Post-Treatment > Balance Issues

Balance

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campbellmerlin:
Hi Anne - I am 3+ years post GK treatment. I still have very bad imbalance and occasional dizziness. Walking in a dark room or on uneven ground is really difficult.  My tinnitus is constant - I can hear it over all  other daily noises (TV, others speaking, etc). I am now pretty much totally deaf in the AN ear and one weird thing I've noticed is that I can no longer watch TV programs that include actors that have accents (British, Scottish), etc. Can't understand a word they are saying, whereas before I could. My AN ear sometimes feels full, like there is swelling, but no pain at all. I have an MRI appt. in 2 days, so I'm hoping nothing has gone wrong - like the AN is showing regrowth, etc. I hope your imbalance improves. I am having doubts mine ever will (p.s. - I'm 65 years old and had symptoms for at least 10 years before my diagnosis)

oak1971:
More than a year out for me and still stumbling. You are not alone. I need to find the right kind of therapy, so far no luck.

Joan Mingo:
I have just started physiotherapy for my balance and vertigo issues. The physio I do is apparently similar to someone with a concussion as you are retraining your brain to centre itself again. Hoping it works. I have a small AN and am on watch and wait. My therapist also advised walking every day if possible, especially outside as it helps with the balance with visual distractions.

notaclone13:
Hi Anne, have you asked any of your doctors whether your lack of vision in one eye could be the reason for your continued balance/dizziness issues post GammaKnife? I believe when you have inner ear mediated balance issues, you become more dependent on your sense of sight for orientation. For example, many of us with balance issues due to our ANs tend to be more out of whack at night or in the dark when our vision is diminished. One of my first symptoms of AN was feeling totally disoriented when walking outside at night. Had that issue tonight when walking to my car in the parking lot. I made it, but felt a little dizzy and unsure of myself. Once I was in the car, I was fine. Someone on the forum mentioned using a cane for balance. I tried that one night when walking outside in the dark and it did seem to help. As a doctor explained it to me, your sense of touch also aids in balance. The cane connects your hand to the ground so it provides your brain with another point of reference.

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