General Category > AN Issues

my an story + add on

(1/2) > >>

neal r. lyons:
hi i'm neal newbie  finally had an MRI on 4-26-07 in fairbanks,ak result: acoustic neuroma 2.6x2.8 on 2-3-07 while waiting for shrimp burger i was invaded by a tingling sensation starting r.side chin and rapidly up to r.side head(i still have r.side numbness today 5-27  went 911 to yakima reg. hosp.)they( 2 family medicine local doctors) said i may have had a TIA-mini stroke discharged next day(superbowl sunday)and put on small aspirin daily and had 9(in richland,wa.)follow up nuclear stress test(passed) and my veins in heart and neck checked okay was put on lg aspirin and cholesterol med(crestor) saw another fam med dr(my sister's) and was told i,d had a mild stroke and was lucky he put me on bp med as my bp had spiked to over 200 on 2-3  could not get in to see a neurologist in richland because i did not have my ins. card on hand(that's another story) don't leave home without it if you have ins.the bottom line is (hindsight) i should have had an mri right away and/or seen a specialist  apparently, there are plenty of folks out there who are not aware of symptoms of an's such as two that i had:sudden loss of hearing a few years prior and numbness of face  i'm scheduled for sub-occipital tumor removal on june 1st at uw med ctr in seattle  i've consulted with 2 surgeons who will be attending(still want to get some questions such as their track records answered) any advice will be appreciated by the way a note on brown paper bag on my car window said they owed me a shrimp burger and coke when i returned to my car i collected!  i need to add that i may decide to postpone the surgery  i think i'm rushing it  a little  more research begs more questions  time,fortunately is with me  i need to be sure of  my decision-bye for now  i'll keep you posted sincerely,neal

Windsong:
ah.... am wishing you lots of  good wishes for june 1st and wellness after !!!

i saw a number of neurologists before my An was diagnosed and they all noted the areas on my face that were numb but not a one thought of following up for an An... interesting thing for me over the years is that the numb areas for the most part now behave and i don't notice them... (well not in the same way as when they first started...)....maybe there was some sort of new nerve pathway set i don't know but the brain is a mysterious thing and so are nerves sometimes....

W.

Obita:
Hi Neal and welcome to the forum.

I am three years post op and doing super.  Finally getting the diagnosis is shock and relief at the same time.  At least, knowing what it is, explains so much.

Good luck to you on the first and plan on taking it real easy for a while post op. 

Kathy

Betsy:
Hi Neal,

Thanks for sharing your story with us.  I went down a similar path before I was diagnosed.  Very frustrating.  Kathy's right...when I finally found out it was an AN, one of the first emotions I felt was relief that the unproductive testing was over.  Will be thinking of you on June 1st.

Betsy

Obita:
Go with your gut Neil.  If you are not 100% sure that surgery is right for you, postpone it until you KNOW which treatment you want and when.

Good luck to you, Kathy

Navigation

[0] Message Index

[#] Next page