ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: Kaci on October 17, 2022, 11:11:27 am
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I had AN removal in 2017, I had my 5 year MRI scan/check up back in May, all was good. The last few months I have been experiencing upper lip twitching and sometimes I can feel it in the nose area. Its not constant but its on and off on a daily basis. I would like to think that maybe the facial nerves are still repairing themselves and these twitches can be normal. Has anyone else experienced this?
Thank you!
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Thank you for sharing your experience, Kaci!
That is what the forum is all about. It seems odd to me that this would happen 5 years after your surgery, but the one thing I have learned about acoustic neuromas is that nothing is strange. While we share many things in common, there are a lot of things which are different among all of us. None of us travel the exact same path.
With that said, I would also love to hear from anyone who has experienced what Kaci has.
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Kaci,
I did not have surgery, but did radiation. I had the radiation side mess with my facial nerve too. I like how you are thinking, I say the same thing to myself that it is the nerve still coming back. From different things I have read nerves can take years to heal, so I always say there is hope.
Good luck and I hope that it what is happening!
Like Don says, please keep us posted.
v/r GB