Post-Treatment > Headaches

10 year post cyber knife treatment headaches

(1/3) > >>

ash:
Treated at Stanford. New mri shows no growth.  Headaches are now unbearable.  Two specialists in Philadelphia state radiation damage, start reading lips and pain management.  Stanford feels 10 year out highly unlikely and is auditory nerve virus and put on strong steroids. Any information is appreciated. Thank You

donjehle:
Thank you for updating us, ash!

I'm glad to hear that the mri shows no growth.  That's wonderful to hear!  It's not so great to hear about your terrible headaches.  I have no idea if this could come ten years after treatment.  Hopefully, some others on the forum can share their experiences and whether it could have come from a virus.  I hope the strong steroids help you more than they did me.

Let us know if you find an answer.

ash:
Almost finished steroids.  No help. The headaches seem to be caused by higher pitched sounds.  I can’t use my hearing aids anymore. I struggle to get through the day.

donjehle:
I hate to hear that, ash!  If you can't use your hearing aids anymore, what does your audiologist recommend?  And what, if anything, helps with your headaches?  Please share so that others may benefit from anything you have learned that helps.

ash:
My hearing aid amplifies  sound so they make the pain worse. These headaches are unimaginable. They talk pain management but what I’ve read the medications did other damage to the body. Don’t know what will be suggested by Stanford when I contact them when I’m formally done the steroids. I just know I won’t be able to tolerate this long term. If anyone has information about pain medication please contact me. Thank You

Navigation

[0] Message Index

[#] Next page