Post-Treatment > Post-Treatment
AN Post-treatment Headache Case Histories
dally1932:
I had the followup with the neurosurgeon on the ct scan of the temporal bone. He said when he read the report he felt he found part of the problem, seepage into the mastoid air cells, however opon closer exam of the CD disk I took of the actual exam, he doesn't feel it is a leak, but fluid that found its way in during surgery. He feels it has no relationship to my pain or drainage on the AN side. He sent me back to my primary care doctor. He gave me a shot of pain medication (I didn't get the name of it, only know it started with a "T"), he held me for a half hour to see if it worked, it did not. He prescribed a new medication called Migrazone 100 mg. I can take 1 per hour, but no more than 5 in a 12 hour period. After two days of being on them, I threw them across the room as they increased the pain to a more constant level. Back to the Percocet for now. Best to you all who read this post. He also asked me to take the ct scan to my ENT to determine if they felt it was causing a problem.
cookiesecond:
Dally,
I sure hope you find some relief soon. You are in my thoughts and prayers.
Does the percocet give you any relief?
Take care,
Lynn
Hillarie:
1. Treatment status( how many years/months post op)
 ÂÂ
  6 months post-op (12-5-05)
2. If you had headaches pre-diagnosis
  Sometimes - but not like this!! Like Dally, I prefer the term "head pain" or even "migraine", 'cuz this ain't no simple "headache"!!
3. Surgical approach, facility and surgeons name
  Sub-occ, St. Vincent Hospital in Portland OR, Sean McMenomey and Dan Rohrer, MDs
4. Family history of headaches
  None to speak of
5. When headaches started started post-treatment
  About 2 months post-op
6. What diagnostic tests you've had (MRI CT Spinal tap, etc)
  Three MRIs, 1 CT scan
7. Description of headaches
  a. frequency
   1-2 per week
  b. intensity and duration
   Between 7 and 9.5 on a 10-scale. They usually last 2 days.
  c. recognizable triggers
   Sensory overload - like when I'm at a party or restaurant with lots of noise & movement, and I'm trying to concentrate on a conversation
  d. location on head/neck
   Always begins on right (AN) side with ear pressure and pain; moves down scar to neck and shoulder, and up head along scar behind ear and over to forehead and eyes, until my entire head is exploding with massive, unrelenting pain. Sometimes I get nauseated from it.
8. what medications/treatment you've had
   Medications: Percocet, Lorazapam, Imitrex, Excedrin, Phenergan - Imitrex 100mg gives pretty good relief. Treatments: Lying down in a dark, quiet room with an ice pack over my eyes and another at the base of my skull works great in conjunction with a pain reliever.
9. Any "definitive diagnoses" you have gotten from a specialist
  All my neuro-ENT said it that is common to have post-op migraines.
Hillarie:
PS - thanks so much for this headache discussion - I am relieved to know that I am not alone in my suffering. Okay...that sounded bad - but you know what I mean, right?!? ;)
tc:
--- Quote from: Captain Deb on June 07, 2006, 09:24:43 am ---Inspired by nipandales post, I've decided to start a thread for us post-treat headache sufferers and STRONGLY suggest to any physicians currently treating us to log on as a guest and read it. Sort of a Case history file to use as a diagnostic tool. We could even print the thread out and take it to our appointments. Please limit the chatter to other threads and just state your:
1. Treatment status( how many years/months post op)
10 months
2. If you had headaches pre-diagnosis
occasional migraines and the headaches that cause me to be diagnosed, but not as painful as the continuous one I have had since 6 weeks postop
3. Surgical approach, facility and surgeons name
Sub Oc. Eastern Idaho Regional Medical Center
4. Family history of headaches
Migraines
5. When headaches started started post-treatment
6 weeks post op
6. What diagnostic tests you've had (MRI CT Spinal tap, etc)
MRI
7. Description of headaches
  a. frequency Continual
  b. intensity and duration more intense at night, lasting about 2 hours each night
  c. recognizable triggers
pressure to incision site, loud noises
  d. location on head/neck
back of head (incision site, radiating to ear, and occasionally to face and neck
8. what medications/treatment you've had
Lyrica, Trileptal, multiple muscle relaxants, neurotin, multiple types of pain medication, relaxation/biofeedback, physical therapy to neck muscles
Indocin and Hyrdocodone seem to work the best, and make the headaches tolerable and at times am pain free, I have been on this treatment for the past two weeks (Thanks Capt Deb!)
9. Any "definitive diagnoses" you have gotten from a specialist
None
In your reply, use the quote button so you don't miss any thing from the list and feel free to add to it. I am the only post-AN surgery patient my neurologist has EVER seen and has no idea what to do with me. I know it's a lot. I am hoping a dialog can be opened among patients and doctors to help us all find a solution for us so we can have our lives back!!!
Capt Deb 8)
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