.
I'm so upset, so anxious, so frustrated. As everyone here knows it is difficult to distract yourself from any symptoms taking place in your head or face or ear. If my toe was bothering me it would be a bit less distressing!
No one WANTS to have an MRI, but I know I need one. I'm in such a scary, anxious place right now.
Greece Lover:
June will come sooner than you think! I looked back at your original message, and it doesn't seem to me that you actually have any of the classic presenting symptoms. Having symmetrical hearing is a counter-indicator for a tumor. In the lead-up to my surgery, I felt what I thought was tingly sensations in my face and my Dr. said that it likely was not from the tumor and more from my own hyper-sensitivity knowing there's a tumor in there. At any rate, I know it doesn't help, but there are a hundred things that could be causing your symptoms that don't involve a tumor.
good luck, and let us know what happens in June!
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