ANA Discussion Forum
Watch and Wait => For those in the 'watch and wait' status => Topic started by: Lesley BC on October 15, 2010, 11:07:16 pm
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Hi Everyone!
I am a Newbie! I have been reading info on this site for some time, very interesting to see that I am experiencing many of the same symptoms regarding balance and concentration issues. I'm not alone!
I was diagnosed with an AN on the right side in June of 2007. I was referred to an ENT specialist because I felt I was gradually losing my hearing on the rt. side. I was sent for an MRI and was shocked to discover that I was diagnosed with a 2.3 cm AN. I've been on W&W for the past 3 yrs. having an MRI every six months. My hearing is gone in my right ear completely. I am presently waiting to hear the results of my latest MRI 10 days ago. Last Feb. the report was that it may have grown or perhaps had been viewed from a little different angle. I also have tinnitis in my rt. ear and once in a while in both. Weird! So far I have retained the feeling in my face right side.
Three years ago I felt that I wouldn't have the surgery and if it grew I would go in for the Stereo-tactic radiation therapy after seeing two specialists at the Cancer Centre in Vancouver. But after living with the knowledge of this neuroma for 3 years I feel my life is going forward in 6 month segments. I don't know what the future will hold. If I can see the "right" neurosurgeon, I believe I will go for the surgery if the doctor feels it is the best solution for me. L.
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Hi Lesley - Sorry you had to join our group but there are wonderful people here who care.
I am a wait and watcher for 9 years and I take turns thinking I may want conventional surgery versus radiosurgery, if and when the time comes. Part of the reason is probably because I consulted in Boston this past summer with a neurosurgeon who specializes in brain stem and was very confident and knowledgeable. Just remember a neurosurgeon is a "surgeon" and will more than likely tell you that you should have surgery. If possible, I was told the best M.D. option would be a neurosurgeon who does radiosurgery and conventional surgery - he/she wouldn't be as biased towards one procedure.
Good luck and keep us posted.
Sheryl
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Hi - and welcome!
I'm sorry you have an acoustic neuroma to deal with but thanks for joining our discussion group. I hope your MRI doesn't indicate new growth.
I moved your post to it's own thread for better responses.
Jim
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Welcome Lesley. I'm sorry you have an AN. It stinks and we all know it. You have been waiting a long time. My AN was a little larger than yours when I was diagnosed, but I did take a long time (I think it was) to find a surgeon and then have surgery (diagnosed Apr 09, surgery July 10). I had my surgery in your town, though I live in Ontario. There are many great neurosurgeons out there but you have one of the finest right there in Vancouver.
When you are researching surgeons (if you finally decide to do it) I would recommend you consult with Dr Akagami.
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Lesley,
Wanted to also welcome you to the forum and sorry we had to meet here, but you are now part of the biggest and most caring AN community. I understand the feeling of just wanting the bugger out, I don't think I could have had GK/CK/FSR, just because I would always want to know what was going on in there.
This is a very personal decision and one of the toughest ones you will have to make.
Hang in there,
Liz