ANA Discussion Forum
Post-Treatment => Headaches => Topic started by: Captain Deb on November 20, 2009, 06:46:30 pm
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I was snooping around on the web and ran across this. It has a lot of medspeak in it, but really explains a lot of my own symptoms. A lot of good info on nerve blocks and Botox as well.
www.painmanagementrounds.org/crus/painmgt_07.pdf (http://www.painmanagementrounds.org/crus/painmgt_07.pdf)
Capt Deb
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I also found two Occipital Neuralgia groups on facebook.
http://www.facebook.com/group.php?gid=44913483837 (http://www.facebook.com/group.php?gid=44913483837)
http://www.facebook.com/home.php?#/group.php?gid=165457894202&ref=mf (http://www.facebook.com/home.php?#/group.php?gid=165457894202&ref=mf)
The latter has a lot of information about docs doing surgery and the Medtronic stimulator implant for this condition. Here are a few articles on the stimulator
http://wwwp.medtronic.com/Newsroom/NewsReleaseDetails.do?itemId=1214482108297 (http://wwwp.medtronic.com/Newsroom/NewsReleaseDetails.do?itemId=1214482108297)
http://www.neurotechreports.com/pages/occipitalnerve.html (http://www.neurotechreports.com/pages/occipitalnerve.html)
and a you tube video of a guy who had one:
http://www.youtube.com/watch?v=j_STzpWLSHA (http://www.youtube.com/watch?v=j_STzpWLSHA)
http://www.youtube.com/watch?v=T2TvRL8BXpk&feature=related (http://www.youtube.com/watch?v=T2TvRL8BXpk&feature=related)
(Cheese on bread, this looks like a post from our own dear sweet Daisy Head Maisey AKA Hilary AKA 4cm!)
There has to be a cure for this crap out there somewhere that will work for me and others like me that won't force me to sell my house!--research, research, research!!!!
Capt Deb
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Hey Deb! LTNS!! Still here and still going crazy with the headaches. I'm just really tired of it all and am ready for a cure. Enough already!!! BTW, thanks for posting the interesting articles...... things I have been trying to tell my doc for quite some time :( Hope you and Sadie are well :o)
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Hey Karen!
Good to see you here. Or rather, too bad I have to see you here, I should say. Still in headache-land, huh? That sucks. I am having Botox in 5 weeks and can't wait! Have you ever had an occipital nerve block? They worked pretty good for me for a year, but the doc says no more cortisone in the noggin for a while. Researching my options for a surgical cure at the moment. I think I've got some scar tissue that is irritating the nerves in my head. Maybe I can find a doc that can untangle that mess!
Hig big hugs to the pups and the kids for me.
Captain Deb