ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: Zan on July 24, 2017, 08:05:11 pm
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hello
My Middle Fossa surgery is scheduled for October 3rd. I live alone and my friends and family are trying to convince me to say with one of them when I get out of the hospital. I REALLY want to go home and sleep in my own bed and spend some time with my cat once I am discharged. I am planning on hiring a housekeeper to come in once a week and I have various friends who have offered to bring me meals. I have a couple of close friends who live within 5 or 6 blocks and my upstairs neighbor, who I have known for 15 years, has a key to my apartment and could hear me if I called out to him.
I am sure that if I have serious balance issues after surgery, I might have to rethink staying alone. But other than that, I would love to know what other's post surgery experiences has been and if they could or did live alone right afterwards.
thanks,
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Although I can understand wanting to be in your own bed I don't think this is the best plan.
I had my tumor removed twice, once @ 23 and the 2nd time in my mid 30's and I would not have been able to stay alone after either surgery.
At least for a few days on discharge can't someone come and stay with you ?
Kathleen
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Zan
I would be interested in the responses of others to the issue of recovery. One person I contacted said they needed vestibular therapy for five weeks post middle fossa surgery. Regardless of the surgical approach I think balance can be a big issue, but not always for everyone.
Good luck with the surgery.
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I had retrosigmoid surgery andwas discharged from the hospital 3 days post surgery. My sister stayed with me for a week. I did have balance issues-used a walker to get around and could not bend over (that makes it challenging to do some things for self care). I also had ALOT of medications to take post discharge. You taper off steroids for one thing. The meds were on a complicated schedule and I am pretty sure I was not functioning well enough to be able to adhere to the right schedule without help. I could easily have taken the wrong meds at the wrong time. I would strongly encourage you to get from someone who can stay with you-at least for a few days.
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Thanks for the responses.
It sounds like it would probably be easier if I stayed with one of those offering. My apartment is small, my sofa is lumpy and I have a cat that would cause most of my family members to have an asthma attach.
I have an appointment with my neurosurgeon on Friday and I will run it by him and see what he thinks. I still think I could do it though. My upstairs neighbor (and close friend) suggested that we get a baby monitor so that he can hear me better if I need him. Maybe that would work.
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Definitely talk to the MD. I know you want to be home - I know I did and I was lucky to have my sister willing to stay with me. If people offer to help please let them. It is awesome for them and for you. I bet those who offer know about the lumpy couch and the cat and still want to help. :)
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I believe it's possible to go and buy (non-lumpy) couch's :-) And for a lot less than the cost of surgery.
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Being in your own bed is ideal for the first days home. Having someone to help with medications and proper nutrition / hydration is key. I am a physician in my 40s and never did I need my mother more. She stayed for one month postoperatively. Please accept the help offered.
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I spoke with my neurosurgeon (Schwartz) the other day and he said that there is very little chance of the cutting my balance nerve in my surgery, so as long as I feel steady on my feet, he is fine with me being home alone as long as someone is close by. I spoke with my friend who lives upstairs and he is ready to be there for me. We live in a 2 unit apartment building with thin walls. We have literally talked to each other through the walls before. But for this, we plan on getting a baby monitor.
I am going to check with Dr. Slattery to make sure he agrees that the balance nerve will not be cut. Dr. Schwartz said that this surgery is all Dr. Slattery's and I should ask him all specifics. He is the "facial nerve guy".
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Zan, which surgical approach is planned?
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Middle fossa. Although Dr. Schwartz said that since my tumor is on my facial nerve, the surgery will be alighly different than it is for those with AN
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Thanks for the info.
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Zan, although everyone is different we all can agree the first week is pretty tough. Be sure to have a walker or cane for walking and chair for the shower. You will not feel like standing to fix coffee and food so be sure friends will drop by to fix meals and clean up the kitchen. You could always plan on managing and then if you are unable to cope, have someone come or go to friends for a few days. Good luck to you.
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I wish you luck with your surgery! Every surgery's outcome will be different and everyone will experience it differently. Plan for the worst and hope for the best. You might arrange for possibly staying with friends or family for a few days until you get your sea-legs. You can always go back to your own home early if you're up to it. But it'll be comforting to know that you're able to stay with family of friends another day or so if needed. You might begin to make small changes in your home. Rearranging things with the thought in mind that someone will soon be there that has balance issues. Get rid or move things that you might trip over. Move things from lower cabinets to counter height locations. Take things out of upper cabinets and move them down to counter level. Bending over will be a NO NO for a while. Reaching up to upper cabinets put my head into Wonky Mode. LOL! Put those small night lights that plug into outlets in your bedroom and the pathway to your bathroom and any other path you may need to walk at night. You will probably have problems navigating in the dark. Most of us do! Be sure to keep your cell phone "ON" you!
I was very fortunate with my surgery. I went in on Tuesday and was discharged Thursday two days later. I felt fully capable of being on my own.
When you're out of surgery they will assess you capabilities of living independently post-op. Discuss your plans with the staff and doctors and take their advice to heart!
Wish you the best ZAN!
Gunns
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thanks Gunns. I had thought of some of that stuff, like getting slip on shoes and a chair for the shower, but would not have thought to put things on a lower shelf. The good news is that the lady who lived in my apartment before me had mobility issues so there are bars in the bathroom that will be helpful.
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hello
My Middle Fossa surgery is scheduled for October 3rd. I live alone and my friends and family are trying to convince me to say with one of them when I get out of the hospital. I REALLY want to go home and sleep in my own bed and spend some time with my cat once I am discharged. I am planning on hiring a housekeeper to come in once a week and I have various friends who have offered to bring me meals. I have a couple of close friends who live within 5 or 6 blocks and my upstairs neighbor, who I have known for 15 years, has a key to my apartment and could hear me if I called out to him.
I am sure that if I have serious balance issues after surgery, I might have to rethink staying alone. But other than that, I would love to know what other's post surgery experiences has been and if they could or did live alone right afterwards.
thanks,
Hey Zan - How are you doing? Your "Hot" date is coming up pretty soon. When I was at this point I just wanted to get it over with and get on with my life. Keep us informed on how you're doing. We'll be thinking about you!
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My surgery was changed to the 26th. I am happy to say that it went very well. I was out of ICU first thing Wednesday morning and home by Friday afternoon. I was incredibly lucky that they did not need to cut my balance nerve and my hearing loss is only temporary due to blood build up and swelling at the incision. My tumor was not in the auditory canal, so I was lucky. My facial nerve, were my tumor was, was also saved and I have about the same minor paralysis that I had before.
As far as my home alone status, I had a friend who had come from Vegas to stay at the hospital on Friday night. Since I was released, she spent the night on my sofa. It was nice to have someone there. I had also let my friends set up a care calendar and while I appriciated the people coming over, I felt like I had to entertain and did not get quite enough rest the first day. By Saturday night, when the last friend left, I was so happy to have some alone time. I went online and cut the schedule down on the calendar so that I only had three people a day with 2 hour breaks between people. Again, I retained my balance, so I can do a lot for myself. I can't lift, so I let my friends take out the trash or get groceries.
What I did not expect was that they had to cut one jaw muscle. I am still on a soft diet and can not open my mouth very wide. It is getting better and I managed a small salad today. That made me very happy.
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Hey there Zan!
Glad to hear that you're happy with the outcome of your surgery. Saving the balance nerve is fantastic and saving the hearing is a major bonus! Your issue with the jaw muscle is the first I've heard of. It seems a lot of us on this site are single sided deaf (SSD) and have balance issues that last from months to years. I hope that the facial paralysis you mentioned clears up for you soon. But Ga-Dang Man it sounds like you are going to do great! Keep us posted on your progress.