ANA Discussion Forum
General Category => NF2 => Topic started by: nancyann on April 16, 2008, 06:51:02 am
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I am writing this for all of you with NF2 just to let you know how much I admire your strength for all you endure.
You put my issues in perspective. This has been on my mind lately, so I had to write it down.
You are all always in my thoughts & prayers, Nancy
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Nancy -
I couldn't have said this any better. Thanks for expressing something that I should have said a long time ago.
Jan
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Nancy~
You are so caring & compassionate of others...what a wonderful person you are!!
K
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Thank you Nancy. NF2 can be very life altering and I was shocked when I found out that I could have such a condition. I do feel fortunate that mine was of the older adult type. I still have my days of 'Why me"
You have been thru a great deal and I do think of your fortitude in dealing with it too and hope for continued improvement. Everyone here has their own battle!
Cheryl R
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Nancy,
I appreciate your kind words. We all have challenges in life. All that we can control is how we react to them. Have a great day!
Jeff
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Hi Jeff: You are so right that it's how we react to the stressors put in front of us.
I am totally amazed with your strength & perseverance.
I have always had a love of music; every day on my way to & from work, I turn on the classical radio station,
then I think of you, your life & love of music, now it is in your memory to bring it to your consciousness to hear,
not by sound but by mind.
It is all mind over matter.
Always good thoughts for you Jeff, Nancy
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I truly echo the sentiments of all NF2'ers on this board and thanks a million for your thoughts and compassion. I have said it a thousand times-we take so much for granted in this life until we lose it. I have a 2 box record collection of Rock Music and Country that i collected when I was young from the early 70's and 80's. I used to record these songs every once in awhile. I can still hear some with the use of a hearing aid but the pitches in music I can no longer decipher-so music is out. I look at these albums and sigh for what I took for granted. HEARING. My wife and I are up too over 100 words now in Sign language. I can actually communicate now in full sentences via Sign language. We had a lady named Sue Thomas speak at our local University. She was born deaf and ended up working for the FBI for Three and a Half Years. She was hired when she was younger because she could read lips through Binoculars. She is retired now. She talked just like a normal person without ever hearing what words really sound like. What an inspiration. I guess we need people like this in our lives to show us the way to oversome all barriers in our lives. Thansks Again for your concern. God Bless-Ron
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Ron~
There was a show on for a while called Sue Thomas-FBI -- we LOVED it!! My whole family liked it and my daughter is always asking why it is not on anymore. The real Sue Thomas had some cameo spots on it!
K
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Kaybo- She actually mentioned this show in her speech. I had never heard of her or the show before she spoke at the University. I guess she travels the world now given speeches. her main point was- Don't ever let a specified disability get you down and get the best of you. There was alot of deaf people in the front row. They were using Sign Language like crazy of course> I am not that good yet so I was kinda lost. The lady that is teaching my wife and I sign language was the interpeter for this event. Her folks are deaf but she is totally hearing. I went over to meet them after the event, but they kept on looking at their daughter to see what I had said. Thanks for your reply and take care. Ron
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I saw this on a Blog that I read.
(http://img.skitch.com/20080417-p9ijbkb1sj2e14d5rrgdwtwjpt.png)
It seems appropriate for our discussion.
Have a great day,
Jeff
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Jeff,
That was great!
Before I had my surgery I asked my oldest grand daughter to sing "God Bless America" for me. She sings like a bird and I knew that once my surgery was over, nothing would sound the same. After I found out that I have the second AN or NF2 a few months ago, she came over and without any prodding sang my song for me. I don't know how long I will be able to hear her sing, but when she did it this last time I put my hands lightly on her throat as she sang. I now know what the song "feels" like and she has promised to sing it for me no matter what.
Brenda