ANA Discussion Forum

Treatment Options => Radiation / Radiosurgery => Topic started by: vb on October 19, 2014, 10:03:18 am

Title: symptoms again
Post by: vb on October 19, 2014, 10:03:18 am

Hello,

I have not posted for awhile. I had gammaknife radiation at Toronto Western Hospital. It went well and I had my 4th post MRI in June 2014. Tumor Stable. I started having symptoms again two weeks ago, they are getting worse and persisting. The dizziness, except this time, the whole room spins, fullness in the ear, pain etc. I have an appt. with Neuro. On Oct. 22/2014. Has anyone experienced this after this length of time? Could it be growing again. We all know that is a possibility. I'm so glad I can come into this forum anytime. No one else really gets it.

Thanks.
Vivian (Toronto)
2.2cm acoustic mengioma

Title: Re: symptoms again
Post by: KeepSmiling on February 12, 2015, 11:09:17 am

Quote from: vb on October 19, 2014, 10:03:18 am

Hello,

I have not posted for awhile. I had gammaknife radiation at Toronto Western Hospital. It went well and I had my 4th post MRI in June 2014. Tumor Stable. I started having symptoms again two weeks ago, they are getting worse and persisting. The dizziness, except this time, the whole room spins, fullness in the ear, pain etc. I have an appt. with Neuro. On Oct. 22/2014. Has anyone experienced this after this length of time? Could it be growing again. We all know that is a possibility. I'm so glad I can come into this forum anytime. No one else really gets it.

Thanks.
Vivian (Toronto)
2.2cm acoustic mengioma

Vivian
I see that no one replied to your post, YET, so I decided I would, even though I am simply a spouse of an AN patient.

 I hope maybe a few may have sent you a personal message with encouragement. It might seem like you are alone, but you are not. We are here for you.

I hope you have made some progress since your post.   I encourage you to read as much as you can and to try to find the care you deserve.

I hope you will keep your spirits up. Stay optimistic and stay positive.  Warmest wishes to you.

Title: Re: symptoms again
Post by: Mimispree on February 12, 2015, 03:01:41 pm

Hi Vivian:

I didn't have Gamma Knife, but I have read several posts where people experienced symptoms months after Gamma Knife.  Have you done a search on this forum yet? 

Just a thought.

Title: Re: symptoms again
Post by: KeepSmiling on April 09, 2015, 02:49:06 pm

How are you doing? Please know we care. Sending you a cyber hug.